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Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"

306 replies

JuliaMumsnet · 21/07/2021 15:01

For Birth Trauma Awareness Week, Jen Hall from the MASIC foundation, which supports women who have suffered serious injuries during childbirth, writes about her experience of childbirth and the MASIC's Foundation latest findings:

"When I gave birth back in 2013 I had no idea what lay ahead of me. I’m not talking about the sleepless nights, breastfeeding battles, or any of the other aspects of new motherhood that are widely talked about. What I had to cope with alongside new motherhood is something that is rarely spoken about - yet is a major trauma for the thousands of women affected each year.

Severe birth injuries, or third- and fourth-degree tears, are injuries that extend from the vagina into the anal sphincter and are a leading cause of bowel incontinence in women - alongside pelvic floor dysfunction, pelvic organ prolapse, nerve damage and impaired sexual function.

My birth injury was caused by being left to push for three hours, causing a traction injury to the pudendal nerve, followed by two failed attempts with the ventouse and a brutal forceps delivery where my baby’s head and body were delivered in one contraction. Long term it has left me with many of the symptoms listed above. I’m a shell of the person I was, my confidence has been deeply affected, and I no longer feel like a woman who has control of her body.

My experience of motherhood was deeply affected by the injuries I sustained. I didn’t walk into hospital at 33 years of age to have my baby and expect to come out unable to run for the rest of my life or to carry out the most basic of bodily functions.

At The MASIC Foundation we carried out a survey at the beginning of the year to try and assess exactly what impact sustaining a severe birth injury can have on your experience of motherhood. We knew women would find this difficult to talk about, so the survey was completely anonymous. The survey ran for a month across our social media channels, and we received responses from 325 women who self-identified as having suffered severe perineal trauma when giving birth.

  • 85% of women who sustained severe maternal perineal trauma said it impacted on their relationship with their child.
  • 49% of women said they doubted their ability to mother because of the injury.
  • 46% said the injury affected their relationship with their partner and wider family.
  • 34% felt their relationship with their child was affected because they associated their child as the cause of their injury.
  • 31% said they wondered whether their child would be better off without them.
  • 24% of women affected regretted having a child because of the injuries they are left with.

The results we have gathered are shocking and heart-breaking, and show in stark reality the impact these injuries are having on mums and babies each year. These injuries can lead to feelings that no woman expects to feel or wants her experience of motherhood to be. The results are hard to comprehend. But if you have suffered a severe birth injury, I’d wager you can relate to some of these feelings.

I felt that I was a failure after my birth, that there was something wrong with my birthing body that had led to this. I spiralled into a deep depression, unable to comprehend that a) having a baby could leave you like this, and nobody tells you and b) women are expected to go home with life-changing injuries and just get on with it because they are mothers now.

And these feelings led to a complete rejection of motherhood in the early days. If my body could be treated so casually as collateral damage, then why did either of us matter anymore? What good would I be to my son if I couldn’t ever lift him, play or run around with him? I fixated on the time before my pregnancy and birth, before everything ‘went wrong’. I’d unwittingly given permission for an assault on my body that had profound implications for my future.

If I tried to speak out about how I was feeling to the health visitor or to my GP I felt like I was being judged on my ability to parent. I was told my injury was ‘all in my head’ on numerous occasions and another health professional suggested that maybe it was because ‘deep down I didn’t want my baby.’ The ignorance and judgement I faced only worked to compound my isolation and distress and I feared I was a bad mother because of the things I was being told every single day.

The feminist inside me was raging.

My feelings are echoed in accounts we have heard as a charity, from other women who experienced severe injury during childbirth:

“My confidence, my me-ness, the essence of who I am, has been destroyed, my relationships with my child and my partner have suffered.”

“With my son, I love him dearly, he is the best thing in my life, but his birth caused the injury and it is difficult to square the two,”

“Every year I dread his birthday and the reminders of my traumatic experience. It is not fair on him or on me – his birthdays are not a happy occasion, but every year I have to pretend it is.”

“I am ashamed to say that at times I wished I had never become a mother and I grieved for the life I had before, I paid such a high price to have a baby.”

I know these feelings are controversial to express. But I feel they are important if we are ever going to get the NHS and policy makers to sit up and take notice of women whose bodies and lives have been deeply affected by childbirth injury and trauma. As long as women are expected to endure poor treatment while giving birth, these injuries will continue. Motherhood should not become an identity that disregards womanhood, and women should not feel afraid to speak out about the physical, emotional and psychological effects of birth injury."

