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Guest post: Jess writes about her experience of tokophobia and how online birth stories made her feel

29 replies

MumsnetGuestPosts · 13/09/2018 17:05

“I won’t survive if I have this baby”

This statement sounds scary but it's one I was truly convinced of while pregnant with my first daughter in 2012. When I initially fell pregnant we were excited; it wasn’t until 16-20 weeks when we started discussing birthing options at appointments that the overwhelming fear begin to take over.

At that point, when voiced, my concerns were brushed off by others with statements like “It's natural to be a bit anxious” or “You’re a first-time mum so I understand the fear” but I knew that this didn't feel like normal nerves. It was an all-consuming monster of anxiety that took over all my thoughts, was the thief of my sleep and of enjoyment at the idea of bringing a new life into the world. In fact, the only thing it didn’t steal was my appetite (but really, you try taking a biscuit away from a pregnant woman).

I spent appointment after appointment trying to explain myself but every brush-off made speaking up harder to do and it eventually silenced me, as I felt like I wasn't being listened to. My fear was solely around the birth; I was adamant that I wouldn't be able to safely have this baby via a vaginal birth. I can’t quite pinpoint how I came to believe this so deeply but I think there were a number of contributing factors. No female in my family (mother, aunt, cousin or grandmother) had birthed a baby naturally and if they had attempted to with their first child, they ended up in emergency sections. In addition, when I elected to follow popular advice to google birth stories and videos, this quite frankly was no help at all. I was met with countless negative experiences of birth which only exacerbated my feelings.

As I got closer to the birth, at the 30-week mark, I became sure that the only way this baby would be delivered safely was in a planned section. I know many would see this as absolutely mad given that it is major surgery and birthing your baby is - we are often told - “one of the most natural things in the world”. However, when your fear is so consuming and you are so sure that dying will be the outcome if forced to labour and deliver, a planned section with doctors and nurses in a controlled environment feels like the safest (and at that point, only) option.

As I had requested an elective section but had no medical reason for this, at 34 weeks I was booked to meet with the head of the midwifery-led unit. At the appointment, I was made to look at and listen to her read out every single risk of a caesarean section. I walked out of the hospital into the car park and was suddenly unable to breathe. Faced with the information overload, I felt like there was no way myself or my baby would survive the birth - whether that be naturally or even via an elective section.

My husband took me back into the hospital and they called a midwife who took me into a side room to help calm me down. It was only after this (and following a 3-page letter of complaint to the hospital) that I was booked to meet with a specialist consultant who finally diagnosed me with tokophobia. I was granted an elective section on the basis that it was the safest option for me and my baby due to my mental health.

Five years later, I fell pregnant again. This time, I didn’t want to have an elective section. I had spent the last few years battling my anxiety demons in other aspects of my life, so I also wanted to tackle them here. I decided to try looking for birth stories and experiences again - and found for every few negative ones posted online, there was a positive one too (I just had to amend my google search to be more specific). I went on a hypnobirthing course with Siobhan at the Positive Birth Company and I took to social media, forums and sites like Mumsnet to reach out to others who felt the same - to ask for positive stories and to seek out the beauty in birth; something I never thought I could find.

I appreciate that many need to share their negative experiences for their own sanity. Birth trauma is real and more often than not, it is difficult to know where to go for support, meaning that many go online. Although reading these stories didn't exactly 'help' me the first time (when I was seeking urgent reassurance about the birthing experience), I did get to see the support that was out there. Even with some of the more 'scary' stories, there were often women posting words of encouragement, or even saying they had been there too. They were not alone.

It is no surprise that it is often the negative birth stories that command attention - but perhaps this is due to our nature as humans. We are very often quicker to express our disapproval, bad experience or disappointment at something than we are to give praise or speak positively. Despite this, I think there is reassurance in knowing that even in the eventuality of complications or things not going as planned (it never goes as planned) these women have lived to tell the tale, and are now mothering their beautiful babies, the best they can.

OP posts:
NellMangel · 15/09/2018 11:29

Agree with most of the comments here.

Giving birth will always have "negative" aspects- pain, it's undignified, the process is unpredictable, etc. It's a reality and therefore part of the conversation about birth experiences.

All any pregnant woman can do is seek out the help that she thinks will help her through it be that hypnobirthing or medication. I'm glad the OP found something that helped for her second pregnancy.

OhTheRoses · 16/09/2018 11:33

Much of the problem lies with poor midwifery practice both clinically and empathically. It is hardly surprising more women are fearful. The real oroblem neefs to be addressed rather than issue a ticking off to the naughty women who say it as it is.

On a different note anaesthesia was introduced principally as a result of amputations sustained in battle. By men for men in response to safety and endurance issues.

How interesting that the same safety and endurance issues are not applied to women. What does that say about equality.

My first baby was posterior. He nearly died. What do I remember most? Not the birth but the midwife laughing, discounting my discomfort and shouting at me. Actually I am very strong and got that baby out with just a tear and had two eady births subsequently.

However, 25 years on the damage is becoming, is evident. I have a colonoscopy booked soon and likely will need surgical repair.

I am not sure ELCS aren't the best and safest options nowadays. I am sure they would be the norm nowadays if men gave birth but some of the long term impacts remain taboos.

Never again would I allow nurses to be in charge of my care - far better that more highly trained and significantly more intellectual doctors and surgeons should be. If would be the case I am sure if men had babies.

Ellegeebee · 19/09/2018 08:25

For anyone who is interested here is a link to an article from The Gaurdian today which goes in to much more detail about what the midwifery researcher actually said:
www.theguardian.com/lifeandstyle/2018/sep/19/yes-hes-alive-but-im-not-ok-the-bloody-truth-about-childbirth

WeShouldBeFriends · 31/01/2019 23:09

A three page letter of complaint for informing you of the risks of the major surgery you were asking for? What if the NHS had funded this for you and you or your baby came to harm as a direct result? One can only assume you were unaware of the risks of elcs, indeed it seems you were given the fact you came away from it realising it wasn't the safe option you were hoping for.

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