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Guest post: "'My home became my prison' - why we need to build more accessible housing"

16 replies

MumsnetGuestPosts · 15/04/2015 16:36

Britain is in the midst of a housing crisis - but it isn't just because rents are sky-rocketing past affordability, and home ownership remains a distant dream for many. It's also because the housing stock we have just isn't suitable for the needs of the future.

Many individuals with disabilities need either specialised housing or adaptations in order to live safely in their home - I am one of them - and levels of disability in this country are rising exponentially.

The most obvious reason for the increase is the number of older people. There's a significant correlation between age and disability, with one in two over the state pension age currently meeting the 'disabled' definition. The number of people aged over 65 is set to double over the next 17 years. But this is also affecting younger people, and families, too.

A number of years ago my mobility declined to the extent that I was unable to get up the steep stairs to my bedroom. I was lucky enough that the bathroom was downstairs, but sleeping on a sofa whilst waiting for a suitable property to become available isn't easy when you have chronic pain. I needed a bungalow with level access, but there were so few in my area I couldn't get a look-in. I became so anxious, worried I'd never find somewhere to move, and my condition worsened both from stress and due to where I was sleeping. The relief when I finally managed to secure a privately rented bungalow was immense, but I still live in fear that my landlord may sell up and I will be back in the same position.

Others have it much tougher, and some of the stories I've been told are heartbreaking. I know one lady who had a stroke and was left needing a wheelchair. Her property had steps throughout and the doorways were too narrow for her chair. She thought the council would re-house her urgently. She given a high priority due to medical reasons, but wheelchair accessible properties were extremely rare. The only place she could wash was her kitchen, where she felt uncomfortable and exposed, and she had to be carried to the toilet. Her armchair became her bed. Her home became her prison. It took two years for her to be re-housed, and the situation took a huge toll on both her physical and mental health.

Housing is already a significant problem for disabled people. We're twice as likely to be social housing tenants, because the private market doesn't accommodate us - landlords simply refuse to spend money on adapting properties. Currently only 5% of our housing stock qualifies as disabled friendly, which means lots of families are living in inadequate properties. 72% of people with mobility problems state that they do not have an accessible door into their building. 52% don't have doors and halls wide enough for a wheelchair. 50% cannot have a stair-lift as their stairs aren't wide enough.

Everyone should have the right to wash and dress in privacy, and enter and exit their home when they choose to. Imagine if you or one of your children had an accident tomorrow, or became very ill. Would your home be suitable? Would you be able to get through the front door in a wheelchair? Would you have an alternative to a bath if you couldn't climb in? When choosing a property, rarely would a healthy person ask 'what if?'

Things need to change fast. Leonard Cheshire are calling for at least 10% of all new developments to be wheelchair accessible, and say councils should ensure that accessible homes are a priority when giving permission for new housing developments. Disabled people have families, too (shock horror), so these homes need to include bungalows and level-access properties with three and four bedrooms. I think there are also simple things that could be done, too, like online estate agents listing key accessibility features, and making them searchable.

This problem won't go away, and it can't be ignored. This isn't just an issue that impacts disabled people today, but all those set to become disabled in the future - which may include you, or your children. As a country we need to do more before this becomes an unsolvable crisis.

OP posts:
SisterMoonshine · 15/04/2015 18:43

Ridiculous that just 5% of the housing is accessible!
It's not as if a property with ramps, lower light switches etc means that able bodied people can't use them iykwim. There should be loads, loads more. So that they are accessible for all.
Like you say it can happen to anyone, permanently or temporarily.

EMS23 · 15/04/2015 19:01

Absolutely agree and one way of addressing this issue could be through the planning system requiring market developer to build to Lifetime Homes standards as a minimum on a certain percentage of properties on a site.
These properties would then be suitable for adaptation when required such as they would already have wider doorways, space for a through floor lift, stairs suitable for stairlifts etc.

