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Guest posts

Guest post: “We must support women’s decisions in birth and make respectful care a reality for all”

105 replies

MumsnetGuestPosts · 21/08/2018 10:00

Women’s rights in childbirth have occupied a dusty corner of the feminist movement for too long. As CEO of the human rights in childbirth charity, Birthrights, I’m working with a small team of staff and an expert board of midwives, obstetricians, lawyers and maternity service users to change that.

We believe that all women matter in childbirth and that we need to be treated as the same, reasonably rational human adults we were before pregnancy at this transformational time in our lives. We’re using the human rights framework (with its focus on dignity, respect, choice and autonomy) to push for a system, services and practice that protects women during birth, offers them safe, equal and compassionate care and listens to their feedback. To do that we provide advice, training for NHS staff, conduct research and feed the resulting knowledge in to maternity policy - always with a focus on vulnerable groups.

Women contact us for free advice on a range of issues. From accessing their chosen place of birth and help with making a complaint about care to dealing with issues around informed consent or entitlement to maternity care in the UK.

Over the past two years a worrying third of our advice service enquiries have come from women trying to access a maternal request caesarean and finding themselves battling, jumping through endless hoops and waiting for months for answers. Some women whose reasons are not deemed compelling enough have even had their care withdrawn completely in the last weeks of their pregnancy. These enquiries have been some of the most distressing we have handled and we’re determined to do something about it.

Whether they are choosing a caesarean, a homebirth or any other birth option women have very compelling, thoughtful and sometimes private reasons for making their decision. From the 83 women hoping to have elective caesareans we advised in an 18 month period 33% had experienced a previously traumatic birth. 28% wanted a caesarean birth because of an underlying medical condition such as symphysis pubis dysfunction (SPD), vaginismus or fibroids. 16% of women simply believed it was the right option for them (often after extensive research into the evidence), 8% cited primary tokophobia as their motivation while 6% explained their request was based on other trauma in their lives such as sexual assault (6%). 10% did not give their reason for making this request. Nor should they have to given our growing realisation that many more women have experienced trauma and violation in their pasts than we’ve previously assumed.

Through a series of Freedom of Information request we have created this map of Trusts showing the 26% who offer a respectful pathway for women to request a caesarean (in line with best practice guidance) Trusts whose policy effectively bans maternal request caesareans (15%) and the many in the messy middle ground that women are expected to muddle through. We’re now working closely with national policy makers, the Royal College of Obstetricians and Gynaecologist and the Royal College of Midwives to push for clear national recommendations on this issue and to encourage Trusts to abide by them. And we are considering legal action if Trusts’ policies are shown to be unlawful.

Women make decisions on what kind of birth is right for them based on a range of medical, social, cultural and experiential factors. For me a safe birth meant being at home, for others it requires access to an epidural or the presence of a trusted midwife. And for a small percentage of women electing a caesarean is an important decision in a positive journey to motherhood. We must come together to support women’s decisions and insist on a system that makes safe, respectful care a reality for all.

If you need information on anything concerning your rights in pregnancy and birth head to our website and this series of Mumsnetters FAQs, such as “Can I be refused admission to a midwife-led unit” and “Do I have the right to access my maternity notes?”

I’ve used this radical idea that pregnant women are human beings as the basis for my new book, Your No Guilt Pregnancy Plan: a revolutionary guide to pregnancy, birth and the weeks that follow. I’ve focused less on the ‘you shoulds’ and ‘you shouldn’ts’ and more on the concerns that came up for me when I was first pregnant a decade ago and asked for support on a Mumsnet due date thread. So there aren’t endless comparisons of your baby to the size of a vegetable but I do cover the huge shifts happening in our relationships, bodies, work, sex and emotional lives as we become mothers. And of course a firm focus on rights and mental health.

birthrights.org.uk
rebeccaschiller.co.uk

OP posts:
BlairWaldorfsHeadband · 22/08/2018 21:22

I have a medical phobia. It's taken a long time to get it to a manageable level but a lot of it stems from lack of control and feeling forced into doing things/having procedures that I just don't want

I have the same phobia, interestingly. I need to be in control and to be able to consent. I wanted to avoid a situation like suddenly bleeding out or the baby getting stuck and having an alarm sound, loads of staff rush in and to have no say over what happened to me.

