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Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"

306 replies

JuliaMumsnet · 21/07/2021 15:01

For Birth Trauma Awareness Week, Jen Hall from the MASIC foundation, which supports women who have suffered serious injuries during childbirth, writes about her experience of childbirth and the MASIC's Foundation latest findings:

"When I gave birth back in 2013 I had no idea what lay ahead of me. I’m not talking about the sleepless nights, breastfeeding battles, or any of the other aspects of new motherhood that are widely talked about. What I had to cope with alongside new motherhood is something that is rarely spoken about - yet is a major trauma for the thousands of women affected each year.

Severe birth injuries, or third- and fourth-degree tears, are injuries that extend from the vagina into the anal sphincter and are a leading cause of bowel incontinence in women - alongside pelvic floor dysfunction, pelvic organ prolapse, nerve damage and impaired sexual function.

My birth injury was caused by being left to push for three hours, causing a traction injury to the pudendal nerve, followed by two failed attempts with the ventouse and a brutal forceps delivery where my baby’s head and body were delivered in one contraction. Long term it has left me with many of the symptoms listed above. I’m a shell of the person I was, my confidence has been deeply affected, and I no longer feel like a woman who has control of her body.

My experience of motherhood was deeply affected by the injuries I sustained. I didn’t walk into hospital at 33 years of age to have my baby and expect to come out unable to run for the rest of my life or to carry out the most basic of bodily functions.

At The MASIC Foundation we carried out a survey at the beginning of the year to try and assess exactly what impact sustaining a severe birth injury can have on your experience of motherhood. We knew women would find this difficult to talk about, so the survey was completely anonymous. The survey ran for a month across our social media channels, and we received responses from 325 women who self-identified as having suffered severe perineal trauma when giving birth.

  • 85% of women who sustained severe maternal perineal trauma said it impacted on their relationship with their child.
  • 49% of women said they doubted their ability to mother because of the injury.
  • 46% said the injury affected their relationship with their partner and wider family.
  • 34% felt their relationship with their child was affected because they associated their child as the cause of their injury.
  • 31% said they wondered whether their child would be better off without them.
  • 24% of women affected regretted having a child because of the injuries they are left with.


The results we have gathered are shocking and heart-breaking, and show in stark reality the impact these injuries are having on mums and babies each year. These injuries can lead to feelings that no woman expects to feel or wants her experience of motherhood to be. The results are hard to comprehend. But if you have suffered a severe birth injury, I’d wager you can relate to some of these feelings.

I felt that I was a failure after my birth, that there was something wrong with my birthing body that had led to this. I spiralled into a deep depression, unable to comprehend that a) having a baby could leave you like this, and nobody tells you and b) women are expected to go home with life-changing injuries and just get on with it because they are mothers now.

And these feelings led to a complete rejection of motherhood in the early days. If my body could be treated so casually as collateral damage, then why did either of us matter anymore? What good would I be to my son if I couldn’t ever lift him, play or run around with him? I fixated on the time before my pregnancy and birth, before everything ‘went wrong’. I’d unwittingly given permission for an assault on my body that had profound implications for my future.

If I tried to speak out about how I was feeling to the health visitor or to my GP I felt like I was being judged on my ability to parent. I was told my injury was ‘all in my head’ on numerous occasions and another health professional suggested that maybe it was because ‘deep down I didn’t want my baby.’ The ignorance and judgement I faced only worked to compound my isolation and distress and I feared I was a bad mother because of the things I was being told every single day.

The feminist inside me was raging.

My feelings are echoed in accounts we have heard as a charity, from other women who experienced severe injury during childbirth:

“My confidence, my me-ness, the essence of who I am, has been destroyed, my relationships with my child and my partner have suffered.”

“With my son, I love him dearly, he is the best thing in my life, but his birth caused the injury and it is difficult to square the two,”

“Every year I dread his birthday and the reminders of my traumatic experience. It is not fair on him or on me – his birthdays are not a happy occasion, but every year I have to pretend it is.”

“I am ashamed to say that at times I wished I had never become a mother and I grieved for the life I had before, I paid such a high price to have a baby.”

I know these feelings are controversial to express. But I feel they are important if we are ever going to get the NHS and policy makers to sit up and take notice of women whose bodies and lives have been deeply affected by childbirth injury and trauma. As long as women are expected to endure poor treatment while giving birth, these injuries will continue. Motherhood should not become an identity that disregards womanhood, and women should not feel afraid to speak out about the physical, emotional and psychological effects of birth injury."

Read the MASIC Foundation's full survey findings here.

