Anyone with Multiple Sclerosis have any experience with DMD's?

[bebejones]

Have just been approved for interferon treatment for my MS. Was diagnosed Jan this year & had 2 fairly serios relapses this year requiring steroid treatment. I am having another MRI in a few weeks (waiting for appointment) to assess whether I have the more rapid type of RRMS (can't think what it is called but is the more active type, not Progressive type).

I have read all the stuff online that the consultant suggested & I am seeing my specialist nurse next week. I am to make a decision between Avonex, Rebif & Betaferon. I am in such a dilema. DH thinks we should wait to see how active my MS is after the MRI. Which I am inclined to agree with at the moment.

I also would desperately love to have another DC this year (I have a DD who is 16months). I know I have to not be taking the interferons for 3months before TTC. DH and I had discussed TTC May/June time which would mean stopping Feb/March time so seems pointless starting now IYSWIM. Trouble is this has all put alot more doubts in DH's mind about having any more DC's. The whole thing seems a bit swings and roundabouts to me!

Does anyone have any experience of any of the drugs I mentioned? Or any other thoughts/advice? I am completely torn on all aspects of this & the more 'information' I read the more doubts & questions I have!

bumping for you; you might find the MS society has a forum where you could ask this too.

Thanks NumptyMum, did think about that as well, but also need a mums opinion on this as having DC's with this is a big factor!

My dh was diagnosed with MS about 3 years ago, and had a bad relapse in the summer, with major dosage of steriods and the nasty side effects which he'd never experienced. He is probably ahead of you by 2 months in his decision making, after having had the MRI, the specialist nurse, and finally his consultant about 3 weeks ago. He was given the info about the drugs, and like you we did some on-line research as to the choices etc.

Long story cut short- he is not going to be taken any of the drugs on offer after talking it through with his consultant- who is the top guy so knows his stuff. All the injections daily/ weekly/ monthly we could have handled, but it was put to dh that the time span before another relapse is 'expected' (I know can't be predicted) v the side effects of the drugs, is not particularly worth it. Hopefully he won't have another relapse for a good while as he is otherwise fighting fit.

I know it's not really the same as he's a man, and not doing the any more children thing( we have 2) but wanted to support you and your dh in this tough time.

You might find there are Mums on their forum - I work for Arthritis Care and our forum has quite a few people who are in similar situation (but with arthritis, obviously), who offer each other advice and support.

Here's hoping someone else comes along with more insight...