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Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"

306 replies

JuliaMumsnet · 21/07/2021 15:01

For Birth Trauma Awareness Week, Jen Hall from the MASIC foundation, which supports women who have suffered serious injuries during childbirth, writes about her experience of childbirth and the MASIC's Foundation latest findings:

"When I gave birth back in 2013 I had no idea what lay ahead of me. I’m not talking about the sleepless nights, breastfeeding battles, or any of the other aspects of new motherhood that are widely talked about. What I had to cope with alongside new motherhood is something that is rarely spoken about - yet is a major trauma for the thousands of women affected each year.

Severe birth injuries, or third- and fourth-degree tears, are injuries that extend from the vagina into the anal sphincter and are a leading cause of bowel incontinence in women - alongside pelvic floor dysfunction, pelvic organ prolapse, nerve damage and impaired sexual function.

My birth injury was caused by being left to push for three hours, causing a traction injury to the pudendal nerve, followed by two failed attempts with the ventouse and a brutal forceps delivery where my baby’s head and body were delivered in one contraction. Long term it has left me with many of the symptoms listed above. I’m a shell of the person I was, my confidence has been deeply affected, and I no longer feel like a woman who has control of her body.

My experience of motherhood was deeply affected by the injuries I sustained. I didn’t walk into hospital at 33 years of age to have my baby and expect to come out unable to run for the rest of my life or to carry out the most basic of bodily functions.

At The MASIC Foundation we carried out a survey at the beginning of the year to try and assess exactly what impact sustaining a severe birth injury can have on your experience of motherhood. We knew women would find this difficult to talk about, so the survey was completely anonymous. The survey ran for a month across our social media channels, and we received responses from 325 women who self-identified as having suffered severe perineal trauma when giving birth.

  • 85% of women who sustained severe maternal perineal trauma said it impacted on their relationship with their child.
  • 49% of women said they doubted their ability to mother because of the injury.
  • 46% said the injury affected their relationship with their partner and wider family.
  • 34% felt their relationship with their child was affected because they associated their child as the cause of their injury.
  • 31% said they wondered whether their child would be better off without them.
  • 24% of women affected regretted having a child because of the injuries they are left with.


The results we have gathered are shocking and heart-breaking, and show in stark reality the impact these injuries are having on mums and babies each year. These injuries can lead to feelings that no woman expects to feel or wants her experience of motherhood to be. The results are hard to comprehend. But if you have suffered a severe birth injury, I’d wager you can relate to some of these feelings.

I felt that I was a failure after my birth, that there was something wrong with my birthing body that had led to this. I spiralled into a deep depression, unable to comprehend that a) having a baby could leave you like this, and nobody tells you and b) women are expected to go home with life-changing injuries and just get on with it because they are mothers now.

And these feelings led to a complete rejection of motherhood in the early days. If my body could be treated so casually as collateral damage, then why did either of us matter anymore? What good would I be to my son if I couldn’t ever lift him, play or run around with him? I fixated on the time before my pregnancy and birth, before everything ‘went wrong’. I’d unwittingly given permission for an assault on my body that had profound implications for my future.

If I tried to speak out about how I was feeling to the health visitor or to my GP I felt like I was being judged on my ability to parent. I was told my injury was ‘all in my head’ on numerous occasions and another health professional suggested that maybe it was because ‘deep down I didn’t want my baby.’ The ignorance and judgement I faced only worked to compound my isolation and distress and I feared I was a bad mother because of the things I was being told every single day.

The feminist inside me was raging.

My feelings are echoed in accounts we have heard as a charity, from other women who experienced severe injury during childbirth:

“My confidence, my me-ness, the essence of who I am, has been destroyed, my relationships with my child and my partner have suffered.”

“With my son, I love him dearly, he is the best thing in my life, but his birth caused the injury and it is difficult to square the two,”

“Every year I dread his birthday and the reminders of my traumatic experience. It is not fair on him or on me – his birthdays are not a happy occasion, but every year I have to pretend it is.”

“I am ashamed to say that at times I wished I had never become a mother and I grieved for the life I had before, I paid such a high price to have a baby.”

I know these feelings are controversial to express. But I feel they are important if we are ever going to get the NHS and policy makers to sit up and take notice of women whose bodies and lives have been deeply affected by childbirth injury and trauma. As long as women are expected to endure poor treatment while giving birth, these injuries will continue. Motherhood should not become an identity that disregards womanhood, and women should not feel afraid to speak out about the physical, emotional and psychological effects of birth injury."

Read the MASIC Foundation's full survey findings here.