WeShouldBeFriends · 22/08/2018 21:31

Also agree that £80 is ludicrously inaccurate, even considering long term problems as they will only affect a minority of women who birth vaginally.
And Blair I didn't mean those factors. I'm talking about things that alter how we view birth and make one woman (you) want a elcs over a straightforward vaginal birth and another one (me) want to do everything in my power to avoid a section. Ie, the experiences of our grandmothers, mothers, aunts, sisters/the circle of friends we have/episodes in our past (birth video at school, scary story of friend's sister's hairdresser tearing to her arsehole, birth scene in a movie, lovely homebirth of a sibling etc) /whether we've travelled to other parts of the world and experienced birth in different cultures. These things shape us more than anything else I think.

WeShouldBeFriends · 22/08/2018 21:40

And on seeing the last few posts I think one of the multitude of factors for me was working in an obstetric theatre and seeing women, on more than one occasion, bleeding catastrophically requiring total hysterectomy and having to run the length of the hospital for units of blood. I know haemorrhage occurs also with vb but I think those of you saying you prefer it all being more controlled are possibly a bit naive about the reality of major abdominal surgery.

BlairWaldorfsHeadband · 22/08/2018 21:44

We that’s an interesting point. My mother almost died when I was 10 days old due to a retained placenta that no one had noticed, suddenly bleeding. She had a PPH that stared at home and had to be rushed back by ambulance, and her third degree tear got reopened, and she had to be restitched.

She never did have other children.

I was desperate to avoid that type of thing myself!

WeShouldBeFriends · 22/08/2018 21:47

Blair, well quite, that's a horrible first experience of birth Sad

BlairWaldorfsHeadband · 22/08/2018 21:48

I know haemorrhage occurs also with vb but I think those of you saying you prefer it all being more controlled are possibly a bit naive about the reality of major abdominal surgery.

Most women who have a cesarean don’t bleed to death though.

And personally, I’m fine with the risk of a hysterectomy. After I’ve had these twins, I don’t want any more kids. I have awful period pain. If they need to remove it to save my life at some point, that’s fine by me!

I’m not underestimating the effects of it btw, my mother had one at 36, due to the damage done by her VB. She’s always been positive about it!

BlairWaldorfsHeadband · 22/08/2018 21:49

Blair, well quite, that's a horrible first experience of birth

Yeah it is quite unpleasant! My great Nan also died giving birth, and my mums sister had a son with shoulder dystocia, and my nana had two babies with cords around their necks and retained placenta.

Needless to say I wasn’t thrilled at the prospect of giving birth!

Laney79 · 22/08/2018 21:58

@WeShouldBeFriends the £84 figure isn't inaccurate-it is from the NICE costings for the cg132 guidance.

Laney79 · 22/08/2018 22:05

@WeShouldBeFriends also on pph-the guidance states that you have less chance of a early pph in planned CS (1.1%) versus planned vaginal birth (6.0%)

Guest post: “We must support women’s decisions in birth and make respectful care a reality for all”
DuggeeHugs · 22/08/2018 22:11

This should link to the NICE guidance with the £84 cost differential (for anyone interested in that or any of the other factors): caesareanbirth.files.wordpress.com/2017/01/2011-cg132-nice-caesarean-section-update-full-version-guideline.pdf

WeShouldBeFriends · 22/08/2018 22:31

Wow Duggee, that's comprehensive! Am too tired to take it all in tonight though, will look tomorrow. Fwiw, my birth cost £0.00.

DuggeeHugs · 22/08/2018 22:57

I have no idea what my deliveries cost. I'm sure the 6 days of failed induction where I was an inpatient on a busy ward wasn't cheap. In the same way, I'm sure most patients don't know what their emergency or elective procedures cost in any other area of medicine.

It is a very sad state of affairs that women are expected to argue the toss about the cost of childbirth, as though it determines the rightness of their choice.

BlairWaldorfsHeadband · 22/08/2018 23:03

Mine was expensive but because my son was in intensive care. My actual cesarean was easy!

