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Firbomyalgia....anyone on here?

6 replies

sahs1969 · 31/05/2010 07:11

Hi,
After many years of ongoing pain and flare up's I was seen last week in London and have been diagnosed with FM.
Wandered whether anyone on here has this and wandered what tips you could give me.....does any special diet help etc?

Thanks

OP posts:
shoshe · 31/05/2010 07:32

Yep have had it for quite a while, it was sparked off by having Lupus.

Worst thing I find is having anything very acidic (I cant drink wine anymore, in fact find all alcohol makes me hurt)

If you have lots of pain, Synadol helps, although I dont take it as find my Lupus meds keep the pain under some control, I know Saltire finds it helps.

it does come in flares I find, can be not to bad at times and hen lots of pain.

I have terrible Insomnia with it, others find they sleep all the time. I was prescribed Amitriptyline but didnt find it helped just found it made me groggy the next day, and over the years have learnt to live with the lack of sleep, think your body gets used to it to be honest.

I have found keeping a positive point of view about it, has been the best thing to help.

But I am the sort of person, that wont let it beat me.

Hope this helps a bit, there is a few of us here that have it, so you have company.

There is also a FB page.

tribpot · 31/05/2010 07:41

Yep - my dh was diagnosed with it although I would dispute it as his pain is constant, there are no flare ups.

You should be able to access a Fibromyalgia support group locally, maybe ask your local PALS?

This is a really good book, I would recommend it. And this is a really good website.

Hope this helps.

bacon · 31/05/2010 07:52

God, I have been lucky mine started over 15 years ago and I went down like a bag of spuds! But I managed to work but my relationship broke down. I really had to fight it. Tried all the alternatives - waste of money, some anti depressants are very possitive (I did it but the side effects messed me up). Cognative therepy helped loads.

I noticed that I became alcohol intolerant too!

Now 80% good.

echops · 31/05/2010 13:49

I was diagnosed with this 7 years ago (although my Doc now wonders if I actually had Lymes Disease!) but haven't really had any problems for the last 4 years. I found that omega 3, 6 & 9 helped, as did amatriptalyne tablets (not sure about the spelling I'm afraid!). I also started Pilates which was great as it got me going without wearing me out.

Rowlshar · 09/06/2010 23:52

i was diagnosed last year after a fair while of having it. i tried everything from antidepressents on a small dose, physiotherapy and also laser treatment to break down what i call my stress lumps. sometimes it felt as if my head was too heavy for my body. tried different diets but after a while it dies down. each time i get stressed, it comes back with a vengence. i have tried recently Gapapentin and this seems to work although it did leave me a little drowsy. there are lots of web sites but i think everybody is different and what works for one, doesnt work for another. sports massage helps a little as it digs deep in the muscles but it nearly kills you with the pain!!!!

Treaks1 · 23/04/2022 15:59

Hi
Does anyone know of any fibromyalgia support groups
north west London or Hertfordshire or south west London area please ?

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