Follow MASIC on Instagram: *@masicfoundation*
Facebook: @MASICFOUNDATION
Twitter: @masic_uk
If you're looking for support or to talk to someone about your experience, please call the MASIC 24h freephone Birth Injury Support Helpline 0808 1640 8333.

Jen will be coming back onto the thread on Tuesday (time tbc) to answer your questions.
Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"
OP posts:
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TomAllenWife · 22/07/2021 19:49

Can I just add that birth trauma is not just related to vaginal deliveries. @FortunesFave I find your post quite offensive on that level, c section is no without risk!

On my 3rd baby, 2 previous vaginal deliveries with no problems.
Was 12 days overdue before I went in for a 4 day induction.
DS2 was in distress and I was advised to have a c section which I did.
I couldn't believe how painful the recovery was.
On day 5 at home I asked exH to come and help me off the toilet and as he did my whole scar gave way leaving omentum and bowel exposed which I carried back to the bedroom whilst exh called ambulance.
I was blue lighted in and had emergency surgery to repair and at that time they couldn't tell me whether my bowel would recover or whether I would need a stoma.
The midwife one night was so rude to me, I was in agony and needed pain relief. I was working in the anaesthetic dept at the time and thankfully one of them came up to see me. I heard her say outside the door 'well she doesn't look in pain'
My recovery was agony, I didn't feed or pick up my baby for 3 months.
I hated him, I felt that he'd ruined my life, I hadn't made it to ds1 first Xmas concert, my body was wrecked.

Thankfully my GP was amazing, sent me to the PTSD clinic, and recommended a gynaecologist to go and see.

That changed everything, I had treatment for PTSD and started meds. My gynaecologist supported me with a medical negligence claim and I still see him to this day.

12 years on I still struggle, still medicated, still gynae issues but DS2 is the most amazing child and I am thankful that even after all the trauma we have a great relationship

If that had been my first birth I would not have had any more children

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MissChanandlerBong22 · 22/07/2021 20:51

@WhoKnew19

I’ve read it - shocking and absolutely tragic. And the latest in a string of maternity scandals - Morecambe Bay, Shropshire, East Kent.

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Kelly272728 · 22/07/2021 20:55

I gave birth in august last year. After being induced and the pushing for over an hour with nothing happening they realised my baby was stuck and both our heart rates were dropping. They then rushed in a doctor who used foreceps very forcefully to get her out. I felt like I was having an out of body experience and the pain and pressure was horrendous. I tore and was led holding my baby while he stitched me up, I told him I could feel it and he said oh well only one more! It was awful! I since have had no help from health visitor, no visits at all! As they are working from home, when most of us are back at work ourselves! I still am unable to enjoy sex and have a very weak bladder due to the foreceps and like most women on here, no one cares about us as long as we have a healthy baby

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1HappyTraveller · 22/07/2021 21:09

@TomAllenWife not quite sure why you feel so offended by @FortunesFave comments. She is talking about an elective c-section, which yours was clearly not. At no point did she say there were no risks involved. Really crap what happened to you but not sure why you’re making @FotunesFave ‘s comments into something it isn’t 🤷‍♀️

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TomAllenWife · 22/07/2021 21:13

@1HappyTraveller whatever works for you
Surely im entitled to be offended, or is that not allowed

Mine was elective, I was given a choice, either synto or c section
I still haven't forgiven myself for that decision

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1HappyTraveller · 22/07/2021 21:16

@TomAllenWife you said you were admitted for 4 days for an induction, your baby was in distress and a c-section was advised. That’s either cat 2 or cat 3 section. Not an elective. You don’t get to be offended at things that were not said.

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Willwebebuyingnumber11 · 22/07/2021 21:18

I’m with @FortunesFave 3 elective c sections for me, 3 incredible births, 3 amazing & speedy recoveries, 3 straight forward no complication procedures.

Will definitely make sure my DD is aware of her right to request one if she ever wants children.

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stairway · 22/07/2021 21:35

Willeebuyingnumber11 it just comes across a bit smug when people are talking about horrendous birth injuries, it’s like saying I had 3 perfect vaginal births. Good for you but is this really the right thread.

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KittyKel · 22/07/2021 21:56

So pleased you’ve sparked this discussion. Birth injuries are not discussed enough. I had a theatre delivery with forceps and episiotomy, 3rd degree after a good 3hrs+ of intense pushing. 2 years...totally numb on the scar tissue, a bit leaky, occasionally prolapse esp if I’ve been lifting, plus my DD has scarring to her face and nerve damage to her eye.

