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Stopping Citalopram - withdrawal symptoms - how long (ball park figure)?

193 replies

marthamoo · 27/07/2005 14:37

I've been on Citalopram (Cipramil) since ds2 was born - 3 and a half years - and it's taken me the last 18 months to wean off, I've found it very hard. I was on 10mgs (original dose 40mgs) every other day and I stopped altogether 5 days ago.

I'm suffering quite badly with feeling very dizzy, light-headed and spaced out. In fact, it seems to be getting worse rather than better. If anyone has experienced this, how long did it last?

I'm also a bit weepy and bad-tempered today but I'm hoping I can just put that down to PMT and school holidays.

OP posts:
allgonebellyup · 03/01/2008 18:55

i really dont know how to help you but wanted you to know your post had been read..

i am on ADs but have been unable to get my new prescription cos of new year so have been a week without my ADs, am having mad panic attacks and shaking, my heart is racing all the time, then feels like it may stop..really intense dreams and skaky hands.

Yours sound v severe seeing as you were only on 10mg. (i am on 50mg)

expatinscotland · 03/01/2008 18:57

thanks for the reminder to make my appointment for AD prescription renewal in a few weeks.

NO WAY i'm even close to coming off just now.

jackielancs · 08/02/2008 10:30

Hi

Has anybody got any recent experience of coming off citalopram?

I've been reducing my daily dose since beginning of January and as the withdrawals were so bad I've decided to go cold turkey and stopped taking it completely last weekend.

My withdrawal symptoms are that I am unable to sleep (but want to all the time), very irritable, feel spaced out and apathetic. I just feel like I want to be left alone and to take to my bed for a few weeks with no demands on me at all - yeah like that's gonna happen!!!

Jackie

Boofy · 10/03/2008 17:09

Hi,
It's great to find so many people to chat to. Have been off citalopram for one week.. cold turkey! What I thought was a bug, was actually copybook symptoms of withdrawal. The BMJ website is worth a look www.besttreatments.bmj.com/btuk/conditions/1666.html I've had raging headaches, dizziness and nausea which are reducing steadily over the past three days but are still occurring. I'm going to try very hard not to go back to a reducing dose of "C". Will keep you informed.

Cheers....

Hydee · 11/04/2008 20:35

Hi There I've been on citalopram for about 5 months now and really don't feel any different or as if its helping still getting so sad, lonely and basically head messed i was on 40mg i stopped taking them full stop about 4-5 days ago, i feel so crap I'm as dizzy as a kipper think im gonna pass out, mood swings are hurrendous tired all the time and really mad dreams at night, i feel sorry for my kids and husband as they are taking the brunt of it. is there anything i can do to feel better or basically is this cold turkey and how long will it last to get out of my system

many thanks

nana100 · 19/06/2008 00:19

hi fellow mums in need.this is first time i ever conversed on net.am slow to type but genuinely in need.am 12days into cold turkey off citalopram getting harder,wondering if anyone else withdrawn this way.had tried gradual reduction previously but didnt work for me.symtoms numerous and severe on this cold turkey.know why they call it that now as sitting here shivering covered in goose bumps.not sure how to insert exclamation mark there.wondering whether to give in and take 10 mgs to ease nausea and headache.there have been advantages to withdrawing tho as libido returned with a bang.hubby happy.lost some weight and motivated to do a little more than whilst on tabs.wont bore anyone with list of withdrawal smptoms but its almost intolerale.becoming social recluse.if anyone else has done this turkey thing then would really appreciate hearing about it.dont know if i can remain off it unless there some light at end of tunnel as am so uncharacteristically snarly with my lovely children.had been on alternative doses of 20 and 30 mgs for 18 months.if anyone can help or even respond that would be really great and the first time i will receive mail.with anticipation.....