Follow MASIC on Instagram: *@masicfoundation*
Facebook: @MASICFOUNDATION
Twitter: @masic_uk
If you're looking for support or to talk to someone about your experience, please call the MASIC 24h freephone Birth Injury Support Helpline 0808 1640 8333.

Jen will be coming back onto the thread on Tuesday (time tbc) to answer your questions.
Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"
OP posts:
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Xlalalaladdd · 22/07/2021 10:06

I felt very ashamed at being so traumatised by what was a (relatively) straightforward emergency section, with a baby on scbu straight after.
My MH was in tatters. It took a lot of therapy to figure out that my trauma mainly came from a total lack of communication from medical staff as to what was happening, and subsequently the most basic 'care' on the postnatal ward. I was woken at 3am, 15 hours after section and told to go and breastfeed my child, who I basically hadn't met yet. I was in excruciating pain, i got lost in the corridors because I didn't know where I was going, and I was given a plastic chair in the middle of SCBU to sit on and try and breastfeed for the first time. The pain was something else. I had no help from the nurse, even though it was my first baby and I'd had major surgery the day before. I looked at my child and was utterly terrified. I've never felt so alone in my whole life.

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MrsToothyBitch · 22/07/2021 10:20

@eacapade1982

As a scientist I find it baffling that the evidence base marginally favouring vaginal birth over C-section is based on short term
outcomes (e.g. maternal and child perinatal mortality) and not long term outcomes like PTSD, incontinence, prolapse and other long term adverse effects. Studies looking at this are few and generally with small samples. We need a big study on long term outcomes so mothers can make properly informed decisions.

This.

I don't even want to try to give birth naturally. The risks to me- the person who has to spend another 50-60 years in this bod outweigh anything else because I don't trust a medical system that treats my body as collateral damage.

And yes, I have also noticed the massive rise in incontinence knicker ads on tv. Good that it's not taboo but it seems to have coincided with the mesh scandal and a rise in women talking more about their negative experiences of birth control, birth injuries and trauma, pnd and experiences of being told whatever ails them is normal and to get on with it rather than be diagnosed, treated and properly managed. In the case of birth injuries and trauma being more visible, curious that such advertising increase coincides with more women demanding BETTER.
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MissChanandlerBong22 · 22/07/2021 10:36

I can accept that sometimes, birth injuries happen - although I believe many of them, including the ones I suffered, are preventable. I think having inexperienced midwives diagnose and repair tears is another problem (mine was misdiagnosed and badly stitched which led to major problems). But what I really can’t accept is the attitude afterwards. ‘It’s just what happens’. GPs in particular couldn’t give a shit, I found. They’ve only got 5 minutes and traumatised postnatal women are a strain on resources.

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GalaxyGirl24 · 22/07/2021 10:42

@FortunesFave I think your comment has slightly missed the point of the thread. It is amazing that c sections are available and that yours have been positive, however not everyone wants major surgery to birth their children as a first option! Also, women who have c sections can have just as many life changing injuries as women who birth vaginally.

The main thing is that there should be proper follow up support for women regardless of how they've given birth. It is a huge life change and it impacts your body even if you've had a straight forward birth.

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rbmilliner · 22/07/2021 11:07

After being left for 6 hrs begging for pain relief after a scheduled induction despite being dialated when it was administered (apparently because of my age - 42 - I was high risk despite a text book pregnancy) I was so desperate I took an epidural which I'd said all along I didn't want. This left me flat on my back with my legs in the air being told 'I wasn't doing it right'. When I said l couldn't in that position I was told tough I'd opted for an epidural and it was now a high risk pregnancy.
I this ended in a brutal forcep delivery, being sent home with an infection and not being able to walk 3 months later with a skin tag which had to be surgically removed.
I kept asking the midwives who visited is the pressure I felt after birth right but was basically fobbed off with shrugs and I ended having to visit my GP and being advised I were restitched and was stunned they didn't send me back with antibiotics.
I'm sure this did not help the bonding process with my daughter as I actually found it hard to be in the same room as her at first and didn't take any maternity leave in a bid to escape.
I'm ashamed to say that basically when they showed her to me I couldn't have cared less and I've never admitted this out loud I wouldn't have been bothered if I'd have left at the hospital without her at that point.
I was fully aware that birth wasn't going to be pretty but when I think about her birth 4 years on I cry, and if I hear new born crying I have to walk away which is probably why she's an only child. At no point did one person ask if I was ok pre, during and post pregnancy - I wasn't.
I feel incredibly sinical when I hear about amazing health professionals are as i and my child we're treated as a tick box exercise throughout the whole process that seemed to make it easier for them and much of what I went through could have been avoided if they'd have looked at us as individuals.
Thank you letting me speak about this

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Blueskyemily · 22/07/2021 11:31

I have had two elective sections and would advise my daughters to do the same. I know that there are risks attached with sections but just look at what happens to MOST women having babies naturally.