No one ever checked how I was recovering. I honestly think the recovery was worse than the labour, and the standard line you hear ‘you forget the pain when you hold them in your arms’ meant in my emotional wreck state I felt a bit of a failure, somehow being weak or mardy about it all that I stIll was in pain weeks after.

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entropynow · 22/07/2021 22:07

@FortunesFave

I have had two elective sections and would advise my daughters to do the same. I know that there are risks attached with sections but just look at what happens to MOST women having babies naturally.

I'd rather take the risk of organised, calm surgery than the bloodbath that is natural birth.

I've always said that if men had babies, c sections would be the default.

Not 'most', no. Your choice, but honestly it isn't a 'bloodbath' in most cases. Surgery can leave lasting complications too.
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shreddednips · 22/07/2021 22:44

I'm so furious reading all of these comments, you are all so brave to speak out about your appalling experiences.

I wasn't left with physical injuries, but terrible mental health problems after DS was born. I was left alone for what must have been nearly 24 hours with no monitoring or pain relief, because despite contracting every 2 minutes, I wasn't dilating. I was told that I wasn't allowed gas and air until I reached 4cm. When I finally reached the 'magic' 4cm, they decided to have a listen to DS's heartbeat and discovered he was in severe distress.

I can't remember his birth because I ended up with PTSD and I've blocked it out. All I can remember is asking if my baby would live and no one would answer me. The only thing I can remember is screaming and begging for them to let me die as long as they could save my baby. Until I had therapy, I was unable to fall asleep because I could hear flashbacks of myself begging the doctors to save him. For some reason, I felt terrible shame at having been so out of control.

After the section, I was told by one of the midwives not to take the strong painkillers unless the pain was absolutely unbearable in case the doctors reviewed my medication records and thought I was taking the oramorph when it was offered because 'I liked it too much'. This made me think that if I took it as often as it was prescribed, the doctors would think I was taking the painkillers for fun and would question my ability to be a responsible parent. So I refused the oramorph despite being in terrible pain and just took paracetamol.

Sorry if this is a derail, I know it isn't a birth injury as such. But almost every woman I know who has given birth has suffered physical injury , psychological injury, or both as a result of their births. I had a conversation with a friend recently where we both said how invisible we felt when giving birth- like we were there as a vessel for producing the baby and that the baby's safe arrival was the only thing that mattered.

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StyleDesperation · 22/07/2021 23:02

In November I gave birth to DD and suffered an internal perineal tear but no visible external tearing. I had a 20 hour labour plus 2 hours of pushing but the cord was trapped around her shoulders so her head wasn't really doing its job on my cervix. It was agony and because I was only 2 cm dilated for the first 20 hours, I wasn't allowed gas and air. Following the birth I wasn't examined because my stitches weren't external. By my 6 week gp discharge appt I was leaking urine every time I bent over or stood up and could only have a bowel movement if I pushed up on my perineum or inside my vagina. Because of the pandemic my appt was on the phone and when I raised my symptoms I was told "have a look, you need to know your own body". I didn't recognize what I saw but my HV diagnosed bladder prolapse on the phone based on my symptoms. The gp agreed to see me in February but couldn't tell if anything was wrong and referred me to a gynae. After waiting to hear from them I was told the dept had been closed since November because of the pandemic and I would receive an appt when it reopened. I haven't yet had one. Fortunately I was able to see someone privately who diagnosed stage 3 bladder prolapse (outside the body) and stage 2 bowel (at the entrance to the body). I have also seen a women's health physio which was a huge support. I am no longer supposed to run or do any exercise that increases pelvic or abdominal pressure, or lift anything heavier than 5kg apart from DD. Despite informing the HV of my diagnosis I have had no offer of additional support mentally or physically. I walk around looking normal with my insides basically falling out. I have no sex drive because my body repulses me. My husband is very understanding because we are still in the haze of having a young baby and very little sleep but what will my relationship be like in the coming months or years if I can't recover physically or mentally. If it weren't for this trauma, I think I would have liked another baby, but the thought of putting my body through what I was told was "a great birth" by the midwives fills me with dread. I don't recognize myself as the physical impact of my prolapses has made me hate my body and not want to do anything nice for it or myself. What's more, I'm sad that so many women nod sagely and share their own hideous story. My injuries may not have been preventable, but I have received no care at all from the NHS since, and that is a travesty.

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FannyCann · 22/07/2021 23:18

Gosh, so many dreadful stories here, my heart goes out to all of you who have suffered such trauma.

