Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Anyone any experience of macular holes?

7 replies

fartmeistergeneral · 25/05/2010 22:21

If so, how did it all go? Did you have to sit face down for 3 weeks? My sister has just been told she has holes in both eyes but has to wait 6 weeks to see if it gets any worse.

OP posts:
MonarchoftheGarioch · 25/05/2010 22:30

Not personally, but my mum had an operation on one eye last year. Answer will be long-ish, so will post this then carry on typing...

MonarchoftheGarioch · 25/05/2010 22:50

Mum had an operation to repair a macular hole last year - it was spotted by her optician after she'd noticed odd vision problems (most noticeable when reading, it was as if chunks were missing from the text). She was advised that it isn't always possible to operate, but where they do decide to repair the hole, apparently the results are best if it can be done within six months of the hole appearing.

I think the operation is very similar to what they do with a detached retina; it involves removing the fluid inside the eye, doing the repair, then injecting a bubble of gas to replace the fluid. This bubble pushes up against the repair, keeping everything in place, which is why you have to sit or lie face down for a while, to keep the bubble in the correct position. The bubble then gradually shrinks, finally disappearing completely, by which time the fluid inside the eye has replenished itself (it's actually a different type of fluid that comes in, but probably too much detail to go into that!).

Mum only had to do this 'posturing' for about a week to ten days, but it was a difficult time for her. We took it in turns to stay with her over that time to keep her company and cook for her. You have to spend about 50 minutes at a time face down, but can have a 5-10 minute break every hour - just about enough to have a quick shower, or get some fresh air, have a loo break, whatever... This stage is really important because the success of the operation is much greater if you manage to sustain the correct position for as long as it takes.

MonarchoftheGarioch · 25/05/2010 22:56

Things that helped were to set up a stool or table in front of the sofa with a cushion on it so mum could sit up and lean over it. Otherwise she mostly lay on the sofa. Another tip was to move the mattress down the bed a bit to leave a gap at the top, which helped her lie flat but have some room to breathe!

Talking books and the radio helped pass the time (as did my lovely MIL who came to stay for a few days and read her the Daily Mail ). You can also set up an angled mirror on the floor so that you can watch TV, but as mum's other eye has very poor vision she didn't find this much help - your sister might find this too if she has to end up getting both done, though I guess they wouldn't do both at the same time?

MonarchoftheGarioch · 25/05/2010 23:05

Just remembered another thing - they often do a preventative cataract replacement at the same time, as the operation to repair the hole can cause cataracts to form very soon afterwards.

Also, someone gave us a very useful tip, namely that you can pay to go private for the consultation, which gets that out of the way more quickly, meaning you get on the list for the operation more quickly too, whether you then decide to have that done privately or NHS. I'm not sure if this worked for mum only because her surgeon happened to do all the NHS and private patients at that hospital (impression I got was there are not that many surgeons specialised in this area). So although mum wouldn't have been able to afford to have the op privately, she paid about £200 to have the initial consultation, then had the op on the NHS a few weeks sooner than if she'd had to wait for an NHS consultation.

Hope that's not too much information at once! But just ask if any other questions. I found the Moorfields Eye Hospital website quite useful, they had a whole section about this type of surgery.

fartmeistergeneral · 26/05/2010 09:12

Thank you so much, very interesting, the recovery looks really hard work.

Thanks for taking the time to reply, very helpful.

OP posts:
MonarchoftheGarioch · 26/05/2010 17:33

No problem, hope there's some useful info there for your sister, and good luck to her with everything. Does she have any idea how the damage occurred?

It's a scary prospect to have eye surgery, but it worked out really well for mum (she would have been in a bad way without it, she's been practically blind in the other eye since childhood). It has taken a lot of adjustment since the op to get her glasses prescription just right, and her vision is not quite the same as it was before (not necessarily worse, just different), but it's definitely been worth it - she can read and do crafts as before, which are very important to her.

iwastooearlytobeayummymummy · 26/05/2010 23:32

try this website too
www.maculardisease.org

my sister has had this condition too, caused by a rare auto immune disorder, but has been receiving excellent treatment from specialist eye unit.

She is currently in remission, following avastin treatment.

New posts on this thread. Refresh page