Neonrainbow · 23/08/2018 08:10

I think it's very easy and simplistic and very ignorant actually for women who have had a straightforward vaginal birth possibly at home to come on to a thread about women whose right to request a Caesarean for any reason has been denied to them and which has therefore lead to injuries and trauma, and say that vaginal birth should be the default. I find it quite offensive actually.

I requested a Cesarean with my twins as one was breech however the consultants refused to discuss it. After listening to see me set out my reasons why I wanted a cesarean including details id found out about the risk of Induction and instruments and also the risk of a Caesarean after the first twin had been delivered, they still wrote on my notes "attempt vaginal birth." I felt so powerless in that moment.

Lots of people I know felt that they were entitled to comment on me pushing for a Cesarean as though that would be cheating. What I wanted to say to them was come back to me after you've given birth to twins with a complicated pregnancy and then let me know how you got on. In the end I went into labour early and the doctors didn't give me a full summary of the risks of each type of birth. They just told me that a vaginal birth was better for the babies and at that moment I wanted to do anything that I thought would help them so I consented to try the vaginal birth. It ended with both of my twins minutes from death and a crash cs. The fact is that if anyone had listened to me about a Caesarean in the first place and given me the full facts so i could have given informed consent then I wouldn't still be suffering from the psychological birth trauma 2 years down the line. If you haven't been through it yourself then you cannot possibly comprehend how something like this can affect your life. This was all entirely preventable if the doctors had listened to me from the start.

GoldenWonderwall · 23/08/2018 09:56

I’ve had a emcs and and elcs. I’m very glad I had pph in theatre and not on the labour ward as I was surrounded by professionals and equipment to stop the bleeding as quickly as possible.

To get an elcs even though I had already had an emcs due to complete failure to progress, breech babies and spd, I had to have a different medical professional write a letter to prove I had mental health issues arising from the emcs and previous trauma. When the consultant realised it would be barbaric to expect me to go through vbac, she was very nice. She explained the risk of death presented to elcs mothers was the risk of death from being pregnant and giving birth, not the risk of death from elcs.

I still had midwives asking me my reasons for elcs throughout (luckily baby was breech so had an easy answer) and telling me I could change my mind, up to and including when they were wheeling me to theatre.

My trust is green in the map. Yes you have a right to ask for an elcs but they have every right to say no. Women and babies die in the midwife led areas in my trust due to the seriously poor care offered. When I’ve been in those bits myself they deny you access to drs and medication whilst having the face on with you for not being a super mum who’s up mopping the wards for them two hours after giving birth. Having a planned section meant I was in contact with other medical professionals who treated me like a human being with compassion and respect throughout and this was infinitely less traumatic.

There’s plenty people do that costs the nhs unnecessary amounts of money. Singling out women having elcs stinks of misogyny to me.

Miyah · 23/08/2018 11:23

I also agree with pps that we can’t just put all ‘maternal request’ c-sections into one category. It even differs between hospitals what is classed as a ‘non-medical’ c-section- eg. Some hospitals will class a previous CS as a medical reason to choose whilst other hospitals would now class wanting one on those grounds as ‘maternal request’. And that is the case with other situations and medical conditions as well. When you consider this I think it’s more important than ever that the woman in question has full choice and a say based on risks and evidence.

RidingMyBike · 26/08/2018 07:43

I do agree that we should be looking into the reasons why injuries (everything from tears onwards) are suffered and trying to mitigate those rather than just offering an ELCS as an alternative, but I do think the ELCS should be available without jumping through lots of hoops.

Trouble is, the reason for quite a few of the 'problems' encountered is beyond the parent's control: giving birth for the first time as an older woman means a higher risk of tearing, but I didn't have much choice about that because of the age I was when I met DH and then the time it took to get pregnant. Similarly the large baby and the shoulder dystocia were because of gestational diabetes - which arrived out of the blue. I had no risk factors, have never been overweight in my life and have always eaten healthily. Once I knew I had GD I did my utmost to control it, but it did mean an induction was recommended and with that goes higher risks of all sorts of things (I wish now I had been offered an ELCS as an alternative). Again, epidural means a higher risk of injuries because of the position you end up labouring in, but it was such agony before the (second!) epidural worked as I was on a syntocinon drip for the contractions I very much doubt I would have coped without the epidural. I already ended up with PND (which was as a result of BFing problems) anyway, but hours in agony would have made that much worse.

stickystick · 26/08/2018 21:49

Thank you Birthright for this great work!!