Not to derail the thread but I'm just posting this here, as I have a great concern that the experience of childbirth is minimised and the need for women to be cared for and to have time to recover is ignored. I believe, for various political reasons, that maternity leave will be replaced by parental leave and , as this person suggests, there will be just two weeks "childbirth leave". It gives me such a massive rage, women campaigned for maternity leave, which isn't that great in the U.K. compared so many EU countries, but is considerably better than in the USA.
As well as raising awareness of the need for better postnatal care, we must not let it be forgotten that women need proper time to recover from childbirth.

www.theguardian.com/lifeandstyle/2021/jul/22/dads-should-be-given-the-same-parental-leave-as-mums

Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"
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FannyCann · 22/07/2021 23:19

Apologies for the derail, but it is part of the general minimisation of the huge demands pregnancy and childbirth make on a woman's body, even without the additional trauma of a birth injury.

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Bargainchunter · 22/07/2021 23:28

It’s so sad to read so many awful stories, I think many hcps are grey and work amazingly hard, but I also feel that some forget the ‘care’ aspect of the job.
With my first birth nearly 10 years ago I blocked out a lot of it, my labour seemed to be going slow but fine, but not fast enough for them so I was put on the oxytocin drip on its highest setting. I was then contracting every 2-3 minutes for about the next 12 hours, and got told off anytime I moved from being on my back because of the monitoring strap.
Eventually my baby became distressed, and I was told the consultant was coming with the forceps and if I Wanstead the chance to push, now was the time. I got about 5 pushes in before they were ready with the forceps and she was dragged out of me. The memory of the pain doesn’t go away. I tore badly and was stitched without suitable anaesthetic, feeling every stitch.

My baby was bruised and unhappy and I was left to deal with her alone as it was now the middle of the night and dh had to leave. Midwives on the ward said I had to deal with her myself through the night, after a 36 hour labour and no food as I’d missed dinnertime.
After hospital I was left with infected stitches that eventually ruptured a month or so later, undiagnosed ptsd and pnd, with flashbacks and not wanting to know my baby for months.

I was so scared when I got pregnant again, and it has left me with a huge phobia of medical professionals as well as my now daily urinary incontinence that makes me dread sneezing and unable to run without adequate protection. Thankfully, second birth was less complicated, (although equally uncaring feeling from the hcps)

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Cabinfever10 · 23/07/2021 00:25

When I had my dd (20 years ago) I was told how "incredibly lucky " I was to have such a quick Labour yeh 4 hours of hell with midwifes refusing me any pain relief not even gas and air as it was to soon and then it was to late, screamed at for insisting that I push (was actually crowning at this point) and only agreed to check how dilated I was because I was pushing as hard as I could there was no way my body was letting me do anything else. I still remember the look of surprise on the midwifes face when she said oh there's the head.
My ds was a hole different ball game he came 6 weeks and 6 days early and was a 45 minutes Labour and was delivered by the poor paramedic in the ambulance (who was the most caring person ever) unfortunately I was left with a "minor" rectal prolapse apparently to minor to fix but I have to push on my perineum and/or vaginally to poo. I also went straight into shock and had a retained placenta (had expected that due to it being partially on an adhesion) and was supposed to have it surgically removed however the midwife who came to check on because I was in shock and kept passing out decided to just manually remove it herself whilst I was unconscious the pain brought me round. The midwife then fucked off and left me to bleed out I barely made it from the bed to the wall alarm before passing out again.
I woke up 2 days later in ICU having had emergency surgery where they barely managed to "save" my womb (somewhat pointless as now have so much scar tissue that I'd never make it past 12 weeks again ) and having required 8 pints of blood transfused which is 1-2 pints more than I hold.
The staff in the ICU and later in HDU were amazing and so horrified by the midwifes behaviour that they did there best to convince me to report her to the police for an assault (I really wish I had) and testified against her at the professional body hearing that revoked her licence if I'd known what came out in the hearing before (had mistreated others and was already on probation) I wouldn't have hesitated in reporting her to the police but I naively believe that it was an accident rather than her being a sadistic cunt!
Ds was thankfully okay and was out of the NICU before I was out of the HDU.
I have very few memories of the "incident " (there term not mine) but I have panic attacks whenever I go to hospital and have to be sedated just to get me on a gurney for subsequent surveys and I still wake up screaming from terrible nightmares that I can't remember after more than a decade, my therapist says that it's my subconscious trying to process the repressed memories of my trauma and yet sad as it is I know from friends that I have been lucky to have come out of it so well (mainly due to ICU and HDU staff). 1 women I know was left 3 years with a prolapsed bowel, blader and womb (so bad that she was touching her cervix when she wiped) and 2cm tare in her diafram(sp) before she even got a referral and has had 2 lots of failed surgery repairs and is looking at a full hysterectomy and more surgery .
Hearing that women are still being expected to endure this sort of treatment and are still being left with life long injuries that are both physical and mental makes me so angry.
Why is this still happening.
Sorry that was quite long

