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timodene for psoriasis?

23 replies

geranium · 11/08/2005 20:28

Anyone tried this? Just been recommended it by GP (haven't actually picked up cream yet so may be misspelling it. Timodene is how the name sounded). Apparently ok to use if ttc and ok to be used over a reasonably long period of time. Any thoughts?

Thanks

OP posts:
geranium · 11/08/2005 21:33

bump?

OP posts:
katylou25 · 11/08/2005 22:10

I have never used this - but when i worked in nurseries it was used for severe nappy rash etc so guess it could soothe it. Best tip for psorasis is sunshine! - I went to america for 6 months 7 years ago with moderate psorasis and came back with none and have only had very occasional tiny patches of it since. Gp reckons it 'cured' from buiild up of vitamins etc from sun.

cori · 11/08/2005 22:20

My tip for psorasis is Aloe vera cream and acupuncunture. I had two different types of reasonably severe psoriasis, one type went on for several years. I have been free of it for over a year now.

geranium · 12/08/2005 06:47

Thanks for your replies.

Unfortunately, Katylou, sunshine seems to make it worse - I think because the skin is so sensititve but I have heard that working with others.

Cori - where do you get aloa vera cream and is it quite harmless ie can it be used for long periods and when ttc? Think I might try that before I am brave enough to think about acupuncture (although interesting to hear that acupuncture can be used on skin conditions - I hadn't realised).

Thanks

OP posts:
kid · 12/08/2005 06:59

Both of my sister have psorasis. The sun works for them and one of them was refered to a sunbed place at the hospital.

My sister also tried drinking aloe vera juice, it worked but tasted so vile, couldn't keep it up! You can also take aloe vera tablets which would be easier than the juice.

cori · 13/08/2005 08:40

You can get Aloe vera prodcuts from health food shops. I cant imagine that it has any harmful properties at all. Of course double check I cant see why it cant be used when TTC.

Hulababy · 13/08/2005 08:54

I have suffered with psorasis for years and have tried all sorts. I have still not found anything that has got rid of it from my scalp.

However I also have psorasis on my body and the latest ointment my GP has prescribed has got rid of it. It does come back, but not as bad. And as soon as I see it I go back to the GP and get the cream, and it goes within days. It is called Dovobet and IMO definitely worth a try. I was amazed when it actually wrked, after all this time.

Still have to sort my scalp now...

Hulababy · 13/08/2005 08:55

Should add that I find that my psorasis is no better at all in sunny weather. Inafact the fact that I am hot irritates it more, especially on my scalp. I know it does work for some though.

cori · 13/08/2005 11:07

Hulababy,
I have been prescribed Diprosalic for scalp, that seems to work for me.

edodgy · 13/08/2005 11:11

my dd was perscribed timodene for a fungal infection under her chin as a baby it is an anti fungal cream so im not sure if it would be any good in treating psorasis.

gingernut · 13/08/2005 12:07

timodine contains a steroid (hydrocortisone), an antifungal (nystatin) and an anti antibacterial agent (benzalkonium chloride). The hydrocortisone may help with the psoriasis. I wouldn't have thought the other ingredients would make any difference though and could make it worse (not saying that they would but you could just have hydrocortisone cream if only the steroid is actually doing any good).

What have you tried in the past? Where is the psoriasis?

Hulababy mentioned Dovobet. That is a relatively new product which is a combination of a vitmain D analogue (which has been on the market quite a while in the product Dovonex) and a steroid, betamethasone. Recommended duration of treatment with Dovobet is 4 weeks (after which if you still need something you are supposed to swap to another product).

kid · 13/08/2005 15:49

Hulababy - Is Dovobet available on prescription only?

gingernut · 13/08/2005 18:11

Yes kid, Dovobet is prescription only.

Twiglett · 13/08/2005 18:20

DH was advised by consultant rheumy to use dovobet on nail beds for 6 months

gingernut · 13/08/2005 19:48

Recommended duration of treatment on the licence reflects the duration of treatment shown to be effective and safe in clinical trials (usually this is merely due to the trial design, for e.g. the trial may have run for just 4 weeks). It doesn't necessarily mean that's the best option - just that that's what's supported by the data IYSWIM. Doctors are free to recommend something else but they take responsibility for that recommendation. Did your dh find it effective Twiglett?

Twiglett · 13/08/2005 19:50

it was beginning to help (he has severe nail pitting and 6 months use was supposed to give him his fingernails back ) but unfortunately started to really irritate the skin so he stopped .. back to square one

it seemed to work on the skin patches .. although they are flaring at the moment and I'm currently fighting a losing battle to get his pasty Irish skin out in some sun

gingernut · 13/08/2005 20:09

Oh, that's a shame about his nails twiglett.

Twiglett · 13/08/2005 20:46

hey its nowt compared with the psoriatic arthritis

gingerbear · 13/08/2005 21:06

another sufferer here. I have tried all sorts over the years, hate sterid creams as they thin my skin and make it susceptible to knocks, cuts and bruises.

I am using M Folia cream / ointment from Taylor Jackson. It is based on Mahonia Aquafolium, a plant with properties similar to Aloe Vera, and my psoriasis is clearing up well. They do a scalp oil, which is great when you want to scratch your head off - very soothing.
taylor Jackson Website

eidsvold · 15/08/2005 05:26

what about these products - have used the calendulis plus cream with my dd2 and found it fab.

here

They are available in Aus - am sure you could order over the internet.

emj2007 · 24/08/2007 15:55

hiya , ive had psorisis for years now got it when i was 2 and now im 24 and have never actually got rid of it completely just recently i was given an ointment for my head as its so severe i cant go out and it was called bethoment or somethin like that it has steroids in it and when i used it all my hair started falling out in big clumps so now im even more ashamed to go out , my doctor hasnt been very helpfull he says basically ill never get rid of it completly just keep trying the creams but ive noticed after so long of using the same stuff it stops working for me and become quite emune to it as anyone tried anything that really does seem to work im not6 satisfied that theres no cure either there must be something out there that can cure this disease im fed up of wearin baggy clothes all the time and feeling ashamed of myself theres got to be something else that can be done

BadKitten · 24/08/2007 18:09

I tried dovobet but didn't find it as effective as doing dovonex once per day and betnovate 1 per day. But then dovonex started irritating me.

A word of caution for those on steroid creams - I ended up with bilateral steroid induced cataracts that had to be removed earlier this year. I think its pretty rare but make sure you are having regular eye checks if you use them lots.

I'm lucky that sun does help me enormously - but not sunburn - thats a good way to a flare for me.

lulalullabye · 24/08/2007 18:21

I found that both times I was pregnant, it went away totally, so if you do succeed in ttc you may be free of it for 9 mths. It did come back though approx 3 days after giving birth, gutting !

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