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Guest post: “We must support women’s decisions in birth and make respectful care a reality for all”

105 replies

MumsnetGuestPosts · 21/08/2018 10:00

Women’s rights in childbirth have occupied a dusty corner of the feminist movement for too long. As CEO of the human rights in childbirth charity, Birthrights, I’m working with a small team of staff and an expert board of midwives, obstetricians, lawyers and maternity service users to change that.

We believe that all women matter in childbirth and that we need to be treated as the same, reasonably rational human adults we were before pregnancy at this transformational time in our lives. We’re using the human rights framework (with its focus on dignity, respect, choice and autonomy) to push for a system, services and practice that protects women during birth, offers them safe, equal and compassionate care and listens to their feedback. To do that we provide advice, training for NHS staff, conduct research and feed the resulting knowledge in to maternity policy - always with a focus on vulnerable groups.

Women contact us for free advice on a range of issues. From accessing their chosen place of birth and help with making a complaint about care to dealing with issues around informed consent or entitlement to maternity care in the UK.

Over the past two years a worrying third of our advice service enquiries have come from women trying to access a maternal request caesarean and finding themselves battling, jumping through endless hoops and waiting for months for answers. Some women whose reasons are not deemed compelling enough have even had their care withdrawn completely in the last weeks of their pregnancy. These enquiries have been some of the most distressing we have handled and we’re determined to do something about it.

Whether they are choosing a caesarean, a homebirth or any other birth option women have very compelling, thoughtful and sometimes private reasons for making their decision. From the 83 women hoping to have elective caesareans we advised in an 18 month period 33% had experienced a previously traumatic birth. 28% wanted a caesarean birth because of an underlying medical condition such as symphysis pubis dysfunction (SPD), vaginismus or fibroids. 16% of women simply believed it was the right option for them (often after extensive research into the evidence), 8% cited primary tokophobia as their motivation while 6% explained their request was based on other trauma in their lives such as sexual assault (6%). 10% did not give their reason for making this request. Nor should they have to given our growing realisation that many more women have experienced trauma and violation in their pasts than we’ve previously assumed.

Through a series of Freedom of Information request we have created this map of Trusts showing the 26% who offer a respectful pathway for women to request a caesarean (in line with best practice guidance) Trusts whose policy effectively bans maternal request caesareans (15%) and the many in the messy middle ground that women are expected to muddle through. We’re now working closely with national policy makers, the Royal College of Obstetricians and Gynaecologist and the Royal College of Midwives to push for clear national recommendations on this issue and to encourage Trusts to abide by them. And we are considering legal action if Trusts’ policies are shown to be unlawful.

Women make decisions on what kind of birth is right for them based on a range of medical, social, cultural and experiential factors. For me a safe birth meant being at home, for others it requires access to an epidural or the presence of a trusted midwife. And for a small percentage of women electing a caesarean is an important decision in a positive journey to motherhood. We must come together to support women’s decisions and insist on a system that makes safe, respectful care a reality for all.

If you need information on anything concerning your rights in pregnancy and birth head to our website and this series of Mumsnetters FAQs, such as “Can I be refused admission to a midwife-led unit” and “Do I have the right to access my maternity notes?”

I’ve used this radical idea that pregnant women are human beings as the basis for my new book, Your No Guilt Pregnancy Plan: a revolutionary guide to pregnancy, birth and the weeks that follow. I’ve focused less on the ‘you shoulds’ and ‘you shouldn’ts’ and more on the concerns that came up for me when I was first pregnant a decade ago and asked for support on a Mumsnet due date thread. So there aren’t endless comparisons of your baby to the size of a vegetable but I do cover the huge shifts happening in our relationships, bodies, work, sex and emotional lives as we become mothers. And of course a firm focus on rights and mental health.

birthrights.org.uk
rebeccaschiller.co.uk

OP posts:
WeShouldBeFriends · 22/08/2018 20:18

To be honest even if someone had got a crystal ball and said “Blair you’re going to have a normal vaginal birth. You and the baby will be okay, it will be a normal non instrumental birth with a 1st degree tear and over in eight hours” I would still have chosen a cesarean.
I'm genuinely glad you have the choice but I honestly would wonder what had lead you to decide that. I think we all agree that information and free will are vital but I don't think our views on this will align, which is understandable as there are a million different factors in life that shape our opinions.

opalescent · 22/08/2018 20:20

Completely agree with Weshouldbefriends.

