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Multiple Sclerosis and Sativex

10 replies

Dogandbone · 23/03/2010 17:07

The last trials seem to be going well, and afaik, it will be available here in July. I would love to know what any doctors think of it, I mean, will your average gp prescribe it? It has been successful in pain relief for cancer and with spasms in the case of ms. (Sativex is a cannabis-based drug, but with the trippy bits removed).

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sarah293 · 23/03/2010 17:08

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Dogandbone · 23/03/2010 17:20

Hi Riven, I thought it would interest you.
My understanding is that if things continue to go well, it should be up to your own gp whether or not to prescribe it and your gp will be fairly heavily influenced by the professional opinion of the consultant so I'd be making sure my consultant knew that I wanted it the moment it was legal. That is an unqualified opinion. The latest is on the company website and googelable. I know you will post a link to it if you think it's worth it.

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sarah293 · 23/03/2010 17:21

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itsmeitsmeolord · 23/03/2010 17:25

Is it better for a specific type of ms? Would be very interested to know, cousin has the worst kind of ms (can't remember the proper name for it) and is unable to even stand for short periods now.

It's progressed very fast. Would like to know if this could give him any comfort at all.

Dogandbone · 23/03/2010 17:30

Well, apparently, in clinical trials, it has shown promising results in the relief of spasticity , nerve pain, sleep and bladder symptoms. It is already used in Canada for the treatment of neuropathic pain in people with ms.

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Dogandbone · 23/03/2010 17:36

It does seem to be all claims to all men, frankly. I think the latest trial is of cancer sufferers.

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thelittlebluepills · 23/03/2010 19:30

when DH was diagnosed with MS everyone gave offers of help - a friend of ours gave him £100 worth of cannabis instead - it was so thoughtful! (if a little unlawful)

was a bit too strong though so hopefully the sativex will be more measured!

sarah293 · 24/03/2010 07:40

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cutulis · 19/04/2010 18:08

My GP has previously refused to monitor me on trials saying that that cannabis will "screw your (my) brain up".

I laughed and when he asked me why I reminded him that secondary progressive MS (the second most aggressive form?) my own body was doing a pretty good job of screwing my brain brain up all by itself. Even though my GP is a gentleman of colour I swear I saw him blush.

On a more serious note, I have tried the herbal stuff and it really does work. However, I don;t know the strength or source of the herbal stuff so am very reluctant to keep on using it.

When will Satavex be licenced in the UK? I want to go onto it as soon as possible because right now it feels as if someone is pouring acid all over my body and I cannot sleep.

Now that the drug has gone through trials and shown itself to be effective, when will NICE be in a position to licence it? Can politicians intervene in what is essentially a medical decision?

Please help

BelleDeChocolateFluffyBunny · 19/04/2010 18:10

What sort of pain is it for? I just feel like I'm burning or have gone OTT with the deep heat spray.

I'd rather have something to help me concentrate though.

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