I'd rather take the risk of organised, calm surgery than the bloodbath that is natural birth.

I've always said that if men had babies, c sections would be the default.

It really irritates me when "women should just have c sections" is presented as the solution to this.

I think postnatal care is largely shockingly awful and a lot of improvements are needed, but I would not want to be forced to have a c section. If women choose to have a c section then that should absolutely be their right but it shouldn't be forced on everyone by default and held up as the "right" way to give birth.

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stairway · 22/07/2021 13:29

If every women has c section births just a new set of problems would emerge. We don’t have enough theatre space and surgeons for it atm. What we need is better care so women are less likely to suffer birth injuries and birth injuries that occur are better treated.

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MotherOfGremlins · 22/07/2021 14:20

My lesser experience - not to do with actual birth, and not affecting my continence, is that I have very servere diastasis recti that was never spotted because I didn't know anything about it, and the GP wouldn't give me a 6 week check up so they didn't spot it either.

7 years on now and I'm still a mess. Posting this because if I'm a mess with this non-event that could have been dealt with but wasn't, how much more are these other women suffering?

My heart goes out to all of you 💐

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1HappyTraveller · 22/07/2021 15:10

It’s a shame NCT classes aren’t more honest and open about the complications that can occur. Women ought to be informed about what can go wrong rather than being told solely about wonderful angelic deliveries. Because when the sh!t hits the fan many women, unfortunately, are unprepared for what happens next. Honest information and being able to mentally prepare for when things don’t go to plan is key.

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completelybanjaxed · 22/07/2021 15:16

@rbmilliner

After being left for 6 hrs begging for pain relief after a scheduled induction despite being dialated when it was administered (apparently because of my age - 42 - I was high risk despite a text book pregnancy) I was so desperate I took an epidural which I'd said all along I didn't want. This left me flat on my back with my legs in the air being told 'I wasn't doing it right'. When I said l couldn't in that position I was told tough I'd opted for an epidural and it was now a high risk pregnancy.
I this ended in a brutal forcep delivery, being sent home with an infection and not being able to walk 3 months later with a skin tag which had to be surgically removed.
I kept asking the midwives who visited is the pressure I felt after birth right but was basically fobbed off with shrugs and I ended having to visit my GP and being advised I were restitched and was stunned they didn't send me back with antibiotics.
I'm sure this did not help the bonding process with my daughter as I actually found it hard to be in the same room as her at first and didn't take any maternity leave in a bid to escape.
I'm ashamed to say that basically when they showed her to me I couldn't have cared less and I've never admitted this out loud I wouldn't have been bothered if I'd have left at the hospital without her at that point.
I was fully aware that birth wasn't going to be pretty but when I think about her birth 4 years on I cry, and if I hear new born crying I have to walk away which is probably why she's an only child. At no point did one person ask if I was ok pre, during and post pregnancy - I wasn't.
I feel incredibly sinical when I hear about amazing health professionals are as i and my child we're treated as a tick box exercise throughout the whole process that seemed to make it easier for them and much of what I went through could have been avoided if they'd have looked at us as individuals.
Thank you letting me speak about this

I'm so sorry.

I had a very similar experience to you. Every time I drove past the hospital afterwards I couldn't look at it, I just wanted to take a flamethrower to it to make sure women couldn't be 'treated' (ie made to suffer) there again.
The most cold cruel and incompetent medical staff I've ever come across, both male and female - horrible and callous with me and other patients. Tried to discharge me the morning after my (night) birth despite being in mess and in pain. Being shouted at to stop screaming from the pain after hours and hours in an induced (undiagnosed) back to back labour without pain relief where I had been forced to remain on my back for most of it. Cried to the midwife for some pain relief, that I couldn't take it, and she angrily told me "I could and I would". Terrifying. They delayed my request for an epidural, then buggered it up, so it was useless. After I gave birth, Husband having to forage on a public holiday in the city for a takeaway as the hospital kitchen was shut (yet I was still expected to produce milk after not having eaten in 24 hours with not so much as a cup of tea and a biscuit offered). I still carry the memories and it makes me angry and upset all over again if I think it about even after all these years.

When I was pregnant again in a different place I broke down to my doctor and told him my experience. He listened with compassion, was horrified, and promised that it would be ok this time, and he was true to his word. I didn't suffer unecessarily and felt totally cared for and supported and was actually able to feel joy when my child was born instead of just relief that the pain had stopped and I wasn't dead. They were wonderful. I realized that I hadn't needed to suffer the way I did in my first birth. I wish I had spoken up at the time about my treatment but I was made to feel like I was being precious. I told a family member and they said 'the baby is ok and that's all that matters'. I said 'it's not all that matters'.

