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Worried about DS - please help!

22 replies

charleepeters · 08/07/2005 21:28

As some of you may remeber a while ago i posted about DS - i tripped with him in my arms and he got shocked and stopped breathing - cant find thread but thats the basic theory.

Anyway today he has done it again - he was sitting on DP's knee whinging becasue i was getting a bottle not crying just moaning - then all of a sudden he let out a scream and then started struggling to breath he was thrying to breath in but couldnt seem to breath out - i dont know why he did it - he puffed up and went really pale, his eyes were all glasy and he was just staring at me. i panicked and though i hate to say it the only way i could get him breathing was to slap him on the back then he started crying. hes benn absolutly fine ever since - but obviously i cant stop checking him every 5 mins to make sure hes ok.

basicly what i want to know is.

  1. Why is he doing it?
  2. What do i do to get him to breath again when he does.

It's the scariest thing in the world - i used to do it as a baby but i was very undeveloped at birth so that was why - DS wasnt he has always been reasonably health except a dairy intolerence and he get every cold/infection going but nothing serious - please help!

OP posts:
lemonice · 08/07/2005 21:34

It could very slight possibility be something like this Arrythmia

I'm sure dd1 had it as it occurred after trauma but as you can see from this thread we never worked it out when she was wee...

Heathcliffscathy · 08/07/2005 21:36

oh charlee, no advice but hoping you get the kind of support that you've shown me on my penis thread....thank you

lemonice · 08/07/2005 21:37

Sorry my post was a bit confusing the particular reference is Reflex Anoxic Seizure

charleepeters · 08/07/2005 21:43

Thank you for replying - this as you can imagine scared the s**t out of me especially when its hard to get him tostart breathig again - the first time was different thought he wentblue and was blatenly holding his breath - this time he was obviously trying to breath but couldnt IKWIM.

Whilst i think of it does anyone know where i can sign up for a first aid course?

OP posts:
charleepeters · 08/07/2005 22:03

Anyone esle have any experience - advice please??

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KatyMac · 08/07/2005 22:06

St johns ambulance for first aid - might be best to google FA & your area

Hope you get it sorted

starlover · 08/07/2005 22:09

CP... it may be nothing. babies do this. sometimes they start crying (ie one scream) and then take in SUCH a big breath for the next one and it seems like eternity before they breath out again!

a little girl did it at bumps and babes the other day and we were all sat there expectantly waiting for this wail.... and waiting... and then finally it came!

it's by no means the first time i've seen this... i am sure other people will have seen their kids do it as well...

charleepeters · 08/07/2005 22:12

Thanks Star (you always seem to be here to prop me up![smile) It was just so scary it was if he was trying so damn hard to breath - the worst thing is he looked so scared and there seemed to be naff all i could do - im knackered but i dont want to sleep incase he does it again and im not awake to help him - i sound pathetic i know but i just freaked out i was holdinghim as he was so floppy blowing in his face and patting his back, screaming at dp!

OP posts:
lemonice · 08/07/2005 22:12

If it is the same as I posted, we found that although it was alarming she recovered spontaneously but we did use rescue remedy but i'm not sure waht age you can use it from...

charleepeters · 08/07/2005 22:14

what was this lemonice - do you think its worth taking him to the h/v just to talk about it and see what she says. is there anything in particular i can do to help him start breathing again when he does it - i cant just sit there and watch my baby not breath as im sure you know its so scary

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starlover · 08/07/2005 22:20

that's cos i spend my entire waking life here cp!

i think you should probably speak to HV to put your mind at rest. i really think it's one of those things that babies do... but definitely get it checked just in case!

they do like to scare us don't they?

lemonice · 08/07/2005 22:25

Sorry Charlee...

Dd used to react to a sudden painful event by lsong consciousness/blueness..the characteristic being usually a blow to the stomach ie falling on the corner of a bedpost or something or knocking her head, being hit in a game. She would flop and have a glassy look but within a brief time recover.

This was quite different from the child falls bumps hard on the ground and takes a second or two to scream.

We also had some where she appeared unconscious for a while but still spontaneously recovered.

This happened often until about age 19 or so when it seems to have stopped.

The thread i posted on last year was started by someone who is very familiar with arrythmias to which this complaint is apparently related but seems quite benign.

I never understood what it could be until recently so for us it was a nuisance rather than a drama but we did have to alert others to it so that they were prepared.

But I may be barking up the wrong tree with your ds as he could either just be breath holding which is commonplace or have the same as my dd or it could be something else.

charleepeters · 08/07/2005 22:29

Thanks girls - i think i will talk to healt visitor on tuesday just for reassurence and ways to help him recover his breathing.

the forst time he did it - it was blatent shock he went blue and puffy because although he hadnt hit the floor or got hurt he had shocked himself.

this time it deffantly wasnt breath holding it was different he was trying so hard to breath - he could take sharp breaths in after about 30 secs or so but couldnt breath out like an asthmas attack for anyone who had one. he looked dead white as a sheet glassy eyed and like a rag doll. but thanks will post when i have spoken to h.v

OP posts:
nannyjo · 08/07/2005 22:32

if they stop breathing then i was told to gently blow into their mouth to get them breathing again.

charleepeters · 08/07/2005 22:33

Thanks Nannyjo - i was just blowing great big gusts in his face - come to think of it that probably didnt help

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nannyjo · 08/07/2005 22:35

must be scarey. i was reading your description of what he does with tears in my eyes cos it sounded awful for you. I knew a boy that did it and i was told it could be an attention thing and they always know how far they can go before they give in but i think your DS is 10 months old so not sure if that thoery is right there.

Good luck, try to relax or you'll end up a wreck with it, easier said then done though i'm sure.

Aimsmum · 08/07/2005 22:36

Message withdrawn

charleepeters · 08/07/2005 22:38

He probably did come round quickly but it seemed at the time to take forever! he took about 30 -45 sec to breath again and to actually move - but i dont think its the same thing as you guys as he was fighting to breath when he came round if you know what i mean. hard to explain but i now have 100 grey hairs

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Aimsmum · 08/07/2005 22:48

Message withdrawn

lemonice · 08/07/2005 22:54

I am extremely cautious about anything which might be of medical concern but if he seems fine either side of the event then it is probably nothing to worry about, by fine i mean he doesn't have a temperature, is eating, normal nappies activity level etc.

Ask your health visitor or gp.

Dd episodes were worrying, we even took her to casualty but in her particular case there was no diagnosis because the event had passed swiftly. As it did on each occasion but like you i found it frightening and inexplicable at the time.

xxx

butterflymum · 25/10/2005 09:46

Hello charleepeters.

Hope you do not mind me bringing this thread up again but I missed it when you first posted in the summer (our nine weeks school holidays had already started and my computer time was very much shortened !).

Just wanted to ask how things are with your son. Has he had any further episodes?

My interest is because my now 6yr old has suffered from RAS (mentioned by lemonice as a possibility for your son)since a few days old and I am a supporter of the STARS charity. I know from personal experience how difficult it can be in some health areas to gain a diagnosis (ours took three years), although this is now changing, and how easy it is for health professionals unfamiliar with such a condition to pass it off as breath holding or in some cases mistake it for epilepsy. As others have said, RAS may not be what has caused your sons episodes but what you have described sounds all too familiar to me.

butterfly

butterflymum · 25/10/2005 09:47

Oops, forgot to give you a link to STARS .

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