MyRed · 05/07/2008 09:38

Hi there
I'm a newby to mumsnet.
I stopped taking Citalopram almost 2 weeks ago. I started taking 20mg in August last year. In February I went down to 10mg and then a couple of months ago went to 10 mg every other day. I then stopped. I started to experience effects within a few days. It started with feeling anxious, then horrible lethargic feeling and in the last week this strange woozy feeling in my eyes/head. So, I am feeling GREAT
I telephone my GP yesterday. Can't say I was keen to do this as I do have little faith. Anyway, I told her what was happening, expecting to receive some advice on withdrawal from Citalopram and the effects that I was having. No such luck, instead she suggested I go back on the Citalopram - 10mg!!!
I'm not sure what I will do, considering if I can to leave it a bit longer to see if the effects reduce.
Any advice would be greatly appreciated ....

nana100 · 05/07/2008 14:08

Hi MYRED sorry to hear your having a tough time, my name is Anna and I am now off them for 4 weeks and my advice is do not go back on the tablets. I have experienced the dizziness and have even had it this morning, but prior to that I am beginning to have a few good days. It is a roller coaster but you have to believe that your heading in the right direction a and keep going. The amount of energy that i have at this stage versus what i had whilst on the tablets is amazing. The doctors immediate advice to me when i was coming off was exactly the same, but i am so glad that I held out and have got to this stage. Keep up the good work and I am hear if you need me.
Anna

MyRed · 05/07/2008 21:21

Hello Anna
Your response brought tears to my eyes! Is this the withdrawal?!! Or is it that pretty much nobody else understands, unless they have/are experiencing the same? So, THANK YOU. You know what, I am going to try and see this out, I have to
I am grateful for your response
Suzanne

toddlerhip · 06/07/2008 00:26

I went mad with masses of exercise and filling up every spare minute of the day. Took me months, probably a year to get back to normal but preferred it to the drugs which made me worse. It was a manic time and very exhausting, but i did become a size 8 and superfit - no longer, sadly .

nana100 · 06/07/2008 23:25

hi suzanne.sorry about the tears but you are right it is withdrawal.i well up at anything and everything.knew i wasnt myself when i cried at footage of rooneys wedding.still feeling better than when on tabs.i slept every afternoon for 2 years had to stop driving any distance.am back at the gym trying to go back ti size 10 i was instead of size 16 i have become.its starting to work.do hang in there even when you think it would be easier to grab a tab.remember it would take 3 days to kick in anyway so there little benefit.it does get easier the more days you put between you and the last tab.stay resolute and strong and brave in those tough hours.onwards and upwards. anna.

toddlerhip · 06/07/2008 23:56

Hi again MyRed, For me distraction was the key, looking outwards, doing new things, anything to stop me thinking about myself and how i was feeling. But when you're paranoid, hiding under a hat and becoming agoraphobic it's no mean feat to walk out the house. And it is a full on method i.e. pretty exhausting when you probably already much energy. But exercise really does help. It doesn't mean you will suddenly stop feeling shit though. But distraction and exercise worked for me eventually.

I was only on citalopram for 4 months as i felt suicidal while on it. My physical symptoms from the depression were pretty distracting and unrelieved by citalopram. When i came off I just ignored them & eventually they went away. I was just relieved to get off the drugs so i didn't really care about withdrawal symptoms so it's not quite the same.

It wasn't an endorsed method, I found the medical establishment hopeless at dealing with depression. I spent a year feeling like a fish in a goldfish bowl until i walked away from them all & decided to try and deal with it myself. It still comes back but i think I've got better at shaking it off before it gets unbearable.

I think another thing is to say I'll just do this and then i'll let myself have a . Kind of babysteps then a reward. I found that quite incentivizing. If you manage to do things, you don't feel so useless, guilty etc...

Also, I found if i started crying about something ridiculous (have you seen that brilliant poem "I am unpicked by every wandering thing"), I would try to step outside yourself and say, this is silly, it isn't worth crying about, it isn't me, i'm not seeing things the way they really are, it's just how things are temporarily so i'm going to make a cup of tea and [do something distracting]. Again, it doesn't work 100% of the time, but you get better with practice. Also, stay well away from people who tell you to snap out of it. Hope some of this helps.
Good luck...

