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Potential Colitis Diagnosis

1 reply

ucdiagnosis · 15/05/2010 15:20

Hi. My ds is 12 and has just been diagnosed with UC. Feel devastated as DH had it until he had surgery and a permenent stoma. Was really hoping that it was not this as he did not have all the symtoms and dr did after the colonsocopy that he was surprised he did not have more symptoms.Didn't help when dr said he may end up with an op but then that would cure it - but my DH was married and had 3 kids before he had the stoma; not the same for a nearly teen. Just wondered how other kids who have been diagnosed at a similar age have fared. We also got given loads of stuff to read from NACC but much of it is in too much detail for him to currently take in but the stuff on the circr website for kids is too young. He is on steroids and sulphursalazine but they do not have the histology back yet.Has anyone else been through this and also has anyone else been told this is likely but it has turned out to be something different?

OP posts:
MimsyStarr · 15/05/2010 20:56

Hi there, I haven't got a DC with this diagnosis, but my sister had ulcerative colitis and finally had her op last year (after she had 2 children) and is doing well now.

I am really sorry to hear about your DSs diagnosis. It must be scary for you all. Is 12 young to be diagnosed with UC? I don't remember a lot about it but I thought most were diagnosed in late teens.

I hope someone else comes along with more direct experience ...

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