Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Just been diagnosed with Endometriosis please help !!

9 replies

debbsyandsonne · 19/04/2010 23:13

i have had 4 admissions into hospital with very severe pain my 3rd admission ended with a laparoscopy with part of it taken away i still have it on my kidney and bladder though now and was admitted back into hospital last week agsin with severe pain and took the decision to have the Prostap injection (did not want it due to side affects)
i am still in very sev ere pain and would welcome any ones advice how best to handle this terrible apin any vits or treatments i can take to help myself.
thanks in advance x

OP posts:
theselegswermad · 20/04/2010 01:06

HI, sorry to hear you are in so much pain, I too am waiting to be diagnosed
www.endometriosis-uk.org/onlinecom.html this has been very helpful

debbsyandsonne · 20/04/2010 13:53

thank you legsweremad ive just started bleeding now from the Prostap and am in alot of pain today.
When is your appointment?

OP posts:
debbsyandsonne · 21/04/2010 11:13

refresh

OP posts:
theselegswermad · 21/04/2010 16:01

Hi, I am waiting for a lapo op for diagnosis hopefully for may or july.

I had a lapo op back in 2006 to remove cysts, Adhesions and was diagnosed with PCOS
They thought i might have had Endo then but they said it wasnt.

The pain I find is the worse when ovulating and first 2 days of period, I have to go to bed its that bad. My gyno has said she thinks it could be Endo, I just want a diagnosis so something can be done...

Vit B complex and Evening Primrose are meant to help the symptoms.

Painkillers over the counter dont seem to take any effect with me.
Ask your doc for Coedine this will take the edge of things.

mspotatochip · 22/04/2010 09:02

Its worth taking a look at this book www.amazon.co.uk/Endometriosis-Healing-Fertility-Through-Nutrition/dp/0007133103/ref=sr_1_4?ie=UTF8& s=books&qid=1271923129&sr=8-4

I honestly thought it was bollox but went gluten free as a test when dp had to (its easier if theres no yummy gluteny stuff in the house) and over a couple of months it had a huge effect.

High dose starflower oil /evening primrose oil also helps but takes at least three months to work.

These sort of "alternative" measures don't hurt but you cant beat a refferal to an endo specialist either. Twin track approach

curvey · 22/04/2010 22:14

You must get referred to an endo specialist.

I got referred to a gyno last Sept - had been suffering from severe pain every month during my period..nearly passing out each time with sudden excuriating pain, also puts me in bed as sleeping it off helps. Anyway went to hosp, had a scan where it was said I had endo, told must have a lapo otherwise it woudl spread to other organs which I did 10 days later...was very poorly for 2 weeks recovering, off work, 3 scars on tummy, pain in shoulders from gas for 5 days solid.

3 months later pain came back I was gutted!! Went to Dr and got referred back, whilst I was waiting for appt I looked at the endo uk site - it was an absolute relief to find people going through the same.

I posted on he forumn and asked if anyone knew of a speciialist in my area 3-4 people recommended the same consultant. I also looked on this site to find and search one www.drfosterhealth.co.uk/consultant-guide/

Rang my Dr and got him to re-refer to this particular Dr. Have seen him and I feel so relieved to talk to a Dr who knows everything about this disease, has given me other options, is easy to speak to and who listens. The lap I had last year was ok as it confirmed I did have endo but it wasnt removed just "washed out" and was a waste of time. I'd just wish gyno's who dont have the experience of dealing with this just said or referred you to someone who does...it saves time

I urge you to research a specialist and get your Dr to refer you. Also read this letter endoboard.yuku.com/topic/8155 it really opended my eyes and made me research more

Hope this helps

curvey · 22/04/2010 22:15

sorry try these links

endoboard.yuku.com/topic/8155

www.drfosterhealth.co.uk/consultant-guide/

debbsyandsonne · 25/04/2010 09:23

thanks all of you for your advice i will follow it up,joined the forum suggested and was a relief to know so many other people are like me.
am under Mr Misra at the north staffs hospital and he does seem very understanding and very knowledgeable and very clear on next steps being taken which should follow up in june/july
thanks again xx

OP posts:
curvey · 27/04/2010 22:00

how are you deb?

New posts on this thread. Refresh page
Swipe left for the next trending thread