I desperately don't want to appear insensitive, and am more than happy to be educated otherwise BUT...vaginal childbirth is the biologically normal way for babies to be born, and I struggle to get on board with tho idea that c-section should be available to any woman who requests it.

It is truly wonderful that we live in an age when medical advances can address many birth complications and traumas. I totally appreciate the importance of c-sections being available for those with a medical need (urgent or otherwise, and including diagnosed mental health needs).

But for anyone who requests it?

I don't see it: it's an operation, requiring a medical team and a theatre. Recovery care. Risk of infection. Consultants can be wrong, and their approach can leave a lot to be desired, but I can totally understand why they find it tough to accept that their professional advice and judgement can be overrriden by any pregnant woman they see.

I had two vaginal births. They fucking hurt, and were scary and stressful. But I never felt that I should have been able to insist on an operation to avoid them? I think the whole concept seems to suggest that childbirth is a terrifying process, that medical science has a better alternative to.

WeShouldBeFriends · 22/08/2018 20:23

What if you just don’t want a vaginal delivery?
In reality I'd wonder why they were pregnant.

opalescent · 22/08/2018 20:25

Quite!!

BlairWaldorfsHeadband · 22/08/2018 20:25

I'm genuinely glad you have the choice but I honestly would wonder what had lead you to decide that. I think we all agree that information and free will are vital but I don't think our views on this will align, which is understandable as there are a million different factors in life that shape our opinions.

The factors that lead me to that decision are

  1. more control.
  2. quicker.
  3. easier to know what it’ll be like (I’ve had surgery before)
  4. entire team of staff rather than two midwives in a busy ward
  5. completely numb
  6. I stay aware of what is happening because I’m not distracted by pain
  7. I don’t want stitches or tearing near my vagina. At all.

There’s also the risks, which were a big part in my decision, but I’m replying to me saying that even if someone could guarantee the risks weren’t there, why I’d still want one.

We are all different and that’s why I think each woman should be allowed to make a decision.

BlairWaldorfsHeadband · 22/08/2018 20:26

In reality I'd wonder why they were pregnant.

Because I want kids.

Not a birth. Who gets pregnant with the goal being the birth?! Confused

opalescent · 22/08/2018 20:31

But Blair, the nhs isn't there to pander to the needs of people who just want a cleaner, tidier, less stressful alternative to childbirth.

That's what private healthcare is for imo.

BlairWaldorfsHeadband · 22/08/2018 20:33

But Blair, the nhs isn't there to pander to the needs of people who just want a cleaner, tidier, less stressful alternative to childbirth.

The NHS provides pain relief and choice in literally every other area. Why not childbirth?

opalescent · 22/08/2018 20:36

I guess because straightforward childbirth isn't an episode of ill health- it's the natural conclusion of the reproductive cycle

opalescent · 22/08/2018 20:37

I want to be really clear that I'm talking about straightforward childbirth though- birth trauma can be dreadful, and I certainly don't want to trivialise other women's experiences

BlairWaldorfsHeadband · 22/08/2018 20:37

Plus elective cesareans cost on average £80 more than a natural birth. Hardly expensive.

It would actually be cheaper to force everyone to have an ELCS because the NHS would be able to staff their services more effectively...funny how that’s never mentioned!

BlairWaldorfsHeadband · 22/08/2018 20:39

I guess because straightforward childbirth isn't an episode of ill health- it's the natural conclusion of the reproductive cycle

Do you think all low risk women should have home births?