Read the MASIC Foundation's full survey findings here.

Follow MASIC on Instagram: @masicfoundation
Facebook: @MASICFOUNDATION
Twitter: @masic_uk
If you're looking for support or to talk to someone about your experience, please call the MASIC 24h freephone Birth Injury Support Helpline 0808 1640 8333.

Jen will be coming back onto the thread on Tuesday (time tbc) to answer your questions.

Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"
OP posts:
Baystard · 25/07/2021 17:46

The sense I had from maternity unit at the hospital is that their job was to get the baby delivered and out of the hospital ASAP.

I don't think wider use of CS is the answer. If the system is able to deliver vaginal births really badly then it'll be just as bad at managing CS births after delivery.

I had an ELCS for a very large breech baby but the immediate aftercare was appalling, I was left to look after baby on my own most of the night (I persuaded a wrecked DH to go home and get a sleep as I believed the hospital would looks after us overnight) despite being barely able to move. Constant stream of people appearing in my room unannounced/uninvited yet none of them actually doing anything helpful. The visiting physio was horrified when she saw my urine bag was full and she emptied it. Discharged within 48 hours of major surgery and told to take paracetamol. The photographer from the local newspaper was allowed to go into patients rooms - in what other part of the hospital would a man from an external company be allowed to go into a patients room uninvited?

sarah13xx · 25/07/2021 17:51

@Baystard oh no that sounds awful 😔 were they short staffed/over worked or just choosing not to help? My hospital haven’t changed their visiting guidance yet since the covid levels have gone down so currently my partner only gets 1 hour visits. I’m really hoping it’s changed next week before I go in so he can at least stay during the day, even if I have to struggle through the night myself once the catheter is out 🤦🏼‍♀️

catsandsprogs · 25/07/2021 18:28

Thanks it's a fucking disgrace that women are going through this.

Personally Re Fortunefave's comments I don't believe she meant to be insensitive but this info may indeed be helpful for somebody pregnant or planning to be.

My first two natural births got into difficulty, both big babies. With my third I requested an elective c section - you can request on the NHS ( see NICE guidelines) in my experience though you need to be extremely firm as although you can request it they will try and refuse it at every opportunity ( I requested it at my booking in appointment). For me personally, I wish I had had one with all of my children and whilst being major surgery and no walk in the park (I too was turfed out after 24 hours with no aftercare support or advice) would definitely recommend it and wish I'd had it with all my children.

Baystard · 25/07/2021 18:46

Sarah13

I think that the staff whose job it was to provide the nuts and bolts personal care just didn't really care. A nurse came in during the first night (so about 10-12 hours after delivery) to give me anti clotting injection, she was kind and apologised for waking me up, and said she'd get me more painkillers as I was very sore. She was lovely.

The physio the next day was also very lovely, horrified at the urine bag being full (I had no idea as I couldn't see it) and emptied it immediately.

I was in a single room and felt like lots of people kept popping in to wipe something, or empty a bin, but nobody tried to help. It was as though they were observing me, but not doing anything else.

I had to buzz for a drink on arrival at the ward and the HCA staff were a bit surly and it took 30 minutes for a jug of water to appear, and in had no idea if they had forgotten. And I was really thirsty and couldn't get out of bed to go to the tap. I buzzed to ask if someone could pass me my bag, which contained everything I'd brought including my phone, food etc, when I'd been wheeled onto the ward it was set on a chair at the end of the bed and I couldn't reach for it, but I got a look as if it wasn't their job to pass me things - I only wanted them to leave the things I'd need to care for myself within reach. Nobody got me breakfast the next morning, or offered to get me breakfast (how I was supposed to go to the dining room with a catheter 18 hours after surgery I'm not sure).

My advice is to take lots and lots of snacks and drinks with you, and if you can get your DH to set everything up within reach when he goes (or have the snacks and drinks in a grab bag and insist a nurse or HCA hands it to you before they vanish).

