I have had M.E./CFS for about 8/9 years. I generally manage it pretty well after lots of practice and I am careful not to over do it, especially as I have a 2 year old toddler to look after as well.
Last year I was anemic which was found by accident as I put the fact that I was feeling crappy down to the M.E. I had more blood test after my iron levels went up and they were coming back down again after having stopped to tablets. Due to have more blood tests next week as I suspect I am anemic again as I am feeling really really crappy. Achy, headaches, no energy etc but I think it is slightly different from the M.E.
My question is, when people with M.E. have a bad period, does it make you less tolerant? I have found lately that I am reluctant to want any changes to things. For example, a new mum has joined out toddler group and has become friends with both sets of my friends, so now she is everywhere I am, which I don't mind as I do like her. But there are times when I want to talk to my friends about how I'm feeling and stuff and I never can get them on their own IYSWIM. I feel really bad for thinking it but I just want things back to the way there were. I always go to (who I consider my closest friend) on a Monday and now this new friend comes as well after her other toddler group (which she is also trying to get us to go to, I just don't have the energy and the times don't fit in with my strict daily routine). Last week there were 5 adults and 8 toddlers at my friends house and it was bloody awful. I couldn't deal with the noise, I already had a headache and found it very very stressful. I long for the days when it was just me, my friend whose house it is and another friend who used to come but hasn't been around that much lately.
Now I have suggested to my closest friend about our familes and our other friend about going out for the day soon. Great, she is up for that, but she suggested inviting the new mum along too (whose DH doesn't like mixing with other familes on days out), so I feel like I have also had to invite my other friends too, so there is a possible 7 families going on this day out when I wanted it to be 3 possibly 4. I am finding it really stressful to be around this many people atm.
Also we went out a couple of weeks ago. Sitting in the pub having a few drinks and chatting were fine, but then we went to this club and I found it totally horrendous. I couldn't talk to anyone as I have tinnitus too and I can't hear anything with that much noise around. I didn't like the fact that there were so many people around and I ended up going home as I couldn't handle it.
Is this just me being a miserable cow or do others feel like they can't handle all the crowds/noise and just like it calm with a few friends and their families? At the moment I am hating any sort of change and its just making me feel even more crappy (something on which my closest friend has noticed but I don't like to say that I only want to see her with a couple of others, not everyone and anyone).