Because if not, your argument has no consistency. If women are giving birth in a hospital anyway, why does it not being ill health even matter?

opalescent · 22/08/2018 20:40

I can't imagine anything worse than all women being forced to have c sections due to cost 😱😂

BlairWaldorfsHeadband · 22/08/2018 20:41

I can't imagine anything worse than all women being forced to have c sections due to cost

But you’re fine with women being forced to have a vaginal birth because of it? Hmm

opalescent · 22/08/2018 20:42

Of course a c-section incurs higher costs. It's a surgical team in a theatre room, as opposed to a midwife in a side room.

Which part of my argument is inconsistent?

opalescent · 22/08/2018 20:44

I don't want any woman to be 'forced' to do anything. I just don't think all women should be able to demand NHS sections purely based on preference.

BlairWaldorfsHeadband · 22/08/2018 20:45

Of course a c-section incurs higher costs. It's a surgical team in a theatre room, as opposed to a midwife in a side room.
Long term, it costs about £80 more. Plus as I said, due to budgeting reasons, staffing etc, it would cost LESS due to them having less emergency situations and night births.

Which part of my argument is inconsistent?

The part where you’re happy for women to give birth in a hospital, but denying women cesareans, because they aren’t in a medical need.

BlairWaldorfsHeadband · 22/08/2018 20:45

I don't want any woman to be 'forced' to do anything. I just don't think all women should be able to demand NHS sections purely based on preference.

But that would force women to hace vaginal births.

reikizen · 22/08/2018 20:59

Blair, I would be interested to see where the figure of £80 extra cost for a lscs comes from? If you have an uncomplicated birth in a birth centre you will have one member of staff (a midwife) and go home 8 hours later but if you have a section you will have 2 obstetricians, 1 anaesthetist, 1 ODA, 1 scrub practitioner or midwife, at least one other member of theatre staff, and one midwife to receive the baby and recover the patient. Following that at least 24 hours on a postnatal ward with prescribed medication before/during/after and more home visits. Not to mention the increased rate of complications afterwards. How incredible that we believe major abdominal surgery (with so many consequences as yet unknown for our children) to be something we are angry about being ‘denied’. This thread is the reason why our maternity services will always be found wanting despite the hard work and dedication of staff. Women will always want something other than what is on offer and will complain bitterly that they were forced into having a section/vaginal birth, forced into/denied an epidural, forced into/denied help with breastfeeding. Delele as appropriate for ever and ever amen. No wonder there is a shortage of midwives and doctors!

BlairWaldorfsHeadband · 22/08/2018 21:03

Because not all vaginal births are straight forward. It takes into account the vaginal births that turn into an emergency, and the long term costs of repairing injuries received. Of course it also includes women who have had ELCS and needed blood transfusions and stuff.

Also I never had more home visits after mine and stopped all painkillers three days post cesarean.

BlairWaldorfsHeadband · 22/08/2018 21:04

It includes women with ELCS complications in the ELCS grpup*

I worded that in an unclear manner!

Miyah · 22/08/2018 21:14

@reikizen I believe the figure takes into account the fact a good proportion of women attempting a VB end up with an emergency section which is riskier and more expensive. When you take that into account plus the complicated vbs and instrumental deliveries then it balances out the cost with those who chose an ELCS

Re making vaginal births better and less traumatic, I do think being properly informed and having choice/agency would help this. I had high rotational forceps whilst prepped for a c-section, following a lengthy and difficult induction,I wasn’t really given a choice or say, I hadn’t been informed of the risks of these kind of forceps and now live with the consequences. The thing that gave me confidence to birth vaginally 2nd time round was knowing the risks and knowing I had the right to decline any interventions, so it was agreed that if the same scenario happened I’d have a c-section rather than put my body through forceps again. I also wouldn’t agree to another induction knowing the statistics on that as well (I do believe in a lot of circumstances induced labour weighs up as riskier than an elcs)

DuggeeHugs · 22/08/2018 21:15

I think the only demand being made here is that birth is put on a par with other healthcare. Risks are given, choices made and consent given.