In the scheme if things it wasn't on the same scale as some of the life changing injuries described up thread and I wouldn't hesitate to do it again - so please don't worry. I'm just highlighting that the care post CS isn't necessarily better.

sarah13xx · 25/07/2021 18:59

@Baystard oh no, you’re so helpless in that situation. There’s literally nothing you can do except from press the buzzer 🤷🏼‍♀️ I wouldn’t want their job but you’d think you wouldn’t go into it unless you were a naturally caring person. Hoping he can at least come to the ward with me to get me set up before he leaves but right now the rules are he has to leave when I’m out of recovery 🙄 I’ve still to buy snacks to put in but I will try and take a lot! That’s terrible you couldn’t even get any breakfast. Just praying he only needs to go home during the night and il probably only be in 24 hours if it’s straightforward but would be good if they were at least helpful!

pleasepuddinghot · 25/07/2021 19:09

My kids are adults now, care was just as bad back then or should I say lack of care. To the poster who said our bodies are collateral damage you are spot on. I was the first of my friends to have a baby, I had some stitches and realise how lucky I was to have got away with just that.

I expect it's because we can talk about these things more now, that honestly if I were contemplating having a child now I would be petrified of the birth and it would very likely put me off altogether.
Of my nieces and friends daughters having babies this year not a single one has had the baby with zero birth injuries. I cringe for the mothers when I see the baby's first photo and they have bruising and the loop marks of the forceps on their faces. It's awful.
A previous poster suggested % of women with injuries and stats and costs associated. I think referring these things back to the units is the best way to see some action.
I had a complete bitch of a midwife, I feel for any woman going through pregnancy and birth knowing how let down they will feel afterwards. These things need to be discussed and addressed.

Cabinfever10 · 25/07/2021 19:31

@Mary1Mary
Thanks for that. I'm really sorry that you went through similar to me. I wish I could say that I was surprised that there could be 2 such midwifes but from everything I've seen and hurd since things are getting worse not better.
I do wonder how much the current trend of using dehumanising language (cervix haver, menstrators, chest feeder, birthing person etc) to describe women is feeding into all of this

Organisedchaosalways · 25/07/2021 19:35

Not just me then....this entire post makes me so sad. Looking back at my own experiences, only 1 out of my 4 births was in a nice environment. The midwives were kind and supportive.....my last birth I needed to start pushing and deliver my child but wasn't looked at for at least 2 hours until the head midwife came and told off the staff for not breaking my waters ( I didn't break them for any of my kids) that physical trauma is to this day causing me issues.....like having to push out poo through my vagina

pinkorchid1 · 25/07/2021 19:58

I was completely mentally prepared for my natural birth. But when it all started going wrong I felt like a failure. After hours of my epidural being switched on and off because the baby was in distress, I asked the consultant how long we were going to keep doing this before I would need a c-section, (the midwife had already warned me that was probably what would happen, and I was so tired I was happy to have one by then) and she snapped at me and told me if I wanted to "give up" then fine, they would do a c-section. I cried because she was so mean and I felt the most vulnerable I ever have. I Said I wanted a c-section and got one.
I'm so grateful I did. It wasn't until after I'd had my first baby that you hear women's real birth stories and the injuries and trauma they suffered through a 'natural' birth.
It meant I insisted on an elective c-section second time round.
I so feel for you woman who went through /are going through this.
Even after a c-section you are expected to just get on with things. You really do become the last thought. The newborn days are a dark time that is kept a secret until you have a baby.

WhyDoesItAlways · 25/07/2021 23:02

I don't mean to take this on a tangent but I think this issue is wider than birth injuries. Women's healthcare in this country is appalling. There are many female health issues that are either not diagnosed or are diagnosed and then women are told to just get on with it. PCOS and endometriosis are two that I suffer from and GP's don't seem to care. It's debilitating on a monthly basis.

I once had stomach pain that was so bad it was making me vomit and I was on the edge of unconsciousness. In A&E they checked it was appendicitis, gave me morphine and then told me that because I was a woman it could be anything. They asked if I was in any pain after the morphine had taken affect so obviously I wasn't so they discharged me. Turns out it was kidney stones.

I was lucky giving birth in that I only needed a few stitches. I had to help for PND though and have made the decision to only have 1 baby as I don't trust the care I will be given with any future babies.

Some of the stories on here are shocking.

Comtesse · 25/07/2021 23:24

So many stories Flowers why are we just supposed to put up with this sort of treatment? Just shocking.

And why is pelvic floor physio for every woman post birth like it is in France?? So crap.