The me too movement has made women think about experiences they have had in the past they were expected to endure at the time because it was 'just the way it was' . The 'care' I experienced in labour I recognize now as being almost institutionalized abuse of vulnerable powerless women.

Thank you for starting this thread, it was good to get that out.
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deepwatersolo · 22/07/2021 16:20

I attended an Information evening of the private hospital I had chosen. The head of the hospital, a gyneologist, held it. First thing she asked everyone: „do you think the birth experience is something one can plan?“ I replied: „I guess, if it is a scheduled C-section, you can, pretty much.“ She chided me for making light of a very serious operation with severe risks like bladder rupture and even death. I responded that Natural birth also held severe risks, like severe tears resulting e.g. in bowel incontinence and Cited statistics (i had read several studies on the issue, I was admittedly a bit obsessed with the topic). She then told me that I should not scare (!) the other women. She got really angry.(Her C-section scare was apparently fine) I replied that People should know the risks, as they will have to live with all Potential consequences, and that is why it should actually the woman‘s choice. (It is not in my country). She then told me in a snide voice that she wished me a lot of surprises with my pregnancy. It sounded like a curse. She realized it, too, the room went totally silent. She added hastily ‚only good ones‘. But her tone had been clear.
Long story short my kid turned breech and I got a scheduled C-section.
But to this day it haunts me, how this doctor tried to minimize and obfuscate the risks of Natural birth in an attempt to ‚protect‘ the expectant women.

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Cameron2012 · 22/07/2021 16:29

First child over 30 years ago.
I was in labour for 36 hours, she was dragged out of me with forceps after I became too exhausted to even push.
I was so badly stitched I had to sit on a rubber rings for weeks afterwards.
But the overwhelming feeling is of shame after the look of utter disgust the nurse gave me when I bled on the floor, her throwing me a wipe and telling me to clear it up.

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WhoKnew19 · 22/07/2021 16:33

The structural lack of care for women during labour and post partum is an absolute disgrace, and I feel furious about it for women still going through it. I know it is a cliché but honestly if men had to put up with this sh!t it would be a totally different story. From my post natal group after my first, we were all traumatised in one way or another and were lucky to find each other as I think we got through it with a shared black sense of humour. How on earth women have coped without that support during the pandemic I don't know.

I had an episiotomy, severe tearing and untreated anaemia due to serious blood loss (they 'forgot' to give me a transfusion) and I couldn't make it up the stairs without needing a rest. I was in pain for a long time afterwards and had flashbacks of the very long, stressful birth. One of my other friends actually broke a bone in her back due to being tiny and having to give birth to her very large husband's baby. Another friend wasn't believed when she gave a family history of immediate labour which led to her giving birth naked on a trolley in busy corridor and suffering severe tearing and no pain relief. There are so many stories I have heard from women over the years that we could be here for days.

There is also a sort of conspiracy of silence about it. I wouldn't ever want to share my birth story with a young woman who either wanted to be or was pregnant for fear of scaring her. But maybe we should all be more open and honest so that women can weigh up the risks themselves?

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MissChanandlerBong22 · 22/07/2021 16:43

My lesser experience - not to do with actual birth, and not affecting my continence, is that I have very servere diastasis recti that was never spotted because I didn't know anything about it, and the GP wouldn't give me a 6 week check up so they didn't spot it either.

I totally get why you’ve phrased it like that and I don’t mean to berate you, but I don’t think you should refer to it as a ‘lesser’ experience because I actually think that’s one of the ways women get gaslighted into accepting unacceptable care. ‘It could have been worse!’ ‘I was lucky really, compared to others!’

And I’ve heard about this a lot - GPs doing the six week check on the baby then ushering women out of their offices without doing any kind of check on their health at all. It’s totally unacceptable and all part of the same picture of poor postnatal care.

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DaisyKate265 · 22/07/2021 16:50

@1HappyTraveller

It’s a shame NCT classes aren’t more honest and open about the complications that can occur. Women ought to be informed about what can go wrong rather than being told solely about wonderful angelic deliveries. Because when the sh!t hits the fan many women, unfortunately, are unprepared for what happens next. Honest information and being able to mentally prepare for when things don’t go to plan is key.

^ DITTO TO THIS. AMEN
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Noapplejustcrumble · 22/07/2021 16:53

It was like this 20 years ago when I had my DS. Nothing has changed. I was traumatised for many years and suffered PND. But I never complained about the terrible treatment that I had, as I had been so indoctrinated into being grateful that as I had a healthy baby nothing else matters.