MyRed · 07/07/2008 11:28

Hi nana/toddlerhip
I'm really grateful for your advice - thank you.

I agree about the exercise and distraction. I recently started cycling, a couple of times a week, and I enjoy this, gives me a sense of achievement. Work, although really busy, also is a good distraction, until I get home and then I just want to go to bed, which with an 18 month old is impossible!

You both have a strong focus. It's a pity our health service can't promote this. I have such little faith in them, which is a shame.

Good to talk to you both

nana100 · 08/07/2008 00:35

hello fellow cold turkey ladies my red toddlerhip.it is so reassuring to know other people have similar thoughts experiences etc is poem you mention too long to type here toddlerhip? read a quirky poem myself in british library last week.poignant.sadly cant remember title,sure those tabs killed some of my brain cells.but last line was about slipping into idleness.feel like tabs made me slip into half awake coma.worked out today i had actually been on tabs 2 and half years.today had my weekly dose of stomach cramps ihad each week since stopping tabs.painful but i hope one step nearer to them being out of my system. anyway keep up the good work and hope you enjoying your 18 month old suzanne.my 3 children growing in the blink of an eye. i must shut up and go to bed! night.

toddlerhip · 08/07/2008 12:43

Was about 5 yrs ago so not sure i can find it. Books have not been sorted since we moved. Will keep an eye out when i get round to sorting them....

MyRed · 08/07/2008 14:45

nana - get to bed earlier!!

pandorasof · 09/07/2008 21:40

Hi... Oh no read these messages 3 hours too late! I've been cold turkey for 1 week and experiencing, exstream tiredness, dizzy, mood swings etc, its effecting everything in my life so today i reached for my last packet of pills and took one!!! Only 10mg, but what should i do?? Stay off or work through the pain? Only on them for 6 months, do they do 5mg pills? Why wasn't i warned about this withdrawal??

MyRed · 10/07/2008 20:23

Pandorasof
Don't think that you read these too late. You did what you felt was necessary. I can totally appreciate how debilitating it is coming off them. I was on them for 11 months and starting reducing in February, from 20mg to 10 mg (daily), then 10mg every other day. I'm not sure if they prescribe 5mg, I just felt it was the right time to give it a go and stop. I never thought it would be SO difficult coming off them. I've been off them almost 3 weeks now and I am still experiencing the effects (same as yours). Good days, bad days, depends what I'm doing too - distraction is the key, as toddlerhip has said previously. Take a day at a time and you will know in yourself what is the right thing to do. If I needed to go on them again I would, I think it's a very good and effective drug. Keep us updated, take care. xx

pandorasof · 11/07/2008 16:57

Thanks MyRed, I've been feeling guilty for going back to them after a week off, my Doctor wasn't much help just saying there is no side effect if i stay on them for longer?!?!? I've taken 10mg for the past 3 days and the dizziness has already gone but still feel very tired. I think i've decided to do 10mg one day then 5mg (by cutting them in half) the next for the rest of July, August 5mg a day then as the kids go back to school attempt 5mg every other day,slowly dropping more and more days!?!? Now if thats not slow enough i don't think i'll ever come off! I do agree with you it is an effective drug, it helped me when i needed it but i think i'd think twice about taking it again, as i didn't think it would be so hard to stop, or rather that i realise it would make me feel so physically ill to stop.

MyRed · 11/07/2008 21:19

Hi pandorasof
You have a plan - sounds good! I do wonder if I should have reduced further, in terms of the effects being less. I really hope this helps, like you say, can't get slower a reduction than that! GO FOR IT!

Hibbs · 17/07/2008 12:50

Hello

New to this but I am interested in the different stories so here's mine......

Been on Citalopram since October 2007 - first on 10mg then increased to 20mg daily. Much better now and discussed the option of coming off it with GP sometime soon. However fed up with my weight gain (i'm sure it is the citalopram as my exercise/diet have remained the same but i've put on at least 10lbs!) so decided to go cold turkey on Monday (14th).