Building adapted homes is difficult for many reasons - they are land hungry, expensive etc.. but it is important to prioritise this need because as the OP so rightly pointed out, people with these needs are growing in number and housing and health are intrinsically linked such that suitable housing significantly improves a persons health.
No one should be a prisoner in their own home for this reason.

Owllady · 15/04/2015 19:28

We are in private rental and have severely disabled child, we were given occupational health funding to adapt the property (they agreed the bathroom was too nice to suggest adapting) and the landlord refused anyway
So I don't think it's just about landlords not having the money for adaptations, it's about the reluctance to let disabled tenants live there long term

I do agree with though, but I think it's more complex
It's all depressing

EMS23 · 15/04/2015 19:36

Private landlords that will allow adaptations are incredibly rare. I've always thought there is a market there - LA's are desperately in need of this kind of housing stock and a willing private landlord would have tenants for life.

Owllady · 15/04/2015 19:39

I personally think it's because they can't keep increasing the current rent at the top of market rates every 6 - 12 months
Am I cynical old goat? Confused

Cherriesandapples · 15/04/2015 21:48

Owl lady- it is a shame that landlords often don't agree to adaptations organised by a council's occupational therapy team and funded through a disabled facilities grant.

The property developers have also fought long and hard against any initiatives to make new homes accessile for all. The only concessions they have made to new builds are level access through front door and downstairs toilets in family homes.
More homes should be accessible and easily adaptable to meet individual needs.

Binkleflip · 15/04/2015 23:11

Well said Jade!

The current trend for new build town houses with the tiniest footprint possible here has led to a madness of 3 floored houses with bath/bed on the ground floor to meet "access requirement" then kitchen/living area on 1st floor and further bed on top floor. A prison in essence.

A lift is easily possible either instead of and in the place of stairs or on the side of the building for as little as £10k but this never happens (and it is unlikely the planning permission would be granted - also there is no funding for this - a cheap council bathroom is better it would seem). There needs to be a full and appropriate enforcement of regulations which recognise the need for a wheelchair user to access their home not be kept prisoner in a part of it but until the rules change nothing else will and whilst we entertain the agencies who dreamt up and are enforcing the bedroom tax this will never be addressed.

There is a total lack of understanding regarding the amount of space needed for equipment, getting about, visitors/carers to stay and give a hand etc by those who are lucky enough to live without a disability. It will come to us all at some point so we should stop being so bloody short sighted as a society and start planning inclusively. A change to planning structure and to Landlord regulation - fixed rents / long leases / rewards for those who take care of their tenants and will adapt etc.

In city areas particularly a ground floor accessible property is generally far more expensive to buy or rent than a higher property. Just one of the many ways we force people with disability further into inescapable poverty.

Akire · 16/04/2015 01:01

I'm trapped in my home I can't get out the doors without help, I get help but just long enough for basics. I'm in my 30s but no one seems to think this is a problem.... Or enough to get moved. As its accesable ie it's in a modern flat block so no steps.

It's not just your home I can NEVER visit other people's homes, either you can't get in the door, fit down the path, and if you could manage to get in no one has an accesable toilet downstairs large enough to get a wheelchair in since most normal sizes houses are tiny.

agree accesable houses should be much bigger there is no room for equipment or storing things you need plus room to actual move around. For example my kitchen looks big but just enough room for me to touch one side turn 360c in chair and touch the other so feels same size to me as a tiny galley kitchen might do to someone standing up.

Sadly accesable social housing very much in demand and a lot of it is for of 55s only so younger disabled people locked out. And had been said its practically impossible for anyone on benfits to rent privelty never mind where you might need adaptions and extra wear and tear on door frames and floors for example.

Annie6677 · 16/04/2015 06:15

A few years ago we extended our house. As part of this we created a downstairs wet room & bedroom/lounge. We have a step at front door but this could be easily ramped if needed.
The rest of downstairs is accessible. The reason I designed it this way was for a couple of different reasons - main one being that I'm an occupational therapist who is dismayed at people being trapped within their own house, secondly thinking about my parents when they get older.

