ANyone like me may have Parkinsons - but they cant tell yet

[Mumfun]

I just dont know anyone in this situation. I have some tremors develop in my hands. I am being monitored by our local hospital neurology department.

To cut a long story short, they dont know if Ive got Parkinsons or not. If I dont, I have a similar lesser condition -still a progressive tremor disorder. Obviously its better if I dont have Parkinsons but the long term still looks difficult. I think I have to get a lot worse beffor they will be able to tell

I dont want to contact the Parkinsons society as I dont feel Ive definitely got it. I would prefer to do that if Im definitely diagnosed.

I found out over just over a year ago. I guess Im finding it hard today as I hadnt felt I was deteriorating until the last couple of weeks when my hands have started being number and just feeling a bit stranger and a little harder to use.

Is there anyone in similar situation?

Sorry, I don't, but wanted to bump this for you. Hopefully someone who does know a bit more will see this soon.

Good luck

Mumfun - not quite the same situation, but wanted to say I know how difficult that period before any diagnosis is.

My Dad (now 78) had tremors in his hands, and it took over a year before he was finally diagnosed with Parkinson's, due to all the scans etc

Obviously you need to wait and see whether it IS Parkinson's or something else, but if it is, then you will get a lot of useful help and support from the Parkinson's Society. It's not just full of geriatric oldies - our local branch has a 'working age' group and they focus very much on getting on with life, and managing whatever symptons come up along the way.

My Dad's medication has made a huge difference too. It takes a while to get the right dosage sorted out, but it has reduced his tremors and he is still totally independent.

Try not to dwell on 'what might be' until you know exactly waht you're facing? And once you do, there will be places and people who can help you...

I've been having neurological symptoms for a few years now. After several tests, I was told by a neurologist that I have features of Parkinsons/MS but haven't been formally diagnosed with anything yet. I have only been given a type of muscle relaxant to take - and I only got that because I am having problems with muscle spasms and spasticity. I get the numbness and other changes in sensation too, but that isn't confined to my hands. I am confused because the EMG test showed that my peripheral nerves were OK - so does that mean that the problem is in my central nervous system?

My symptoms started a year or so after I had a car crash, and for a while everyone thought that I just had a bit of whiplash, and was milking the situation to gain more compensation (I wasn't)

Are you seeing any specialists? I have got to see the neurologist again in the next couple of weeks, and I am really worried that I will be discharged and left to get on with it (again). I don't know what I want him to say, to be honest.

DB I just have an annual checkup now with a neurological specialist. They will have to see more Parkinson like symptoms in order to diagnose. There is apparently a test but it costs a huge amount so theyve decided not to do it. I was fine about it but now not so sure.

Sorry you arent sure what you want them to say.

I dont take any medication - the tremors dont cause me problems currently.