Ruth2009 · 25/07/2021 23:29

I've not read the whole thread, but my 3rd birth was 8years ago now.
On paper there were no complications, I was induced but gave birth naturally with only gas and air.
But I was traumatised, and I could still cry now thinking about it.
I was begging for pain relief for hours and the midwife disappeared for ages each time always a different excuse. Thinking back there were probably not enough staff to supervise.
I was in absolute agony and I remember the midwife and my dh laughing about something.

Nobody really listened to me, I just felt like nobody is bothered as long as the baby is OK.

Even 'normal' births are traumatic. I tore and needed stitches. I squeezed my nose so hard while giving birth I bruised it. I felt like I had PTSD afterwards but nobody was bothered.

Dominikaa · 25/07/2021 23:55

yep, that's the reason I had my elective c section...@FortunesFave @MrsKrystalStubbs & I am not being insensitive...just honest.

The doctor reduced me to tears during the last pre c section appointment by trying to scare me with ' the potential consequences' & by being very very very unpleasant.

I recovered pretty quickly from c section and I am pretty sure that had I opted for natural birth, the recovery would take much longer.

MrsKrystalStubbs · 26/07/2021 06:31

Good for you PP, not sure what you’ve got to contribute to a thread about birth injury, other than to be smug that you are too clever to have been damaged by the NHS. A CS wasn’t really an option for me as I was the one who was at risk and in distress, not my son. But thanks for sharing the benefit of you superior knowledge. Im sure every women who has posted on this thread would feel better having heard your experience. Biscuit

sarah13xx · 26/07/2021 07:16

@MrsKrystalStubbs there are many comments on here from those who have opted for c-sections, either for first babies or those further down the line. PP’s comment might be helpful to many of the people reading these awful accounts and weighing up their options. I don’t think most people are aware you can make a maternal request for a c-section with no medical reason, so it doesn’t need to be for you or the baby, it can be neither. I have done exactly that but even by the reaction I’ve got when I’ve told people I had, it was clear hardly anyone knows it’s possible. Had so many people think it wouldn’t be approved etc if I had no medical reason. Luckily I had done hundreds (if not thousands) of hours of research on it before getting pregnant. The message should be out there so women can make informed decisions. A c-section isnt the way to go for everyone (and no doubt the NHS couldn’t support everyone having one either) but there would possibly be less traumatized people on this thread if we were given more information and choice around giving birth rather than it being presumed you’ll be giving birth one way and one way only, no matter how horrifically bad that goes for you

stairway · 26/07/2021 07:26

sarah13xx if this was a thread about birthing options the comments wouldn’t be insensitive at all. The majority of the women on this thread have already had their babies and been injured so it’s not really helpful to them is it. For what it’s worth I had a bad csection experience which almost had my bladder torn. Even if it was feasible to offer every low risk women a cection on the NHS there would still be birth injuries and traumatic birth. No one deserves to be forgotten about with long lasting injuries no matter how they give birth.

36degrees · 26/07/2021 08:26

Access to C-sections is unfortunately regularly denied, regardless of what is in local policy. Even when medically-indicated, and backed up with the appropriate guidelines and evidence base. It is often down to individual clinician decision - I fought hard throughout my only pregnancy for one due to previous complex abdominal surgery and a clear understanding of the risks involved because of my professional background and wasn't approved. Clear parallels with access to pain relief.

I suspect there is also an issue around notes being lost - three of four women on my ward with serious birth complications had their notes lost by ward staff. It meant that access to follow-up care was difficult (I was told while having my infected stitches checked "your injuries are consistent with your claims of a 4dt but there is no record of that happening to you") and crucially, near-death incidents were not recorded for monitoring at a national level.

The woman-held maternity record is a huge advantage during pregnancy, especially if multiple HCPs are involved, but if it isn't being added to the woman and child's medical records, that is a risk to the ongoing health of both.

RosesAndHellebores · 26/07/2021 08:33

The woman held maternity record is particularly useful ime because it allows the woman to see the inaccuracies being recorded and to correct them. I went to he'll breastfeeding my first, infective mastitis and a breast abscess. I specifically told the midwife I was undecided about bf again due to trauma. She wrote plans to breastfeed. When I challenged it at the next apt, I was told they always put will bf if there's any doubt. I imagine the same is true about wishes for the birth. It is hardly respectful or idicative of listening. It is precisely why I stopped, wherever possible, dealing with midwives and nurses.