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FortunesFave · 23/07/2021 05:21

[quote MrsKrystalStubbs]@FortunesFave what an insensitive response to this thread. Most women who suffer birth injuries (me included) have no idea about what can happen to them. And aren’t offered a CS on the NHS which is why these problems occur.[/quote]
And your response is equally insensitive. I was merely giving MY experience. I'm allowed to do that...they're mine and mine to share. I made my choice after researching and talking to women I know. Doesn't mean I can't share! And my sections WERE on the NHS. I had to fight for them.

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Bringonthebloodydrama · 23/07/2021 05:25

I wish my feelings had been validated like this...I felt like I was isolated, in shock, pain, with a deep-rooted sense of how useless I was. Probably stemming from how I was dismissed when I got to hospital and left in a waiting room in tears until they finally relented and I was 8 cm dilated. I was then dismissed when I said I could feel the head ten minutes later ("far too soon") and it took me going down on all fours and pushing for them to believe me.

I begged for pain relief but to no avail. I was stitched up for 2 hours with gas and air after my baby was in distress during labour, and about 20 people came in, 2 holding a leg in the air sideways. The birth almost tore me in two. I hurt my throat from screaming and was scared to look down there afterwards. Stitches got infected and my baby had colic. I thought death seemed a viable and attractive option, or at least doing myself serious harm so I could rest in a hospital bed.

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FortunesFave · 23/07/2021 05:29

Bitofachinwag

Why is it unhelpful to describe birth as a bloodbath? It is like that. Didn't you read the thread?

There are women who have to manually remove feces via their VAGINA after giving birth because they're so damaged.

And as eacapade1982 says, as a scientist she's baffled why studies into the subject are so few and with small samples.

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FortunesFave · 23/07/2021 05:31

@Willwebebuyingnumber11

I’m with *@FortunesFave* 3 elective c sections for me, 3 incredible births, 3 amazing & speedy recoveries, 3 straight forward no complication procedures.

Will definitely make sure my DD is aware of her right to request one if she ever wants children.

Me too and I've already told them all about the realities of childbirth (they're teens) none of this secretive and wet "Oh you forget all about the pain once you've got your baby" crap.

No you don't. Not according to the many maimed women that anyone can read about online.
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stairway · 23/07/2021 05:52

FortunesFave presumably you didn’t need to sign a consent form as nothing bad has happened during a csection ever.

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FortunesFave · 23/07/2021 06:42

@stairway

FortunesFave presumably you didn’t need to sign a consent form as nothing bad has happened during a csection ever.

I'm unsure why I'm being so roundly attacked on this thread for my perfectly valid views.

I don't think it's the right place to keep on mentioning my name and adding sarcastic comments. It's a thread for sharing. I've shared.
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MissChanandlerBong22 · 23/07/2021 07:15

I think the point is that elective c-sections are not the answer to poor maternity and poor antenatal care. If 100% of women had c-sections we would see new problems emerge at a population level - and c-sections carry risks that are very unappealing to some women. I’m a huge supporter of maternal request CSs - I strongly considered having one myself (although decided against it because I found some of the risks of a CS very off putting) - and if a woman has evaluated the risks of both options and prefers the risks of a caesarean then good for her. But it doesn’t change the fact that women who have vaginal births are entitled to expect proper care - before, during and after.

There is of course the separate but related issue that the NHS has a ‘natural birth at any cost’ culture. In Shropshire, Morecambe, and East Kent that ideology got so out of control that it had catastrophic and tragic consequences for many families.

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stairway · 23/07/2021 07:16

FortunesFave I’m not sure what your view is though? That because you had a wonderful csection experience this would be the case if every women chose this route. I think you are just trying to be self congratulatory in your choice of birth.

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TheViewFromTheCheapSeats · 23/07/2021 07:39

I felt after my second I was treated like a stuck pig: I was induced and they ignored me, going against what I was telling them, resulting in uterine shock and 1.8-L bleed.
Obviously it was an emergency situation but because I’d had an induction they rushed in an presumed I’d had an epidural. I had no pain relief. I wasn’t even told what they would do, I was just held down. They squeezed outside then reached entirely inside me and packed. It was far far worse than even my harder births, I can only describe it as like being disemboweled. I was ripped outside.

I was coped for a long time until my next, when I couldn’t face them even to book in. I booked in at 28 finally in another hospital who finally understood why I was reacting in such fear.

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