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A Few Questions About an Underactive Thyroid

49 replies

mangoandlime · 21/04/2010 08:37

Hmmm, not sure where to start really. For years and years I have suffered with really bad sore throats, around one every six weeks or so. I am constantly tired, my stamina is rubbish ie I can't exercise for very long, running wipes me out. I work twice a week in a fairly physical job and I absolutely love it but lately I'm using my off days just to rest. I'm getting really down, no motivation, you get the picture. Anyway, I have had blood test after blood test over the years to rule out gland. Fever and underactive thyroid, I do remember a few yrs ago a doc saying my result was borderline but then nothing else was said and I didn't think any more of it. The sore throats have continued and I've stopped going to the docs with my throats now as every time I'm told it's viral.

At the moment I'm so poorly, last night I didn't sleep, my throat is deep down sore and I feel awful. I saw a doc yesterday and she was good, told her I want to get to the bottom of this now, I'm having blood tests next tuesday and she mentioned underactive thyroid. I feel a bit if a div because I've only just realised the thyroid is in the throat, could this be the pain I have so much? Also I'm confused about the results, how do you interpret them? Should I ask what the results were of my last blood test in 2008. Looking at the symptoms the one about a third of your outer eyebrow missing screamed out at me! Along with loads of others. Funny as well hat at a family party my aunty told me to keep an eye on an underactive thyroid because it's in the family quite heavily on my mother's side.

I'm sorry for that stream of consciousness! Any help would be so gratefully received.

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topsi · 21/04/2010 08:49

Am no expert, the only thing I know is that if you have a blood test for thyroid at the GP it only tests for certain things and misses out others. Doesn't test for T4 or something of the like. They will also only treat with thyroxine if results are very out of the ordinary.
If you went private or to a specialist they might have a different opinion.
Sorry haven't explained that well but others may be able to clarify.

morethan1 · 21/04/2010 11:20

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mangoandlime · 21/04/2010 11:33

Thank you both for replying.

Been in tears this morning because I'm actually at the end of my tether with this now...morethan1, it is a bit of a relief to read that you too suffered with the deep sore throats, although it was probably no fun for you, I'm so pleased you've had a diagnosis and on the road to recovery, gives me hope for the future if I am hypothyroid too.

I spoke to my doctor again this morning and she told me that the only test the NHS do, and the only one they need is the thyriod diagnosis test, she did say that even if this doesn't show anything she will refer me to ENT who she tells me also deal with thyroid probs.

I asked her to have a look at the last time I was tested and she said she could only see 2003, where I was borderline, she said very,very borderline, very near normal, whatever that means. As you say, morethan1, you either are or not. As is my reliance on docs being right I didn't query it then and didn't know about my family history either.

Off to the hospiatal today for a blood test as my doctor's couldn't fit me in before Monday. Need that like a hole in the head but I want the results sooner rather than later.

With your recurrent sore throats, morerthan1, were they regular? accompained by headache and loss of energy and generally a bleugh feeling? I'm poorly so often I worry about going on holiday, things like that because more often than not I'm ill.

Sorry for the ramble.

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morethan1 · 21/04/2010 12:09

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coolma · 21/04/2010 12:13

I have recently been tested for this. Twice First time my levels were consistent with having an underactive thyroid and next time they weren't! I was so upset by this...really wanted something, anything to make me feel better. As it is I have to stagger on and have another test in a couple of months. Am seriously considering getting something I saw in my mumsold lady magazine - natural thyroxine as am seriously fed up. All the blood tests suggest I am supremely healthy and that's that as far as the docs are concerned

mangoandlime · 21/04/2010 12:58

thanks all. coolma, I know what you mean, I'm half stressed already because everything's always fine..but I'm bloody not!

We are fortunate to have private health insurance, wonder if I can be refered to the endo that way. hmmm.

thanks, morethan1, that's helpful.

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ArthurPewty · 21/04/2010 13:18

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mangoandlime · 21/04/2010 13:41

Leonie...you are right, I have the blood test papers that I collected today for my blood tests later at the hospital and it is the TSH I'm having....along with the usual gamut of tests. She has commented that I'm tired with constant sore throats...hope they don't go on this very limited descrition of my symptoms! My doc is Spanish so maybe a language thing.

That is funny you say about being tested in the morning..I have just read the very same, I think I might change to tomorrow morning, the window at the hospital is 8am-9am. (and to be honest I could do without driving too far today).

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mangoandlime · 21/04/2010 13:51

And you saying TSH peaks at 2am probably explains why I feel particularly rotten then.