NotCitrus · 16/04/2015 09:17

Are there ways of advertising accessible properties to people who need them? I've renovated my granny flat to have step free access and reasonable amounts of space inside for a wheelchair, but am renting it out as none of our parents yet need it. Are there Facebook groups or agents who have prospective tenants who need such ahome?

I was pretty disabled when we bought our house, which was one reason to buy a large wreck - plenty of space for family and helpful friends to stay (I haven't needed carers as such, but people who can play with kids early in the morning so I can sleep are a godsend!). Also being 100 yards from a bus stop was wonderful when I couldn't walk more than that. I'd like to see all bus stops having seats, especially in rural and suburban areas where there is space and often a while to wait. MIL can get to a bus stop but can't stand to wait. I have the same but have seats as well as buses every couple minutes.

FanFuckingTastic · 16/04/2015 10:51

I was extremely lucky to get a ground floor flat the first week I was on the housing register, my priority was high because of my disabilities and because I was a homeless woman leaving a EA relationship.

I need another bedroom though, for my daughter, and I am dreading the process of finding another place. Having been made homeless by a private landlord who also refused to allow adaptions to be made, I need the security of a council tenancy. I know I can have changes made, and I know that so long as I don't behave atrociously (which I would never anyway) that my tenancy is safe.

MiscellaneousAssortment · 16/04/2015 11:09

Seats are being removed from bus stops, by the way. Being replaced with little sloped ledges so able bodied people can lean but not sit.

It's called 'defensive architecture' and it's about making public space uncomfortable or inassessable for undesirables such as gangs of youths or homeless people. I was going to say 'and who cares if a few disabled people can't use bus stops, therefore buses, therefore go outside...' But it occurs as I'm writing tgat disabled people are probably the silent other members on the undesirables list :(

It's disgusting.

juliascurr · 17/04/2015 22:17

shared ownership is unaffordable and unsuitable,; were looking for something to adapt with a grant - not easy

Antiopa12 · 18/04/2015 08:37

miscellaneous round here we have two bars at the bus stops they are not for sitting more like perches!

I have adapted our house downstairs for my son. however he cannot visit his cousins or aunties and uncle in their own homes because it is difficult just to get into their front door and there are no turning spaces for his wheelchair or changing facilities . His horizons have definitely shrunk and this Christmas for the first time we were not invited to family occasion because of the logistics , we are trapped even more now at home.

pamish · 18/04/2015 18:08

The slippage on planning controls in the past few decades is appalling. The 1961 Parker-Morris standards for space have gone, the need for developers to maximise their profits has stamped out any input from those who actually need what they build.

There's a very simple solution to many problems that has an inbuilt long-term benefit. Lifetime Homes, for everything. www.lifetimehomes.org.uk/ By designing in the (mostly quite small) changes, all homes become accessible to most people, and they can stay there perhaps with some tweaking, all their lives. It's easy with flats, and that's most of what's being thrown up in the cities for the forseeable future. Why only 10%? Why is this not part of every plan? Don't developers ever get old?

So make ALL doorways wide enough for a wheelchair. Turning spaces designed in. Bathrooms on the ground floor if more than one storey. etc etc. There have to be doorways, why not make them all wide enough?

Yet another election issue that has slipped past.

.

senvet · 19/04/2015 20:02

Coming off my legs was a very strange experience. The world suddenly shrunk. Places I had been able to access were all gone.

I couldn't get to the kids' school, or all the places we had been together walkiing dogs.

I was lucky that my doors were wide enough to get in and out, but upstairs was gone. Not eleigible for funding for a lift.

All new homes should have all doors 33" wide and a plan available for how to make the home wheelchair accessible if the need arises.

But then some huge percentage of businesses still don't comply with the access law which came into force in Autumn 2004....

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