So far, feel a bit rubbish - suffering from a little dizziness and nausea, especially when I get out of a chair. Also went for a run last evening and though I was going to faint! Have had the shivers a bit and feel as though I'm not able to tolerate things that irritate me quite as well as before. Managing to work ok - although my memory seems to fail me now and again! Been sleeping ok - no strange dreams or anything so far. I'm hoping that within 7-10 days these withdrawal symptoms should go - according to the leaflet this is about normal??

Has anyone found their withdrawal symptoms are improving yet? Would love to know how long it took as I really want to be off these tablets for good now without the hassle of a decreasing dose weaning off period.

Would appreciate any news!

MyRed · 18/07/2008 20:29

Hi Hibbs
Welcome.
I've been off Citalopram for almost 4 weeks now and today has been MY FIRST GOOD DAY! No lethargy, dizziness, and my anxiety/ability to tolerate has been much more stable. I'm hoping this is the way forward, I don't expect it to be great every day from now on, but here's hoping!
I have experienced everything you have said and going to work has been fine for me too, a positive distraction.
PLEASE don't base your withdrawal on mine though, I think it's a very individual thing, so you may benefit much earlier. I'm just so glad about today, a step at a time eh?
Really good to hear your 'story' too. Chatting on here and listening to people has really got me through it, as, let's be honest nobody else really knows what it's like unless they have experienced it themselves.
So, take it a day at a time, that's my advice, and if it get's tough try and take some time out, even if it's only half an hour! I have an 18 month old son and it felt impossible to do this. Me, hubby and son went to the seaside last Sunday and it did me the world of good to be somewhere I really enjoy.
Take care and keep us updated

Hibbs · 23/07/2008 12:47

Hi MyRed

Thanks for the message !

Well I only managed another day cold turkey and I really felt awful - even work bacame impossible so I ended up going back onto the 20mg for a couple of days. Since Monday i've been on 10mg and so far so good - just a bit of a headache but nothing too bad. I'm hoping to go down to 5mg next week and then stop - fingers crossed!

I can't believe how helpful this site has been - like you said, a step at a time and hearing from you has really helped.

I've planned a good dog walking session on Saturday to help keep me positive - and I have a lot of support from my hubby and work friends so I really hope I can get off of them and stay off - then hopefully my weight will go back to normal!! Did you find that your weight changed on the citalopram?

Hope you're ok and taking care

MyRed · 23/07/2008 19:55

Hi Hibbs
Good to hear from you, sorry to hear how crap you were feeling. What an impact they have eh? I think you did the right thing, only you know what's best.

A dog walk sounds good. We lost our dog, aged almost 10, a few months ago. He had cancer and lost the battle, but he was a fantastic dog and we really miss him. We walked all the time and took him everywhere with us. Still feel he is with us though at home - part of the family aren't they?

I had a good appetite before I started the Citalopram, a great one whilst on it and I still have! I've put more weight on in the last couple of months, which is a bit strange (not pregnant though .

Take care. xx

mummyrachael · 01/08/2008 23:06

Hi, this is the first time I have posted on here. Just looking for a bit of reassurance. I have been on citalopram since 2002 when I experienced panic attacks. I was finally diagnosed with anxiety/panic disorder and my citalopram was increased to 60mg!!!
During my pregnancy last year I reduced it down to 40mg, my doc thought it would be wise not to come off them while I was pregnant - and I am extremely lucky, I have such a beautiful, intelligent 8 month old son!
When my son was 8 weeks old, I started to experience extreme anxious thoughts and felt like I wanted to die, so my dose was upped to 60mg again! Felt much better, saw a psychologist and was really enjoying life... so much so that I would occasionally forget about taking my meds, so I was told by the doc to reduce to 40mg. well I have done this and I feel awful, anxiety returned with a vengence and I am feeling so spaced out.
I can't explain it exactly but my head (my thoughts) and my body feel like they are not connected. It's really scarey, I don't feel real and that makes me feel like I can't cope.. the tablets have made me forget who I am inside. God, I used to be so independent and outgoing before I started Citalopram! Anyone experienced similar feelings??