My son was born via an ELCS. It was great. No drama, uncertainty, worry, dread, all over in an hour, zero pain for me, zero stress for the baby, zero complications for either of us. I was up and mobile within 48 hours. Scar healed super fast and I wasn't held back from doing anything except perhaps coughing - which was a bit risky for a few weeks but then so it is if you have a prolapse or other damage downstairs.

In my view, why WOULDN'T you have that kind of birth if you could?

But more importantly, why on earth shouldn't HCPs support people who want that? But sadly in the UK they don't.

I was in part very lucky the hospital had agreed to an ELCS but also it was down to my doing a lot of leg work and researching hospitals that would at least consider it. My nearest one was a modern teaching hospital but it had a policy of "no maternal request ELCS" full stop, so I didn't even bother going there. It would have been great to have this map back then!

As it turned out, by the way, the ELCS was brought forward by a week, because my son had IUGR and his risk of stillbirth had suddenly shot up. But I was as unstressed as anyone could be in the situation, because I was fully prepared and I knew an ELCS was a whole lot better than a hideous induction that the baby might not have survived and/or an EMCS.

WeShouldBeFriends · 27/08/2018 07:41

In my view, why WOULDN'T you have that kind of birth if you could?
Because it's statistically less safe for your baby. In my view why WOULD you chose that? (If you didn't need to)

DuggeeHugs · 27/08/2018 08:16

I guess it depends which less safe figures you're looking at. In respiratory terms the risks are higher, in stillbirth terms the risks are halved when compared with a VBAC.

It comes down to which risks are more acceptable to the mother (and which risks she's actually told about, since many women are left to research this for themselves).

Treacletoots · 27/08/2018 08:53

Finally. Someone is taking action.

I asked for an elective c section and o my got it after I was diagnosed with pre eclampsia, a breech baby and cholestasis.

It should be available for all women if they request it. End of.

BlairWaldorfsHeadband · 27/08/2018 09:14

Because it's statistically less safe for your baby.

Statistically ELCS is safer for the baby.

WeShouldBeFriends · 27/08/2018 09:38

Also, having looked again at the map key and the birthrights website I'm not sure why someone whose degree is in War Studies thinks her thoughts on this should take precedence over Consultant Obstetricians. A trust will not score green unless they agree to sections on request before 40 weeks, wtf?!

Dinosauratemydaffodils · 27/08/2018 09:41

I would have loved a quick easy non traumatic vaginal birth. Unfortunately I have a less than stellar pelvis and dh's family all have giant heads. I asked about an elective with dc1, was turned down out right and ended up with a massively traumatic emergency section and a baby in NICU after he got stuck at full dilation.

With dc2, my decision was obvious but I was still made to justify myself multiple times and when I went into labour ahead of my elective date, was pushed quite hard to reconsider my decision to go straight to theatre. When dd came out with another giant head, massive shoulders and the cord wrapped around her like she was dressed up as a mummy for halloween they told me I'd made the right choice.

Following that at least 24 hours on a postnatal ward with prescribed medication before/during/after and more home visits

With my 2nd, dh stayed. I barely saw a midwife and didn't need any medication. I was on the postnatal ward for exactly 24 hours. The midwife came out to the house 3 times which seems to be standard here regardless of method of birth.

As for cost, my first experience has cost the NHS considerably more than an elective would have due to it's repercussions to my mental health for which I'm still in treatment for 3 and a half years later.

Present the risks/benefits of both methods and let women decide. I suspect that would save money and probably quite a lot of trauma in the long term.

BlairWaldorfsHeadband · 27/08/2018 09:42

A trust will not score green unless they agree to sections on request before 40 weeks, wtf?!

It’s fairly standard for a cesarean to be performed at 38-39 (37 if some medical necessity) weeks to avoid the woman going into labour beforehand.