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VinegarTits · 21/04/2010 13:59

oh you poor thing, i was recently diagnosed as having a boarderline overactive thyroid, like you i have been getting ill a lot and run down, no energy etc

my gp is going to re-test in 6 weeks and if it is still the same, then treat me for it

I think your gp should have done the same if your tests came back as boarderline

Hope you get it sorted out this time round

mangoandlime · 21/04/2010 14:08

Oh VinegarTits, don't you just get so bloody sick...of being well, sick?!

All I want is to feel relatively normal for a very long stretch and not have anyone say...'Not a sore throat...again, but you get so many', I'm actually praying for a diagnosis. I hope you manage to get the treatment you need too, sounds like you're on the right road at least.

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VinegarTits · 21/04/2010 14:13

yes mangoandlime, if it wasnt for my friends on here nagging telling me to get to the docs i would have carried on as normal, as i just put it down to stress

i totally sympathise, tis horrid getting up and feeling like crap every day

mangoandlime · 21/04/2010 14:27

Good for you for getting the treatment you need. Isn't stress and anxiety a symptom? My anxiety is sky high at the moment, normally I'm a terrible worrier and can put anxiety down to that but at the moment I feel constantly anxious for no good reason, well apart from feeling permanently crap!

Sometimes we just accept the way we are as just the way we are. Well I've had enough of that now. I think it'll be a long road but I'm determined to get to the bottom of it.

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ArthurPewty · 21/04/2010 14:29

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coolma · 21/04/2010 15:05

I have felt like rubbish for ages now - firstly I was diagnosed with shingles, then they decided it was something else, then the tsh tests were done and all my 'bloods', and now I am off work completely exhausted, with a hideous rash on my face - which has been on and off since the shingles idea and feeling awful . I don't drink, I dont smoke, I exercise and I eat far too heathily, yet, cannot get a diagnosis. Sick of it (sorry thread hijack...but relieved to hear other people feeling the same...)

mangoandlime · 21/04/2010 15:44

Leonie, very glad you've said that about early blood testing, going to be there for 8am. You sound to be. Ery well read on this condition, I guess when some drs don't really know much about it forewarned is forearmed and all that. Stupidity indeed that have. Uy your own meds, it's a bit like Candida, I think if the NHS recognised this condition then a lot of associated illnesses would be avoided. Do you feel better now you're being treated? Your timings of high and low TSH levels are about spot on for me I have to say.

Coolma, hijack away! You sound really poorly. Can you change drs? In this country we are too polite, I think you should go back and insist they help you...easy for me to say but it's not right to feel so so ill. Surely one test showing you have an underactive thyroid is enough to warant treatment? Ooh I feel cross on your behalf.

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mangoandlime · 21/04/2010 15:46

Sorry for typos.... iPhone failure!

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ArthurPewty · 21/04/2010 17:01

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hellymelly · 21/04/2010 17:10

My thyroid has been up and down,also told it was "borderline" with a TSH of 4.9!!!!next test it had dropped two points,but my T4 was right at the bottom of normal.Told it was all fine.They didn't test my T3 at all.I also have a family history of it.I am now seeing a doc privately to sort it all out.Constant infections like your throat,anxiety etc are all symptoms,and the normal levels are set too low anyway,in the US you would be treated with a TSH of 3 or over.

mangoandlime · 21/04/2010 17:33

Oh Leonie, I know what you mean when you say you have no constants to compare to! Just to feel that I can cope with the day without feeling pants is enough for me right now.

hellymelly...I'm actually quite scared this will happen to me..I've read about lots, you and Leonie included who have gone private. How do some folk get diagnosed 'fairly' easily and others have to pay to get the treatment they need? It's not right. I know I'm going to have to put my tough hat on over the next few weeks. A result such as yours should just be enough evidence to treat you!

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topsi · 21/04/2010 18:04

You could go to the Institute for Optimum Nutrition, if you attend one of their 'training' consultations, supervised by a quaified nutritionist they will carry out any blood tests free of charge I believe. Not sure if you would be interested in going down this route, but it would be a way of maybe getting the tests you would like to have without spending a fortune on a private Dr.

mangoandlime · 21/04/2010 18:15

topsy, is that Patrick Holford's clinic? I did the Candida diet to try to deal with my symptoms, his name came up a lot. I might try it again, though it is really hard to stick to until you're in the zone, as it were.

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ArthurPewty · 21/04/2010 18:33

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topsi · 21/04/2010 18:49

Yes it is, just a thought. Nutritionists would be more open to looking into your condition and not so narrow minded about what tests you may need.
Have you heard of something called adrenal fatigue?

mangoandlime · 21/04/2010 18:50

I really hope it comes soon for you, Leonie.

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