Legomumclip · 26/07/2021 08:47

This thread is so important, as well as heartbreaking, we need to be discussing the issues raised here in the hope that things can be improved for all women giving birth and post birth.

I disagree with those posters objecting to women who have had sections sharing their experience on this thread. This is a discussion about birth injury & women who have had sections have given birth, and should be able to post about their experience whether positive or negative. Why do some posters feel it is desirable to limit this thread to the experiences of women who have given birth vaginally? Is it ok for women who have given birth vaginally & sustained no injuries to share their experience here? What about women who have had a section & had a traumatic experience or were injured in the process - can they post here? As for the comments about most women on the thread having had their babies already & so discussion about birthing options not being relevant / valuable - that’s a massive assumption, plus many of us have sisters / daughters / nieces / friends who may be making choices about how they would like to have their babies in the future and are interested in other women’s experiences.

In my opinion birth injuries and the options available to women when giving birth are two sides of the same coin - it is very limiting to discuss one and not the other.

I understand that emotions run high on these threads and many women are understandably angry & traumatised by their awful experiences. However it is depressing how often threads on mumsnet, about really important issues affecting women, end up with a section of posters deciding that some women’s experiences are valid to be shared on the thread while others should be excluded as they do not fit their criteria / their own experience.

I hope everyone keeps posting about their experience, so that we can all learn, understand our options & the help / lack of help available for women with these injuries, & support the women in our lives going forward

stairway · 26/07/2021 09:00

Legomumclip no one said women who had csections couldn’t discuss it, just that some of those posters were being insensitive and coming across as smug when the thread is about terrible birth injuries. It’s like someone coming on here and saying they had the most perfect birth ever because They did hypnobirthing, or refused an epidural.

sarah13xx · 26/07/2021 09:23

I think the comment above was ‘not sure what you’ve got to contribute’. Everyone should be able to contribute, it’s clearly a very wide ranging issue. Obviously the end goal is a healthy baby for everyone but it seems a healthy mum mentally and physically is what a lot of these health care professionals are ignoring. I ended up on this post because someone had linked it on another post about birth options, full of people who have not yet given birth so for all that most people posting on here may have already given birth, a lot of people reading it haven’t - myself included

Legomumclip · 26/07/2021 09:39

@stairway you may not of said women who had c sections could not contribute, but as @sarah13xx has pointed out above, that has been the implication in some posts.

Also it’s pretty subjective to decide other posters are being ‘smug’ or ‘insensitive’ because they are posting about a positive experience. I have seen these words used several times in reference to posters who have had c sections. Not very kind

stairway · 26/07/2021 09:55

Legimumclip, this is a post about terrible vaginal birth injuries and not receiving the right care before and after, it is not about birth in general. Im not sure how posting a positive csection experience is helpful when it’s obvious you can’t get these types of birth injuries if you only had csections. I’m not sure how useful this would be to first time mums either. Although anyone has the right to request a csection it’s never guaranteed. The NHS discourages it, probably because of money and resource issues they can barely cope with the level of csections at the moment.

EmRata95 · 26/07/2021 10:04

I ended up on this post because someone had linked it on another post about birth options, full of people who have not yet given birth so for all that most people posting on here may have already given birth, a lot of people reading it haven’t - myself included

I was the one that linked this thread because I think pregnant women need to know what can actually happen during birth, and be aware of the potentially life changing injuries that can come from a vaginal birth instead of just being told vaginal birth is the easiest, safest option. I wish I had been fully informed before I gave birth.

MrsKrystalStubbs · 26/07/2021 10:13

@stairway you have expressed it perfectly, this thread is about the work of MASIC not about birth in general. I don’t have any opinion about other people’s birth choices. I do think that people coming on to a thread specifically about vaginal birth injury and after care, to crow about their elective CS births are insensitive. And of course women who have had CS births can be traumatised but that isn’t what this thread is about or is promoting. I didn’t know what could happen to me when I went in to have my baby, I had the money in the bank to pay for a private birth but was discouraged by all the scare stories I’d heard and felt confident that the NHS was the right choice for my high risk birth. Obviously I would act differently now and go for a fully private elective CS but that’s life. I didn’t and now me and my child are affected for life. This is what this thread is about.