And I had to walk to the next room for my breakfast, wheeling my baby's cot with one hand and balancing a cereal bowl in my other hand. The cereal was stored loose, in an old dirty quality street tin, I'll never forget that.

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Devondonkey · 22/07/2021 17:34

My brother’s an anaesthetist and he says he always has to keep an eye on epidurals after he’s put them in as the midwives will reduce the dose (they’re not qualified to touch the bloody things). He says they should be sacked.

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Pumpkintopf · 22/07/2021 17:40

So many shocking stories here. I agree the lack of foreknowledge and lack of support afterwards is shocking. Would definitely support a campaign for systemic change.

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flyingbuttress43 · 22/07/2021 18:15

They say that you are supposed to forget the pain etc. afterwards.
I can tell you that 51 years on from my first birth it is still as clear as if it were yesterday. Back to back, 3 day labour, Keillands forceps, no epidurals of course, horrendous tears so that I could not sit without pain for months later - you get the picture.

What utterly horrifies me is that clearly we don't seem to have moved far since then......

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Harpydragon · 22/07/2021 18:32

I had a 9lb 5oz baby by emergency c section after a 24 hour back to back labour. He was stuck in an awkward position and there was no way in hell he was coming out. It was close to midnight, they sent my husband away immediately after the birth, my son stopped breathing twice and I was so exhausted I could barely call for help. The catheter was extremely painful when it came out and I was given no assistance in sitting up or getting out of bed after the c section. I was sent home after 36 hours with a weeping infected tracking wound. I ended up with a district nurse visiting me daily for 6 weeks to dress this wound all whilst expecting to pick up and deal with a big baby. I couldn't produce any milk and ended up suffering with pnd.

17 years down the line, that baby is now a strapping 6ft young man.

I now have slight incontinence problems, I think in part because of how the catheter was removed, I now just can't always tell when I leak. I have ended up with the ubiquitous c section pouch but luckily an other wise fit and healthy.

I do think that getting a healthy baby out is not the only thing to care about. Dr & midwife just need to remember that the women are important too and should not be expected to put up with bad care and I'll health just because that's what happens when you have a baby.

I'd love to know why it's perfectly acceptable for a woman to have major abdominal surgery and be expected to carry on as though she hasn't, where for any other operation you are not allowed to pick up anything heavier than a cup of tea for months afterwards!

There is no wonder many women go on to suffer with their mental health when they are treated as a piece of meat.

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deepwatersolo · 22/07/2021 18:53

As I wrote above, I also think women should know about all the potential consequences. However, this is not done and it is deliberate. That doctor with whom I clashed basically told me and the other women present that if you think about potential issues beforehand, like me, your birth will be harder, while those who go in unburdened will usually not have problems.

And the whole undertone was that your overriding objective should be a natural birth, if there are problems, there are always forceps, and only when there‘s really the baby‘s life in danger, then you go for the emergency C-section (which is more risky than a scheduled one, just saying). It was very much conveyed that a c-section is what unfortunately happens if you don‘t succeed…

I later on read that hospitals are keen to avoid high c-sections because this implies they are not good at their ‚art‘. Also, women are encouraged to give birth naturally, as this keeps the medical profession well trained. There is fear that knowledge will get lost (also for future generations), if all complicated births are avoided.

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WhoKnew19 · 22/07/2021 19:17

Has anyone read this very timely article on the BBC about failings in maternity care? Those poor families!
BBC News - Nottingham maternity scandal: 'The pain never goes away'
www.bbc.co.uk/news/uk-england-nottinghamshire-57864446

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MoonlightApple · 22/07/2021 19:20

I am still traumatised nearly 2yrs after the birth of DS because at no point during my labour did I ever feel the urge to push. The midwife came in and told me why wasn’t I pushing, the baby was going to run out of oxygen. Why couldn’t she have helped me earlier and explained what to do. She has a damn sight more birth experience than I do!

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1HappyTraveller · 22/07/2021 19:37

The policy by which epidural doses are administered varies between trusts. In some places they are nurse/midwifery controlled so what you’ve heard is not entirely correct/may have been misinterpreted.

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1HappyTraveller · 22/07/2021 19:41

@Devondonkey

“ My brother’s an anaesthetist and he says he always has to keep an eye on epidurals after he’s put them in as the midwives will reduce the dose (they’re not qualified to touch the bloody things). He says they should be sacked.”

The policy by which epidural doses are administered varies between trusts. In some places they are nurse/midwifery controlled so what you’ve heard is not entirely correct/may have been misinterpreted

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