The fact that some people are inexplicably incapable of understanding that some women might want a caesarian despite a VB being natural is one of the worst reasons I can think of for stopping other women from having delivery choice.

Why is it so hard to understand reasons like:
Previous birth trauma,
A history of abuse,
Tokophobia,
Not wanting to take the risk of vaginal or anal tearing,
Preferring the reduced risk of still birth

My obstetrician said to me that the human body is far from efficient when it comes to fertility, pregnancy and birth. That's why so many women and babies still die or are left with long term injuries as a result. A VB may be naturally occurring, that doesn't make it the best option.

Laney79 · 22/08/2018 21:18

I'm like Blair. I've done extensive research prior to even thinking about getting pregnant and decided that ELCS is right for me.

I have a medical phobia. It's taken a long time to get it to a manageable level but a lot of it stems from lack of control and feeling forced into doing things/having procedures that I just don't want - it's irrational but I can't help it. I'm also a researcher by nature, and a journalist. Having heard many anecdotal stories from friends about their births, as well as reporting on some awful cases I decided to educate myself on what the risks of vaginal birth are for first time mums like me (over 35) at my trust. I did an FOI. I found that just 7% of women in that group gave birth with no intervention or physical damage (tearing). 7%. That is frankly awful odds. 68% of first time moms over 35 had either an assisted delivery or were induced. The data also showed less chance of a normal birthweight baby born by planned section being re-admitted in the first 28 days, also less chance of mum being re-admitted. Add to that the research done on long term risks of incontience prolapse and the impact of vaginal birth on those-well for me it's a no brainer.

Is it ideal? No. If I thought I had a good chance of a home vaginal birth, with no need for intervention, and no injury to me or the little one that would be the ideal choice, I hate anything medical. But I know that chance of that are very small. So I choose to protect my mental health as well as physical health and go for a procedure which frankly scares me to death, but I know I can prepare myself for. I can educate myself about what will happen, I can know how and when. I can put in place coping mechanisms to deal with those things that terrify me (ametop gel for needles for example), and I can minimise the longer term impact on me and my baby.

The fear of ending up in a situation where I'm in extreme pain and having things change that mean i need to make life or death decisions in a split second is just awful. I can't do it. I will not consent to induction, forcepts or ventouse. I do not want to live my life having medical professionals messing with my vagina after my baby is born because I tore so badly or I end up with a severe prolapse. Yes there are dangers with csections but for me they are more manageable.

People who say vaginal is the best way for everyone just because it's how nature intended-well that's just tosh. Before medical intervention many women and babies died during births, as we have evolved women's bodies have changed. We are taller, heavier. some women have very small pelvises-some women have diabetes or other medical conditions that 100+ years ago they wouldn't have survived to childbearing age, but now do thanks to medical advances. Therefore they may need that medical help if they have children, and so we are evolving to need that intervention. One friend was pushed into vaginal birth despite being born with severe hip problems herself. She ended up in labour for nearly three days, induction drugs, her son got into distress, ventouse, pph, spent a week in hospital and her husband suspects the birth has had an impact on their sons development (he has special Educational needs). Her mother in law was a midwife and said from day 1 she should have a section because of her history. But our trust at the time was obsessed with the normality agenda, prided itself on very low section rates etc. That changed after several awful cases came to light.

Vaginal birth is not for everyone. Some of us need a section, others choose to have one for very good, informed reasons. It's my body, my baby, and NICE says it's my choice.

BlairWaldorfsHeadband · 22/08/2018 21:19

Exactly @Dugg! I absolutely did not want vaginal tearing and the risk of stillbirth terrifies me. Plus labour is so unpredictable, a cesarean is on the whole, a calm experience.

I don’t get why it’s hard to grasp. I understand, although I would never choose it myself, why someone would give birth at home. Why can’t the vag brigade see that some of us prefer a different option?