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Autism - any input appreciated

58 replies

HappyMumof2 · 20/06/2005 13:23

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Davros · 21/06/2005 10:30

Autism CAN be diagnosed this young and there are benefits, as others have said. My DS was formally diagnosed at 2 years old and it had been apparent that he had "strange" behaviour for a LOT longer than that. By the time he was 2yrs5mos we were running a fulltime ABA prog and, given that it takes time to set up, that is pretty early and definitely a benefit to early dx. It doesn't have to be an ABA prog of course, it can be extra support in nursery, being taken seriously and given strategies and support at home etc, being able to explain to other people why it is important to behave in a certain way with her including what works and what doesn't and with proper back up to what you are saying.
I agree though, maybe mention the lack of pointing and delayed language as a starter, somehow speech therapy is a lot less scary than many other things but can get things started.

HappyMumof2 · 21/06/2005 12:28

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Jimjams · 21/06/2005 14:45

if mum is interested recommend soomething like the "it takes 2 to talk" book (hanen programme)- that's good for any speech delay (and autism). trying to get her child to talk will turn her off even mpore

lots of hanen stuff here

HappyMumof2 · 21/06/2005 16:20

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jambo1707 · 21/06/2005 16:38

Loobie may be able to help also on this one if she about!!!!!!!

She is a walking book of knowledge

Arent you hun???????

p.s hope you dont mind loobie

Socci · 21/06/2005 16:40

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HappyMumof2 · 21/06/2005 19:50

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Jimjams · 21/06/2005 20:22

there's lots that can be done, but I think to be effective they need guidance from a professional who knows the child. I know from experience how hard it is to do alone.

However the hanen stuff is all good, and easy to implement (I suspect the books are easy to follow as well). things like reduce your language, don't use negatives, tell her what you want her to do. So for example if you want her to go to lunch say "name lunch", then "name sit on seat" (or even just sit). That will help.

clenched fists can be a sign of very sensitive hands. Things like stroking her hands with different materials or using a massager on them can help.

Where (roughy) in the UK are you?

HappyMumof2 · 21/06/2005 20:27

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Jimjams · 21/06/2005 20:31

lots of access to things if the parents can pay then. If you;'d been near me I would have offered to meet (not to disciss the girl - think that would be unethical, but to show you the sorts of things we did with ds1 when he was younger).

This little girl has touched a real chord with me- she sounds like ds1 as a baby/toddler. And I feel for the mum as she sounds like me when he was 20 months.

HappyMumof2 · 21/06/2005 20:34

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Socci · 21/06/2005 20:37

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HappyMumof2 · 21/06/2005 20:52

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Jimjams · 21/06/2005 21:12

The 4th post on the thread (from Jayzmummy) is the CHAT TEST.

ABA stands for applied behaviour analysis. it's an effective teaching method for autistic children (and other SN).

have to say that if ds3 had any signs of autism I would just start an ABA programme as early as possible and remortgage the house (actually thinking about it we're mortgaged up to the hilt anyway- but just be even more mortgaged). But as Socci says its not for everyone and is hard work to implement.

HappyMumof2 · 21/06/2005 21:29

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Socci · 21/06/2005 23:28

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HappyMumof2 · 22/06/2005 07:11

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Socci · 22/06/2005 08:41

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Jimjams · 22/06/2005 09:10

Worth mentioning you can run ABA on a smaller scale though. I rejected ABA initially as there was no way we could afford the 20-30 thousand a year it costs to run a programme. What I didn't realise is that it could be run part time. We now have a (very very good- very experienced- we're very lucky) tutor who comes on Saturdays. We started that because ds1 was in mainstream school and basically being babysat with no intervention.

Now he is special school and receiving appropriate education he is just changing and blossoming. We still do ABA, but I think when our tutor leaves us we probably won't replace her as he's getting so much input during the week.

As Socci says you are on your own with an autitic child. I suspected autism at 17 months. At 3 and a bit we started to get one hour a week of portage. The NHS has provided about 8 sessions of speech therapy. Now he's in special school he gets a lot of therappy and intervention- but he was almost 6 before he got there- if he'd had this much input 3 years ago.....

We've paid for private SALT, 2 PECS courses. BIBIC, part time ABA, private specialist appointments to try and get a diagnosis. And we never had the money to do anything properly as such.

It's a bloody joke- which I why I always say be careful about saying too much unless the parents are very tuned into the type of problem that may be going on. Otherwise you push them into a situation where there'll be no support and no help, and just a horrible gnawing anxiey with no answers, just waiting lists and "oh wait until she's 3". It's criminal and unecessary. These children should be flagged at 18 months.

Jimjams · 22/06/2005 09:23

the other ABA factor is dx. We thought about ABA when ds1 had just turned 2, but then he was assessed (by NHS specialist SALT- specialist my arse!) and I was told that he "definitelky isn't" autistic and he was dxed with mild language delay. He's severely autistic FFS and the fact that he can make eye contact and is affectionate doesn't alter that. My 5 month old learns by imitation and is developmentally where he should be with pointing (reaching). Quite how they missed that when ds1 was 2 I don't know. grrrrrrr

Socci · 22/06/2005 12:05

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Socci · 22/06/2005 12:12

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HappyMumof2 · 22/06/2005 13:06

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Socci · 22/06/2005 13:11

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coppertop · 22/06/2005 13:15

Ds1 is always finding something to giggle about - particularly silly stuff that involves the word "pants" in it somewhere! His teacher has told me that she loves the way he giggles at her jokes.

Ds2 laughs a lot when being tickled or if someone pulls funny faces at him. It's one of those little laughs that's infectious and has everyone around him joining in.