waiting for op and also biopsy results and just want to talk

[justwanttotalk]

I've had a huge multitude of health problems gradually getting much worse over the last year so I've been seen a lot by doctors. I'm a long time poster but now frequent name changer so if you recognise some of the details please just let it be.

In a small nutshell I have a really terrible immune system, lots of random bleeding, heavy bleeding after sex for around 24 hrs, lots of pain in abdomen and lower to middle back, recurrent skin infections either soft tissue or fungal in my groin, lots of clear dishcharge etc etc

I just had an internal scan and it was found I have a really large cervical erosion which bled badly while being examined so I'm booked in for a week & a bit to have that sorted out with an anaesthetic & cauterizing it. Also while the scan was being done the doctor saw some dodgy looking tissue and decided on the spot to do a biopsy on it so I'm waiting on that too, results again within 2 weeks.

I guess what I want to talk about is that I've had a feeling there was somethingquite wrong for a long while now, and no one I know will talk to me about it. My DH acts like I'm ridiculous for even considering the biopsy may come back showing cancerous cells and that really hurts my feelings. Its done in quite a patronising way and while I know it is because HE doesnt want to contemplate it, I need to have someone who will just be in reality with me for 10 minutes. My sister just sent me and email that said "I'm sure it'll be fine, keep me posted." My Mum said "yeah, female plumbing's a bitch"

But for me, I'm in regular pain and bleeding every other day and dealing with the painful skin infections in my groin etc and thinking, that doctor said he wasnt going to do a biopsy. THEN he went in with the scan and saw this white area on the screen and decided to do a biopsy. So that worries me, yes! And I just want to talk about it. But no one will. I'm know it is unlikely to be cancer but not being able to voice it with some sympathetic listeners is making me feel worse.

i have just had the LLETZ treatment and bits came away for 6 weeks.It was a horrible colour,occasionally seemed smelly and looked horrible. When they re-examined me...it looked awful on the screen,it was all black and gooey...yuk.Had a few really heavy bleeding episodes after LLETZ too.And i mean heavy...had to be hospitalised in the end.

What groin infections have you been getting and what treatment?

Black blood is better than red!
Your bleeding post sex is due to your cervical erosion which is common.

Have you had it confirmed about your immune system
What do you think you have ?

Warning, TMI

At the moment my blood is coming out very heavy, the consistency of heavy discharge but either proper blood red or a pooy colour. And I am in so much pain, lower back & sides.

I have had it confirmed I have a compromised/low immune system and that it could be related to the erosion. The groin infections, only went to the doctor for one of them as to be honest I just put up with it. They are like fungal or soft tissue infections, the skin goes red, very raw, puffy and painful. Needs a lot of clean water and airing out to heal.

I think... I think I have cancer. But I will of course not totally think that til I am told. But I am expecting that. I feel absolutely rottingly tired and unwell to the core of me.

you sound as if you have a pelvic infection.You dont have an IUD in place do you.

Does it just heal with airing or do you have treatment for the manky skin.

It is rare for them to relate low immunity to a cervical erosion as IgG and IgM would only gve them a broad idea of immune problems.

No I dont have an IUD. I have had treatment for the skin before, it was treatment for a soft tissue infection. Pills and a cream. After that when I get it I just wait til it goes on its own, usually takes up to a week.

If I were you I would be thinking the cancer thing too to be honest.

I would maybe go and talk to the gp - and say what you are thinking. Get him to explain what happens if it is cancer. Things tend to move quite quickly once you have a diagnosis - and now you have had a biopsy taken then at least you are in the system if you see what I mean.

It might be worth finding out if there is any chance of getting the biopsy results sooner (it took a few days with my mum).

And maybe find out if there is anything to take to help you feel better. Eg you must be losing a lot of iron - can they prescribe anything to help that side of things.

I know the specialist is treating it but no reason you can't go to the gp to get explanations.

the gp might talk to you about your fears,but it would be wrong of him to talk about WHAT IFS....doctors only tend to deal with the real deal...it is not good to talk about the what ifs...but it is ok to to deal with the obvious depression you are feeling.

I still think you may have a pelvic infection.

The skin problems clearing up on their own is a positive thing..it means your own system is dealing with it without creams and potions....try to be more optimisitic as depression lowers your immune system.I know its hard,ive been there myself.

As I only have to wait til Friday to see the specialist I am just going to do that. I phoned the GP today and they just said to discuss it with the specialist Friday. I just wish it was Friday now. Or even 2 weeks after Friday so any potential results from that day are back! I just want to know. It is true that waiting to find out is the worst bit.

i know...i waited 3 years for a final diagnosis...i kept thinking the same thing as you...the big C. Doctors and consultants alike,didnt know what i had,until i did some research myself, as i wsa totally desperate. I then asked them to do a specific blood test and guess what, it came back positive.
It was a virus that had affected my immune system chronically and got into my bone marrow,with the potetial side effect of causing leukaemia. I was not happy that 3 years of tests brought no answers. I was beside myself with worry,stress,illness...so i do know how you are feeling.

Hi JWTT. Any news? Hope all ok.

Thinking of you x

When someone is sick, one of the hardest thing to deal with can be the reactions of people around them. Some you expect to be there won't, but others unexpectedly will. I think people being crap can be because they care too much, and are struggling to process everything themselves. They love you to bits and are scared themselves. But on the other hand, you are the person going through this. Sometimes it can be good to get support outside of your immediate circle so that the person can focus on you, not how they feel about the possibility of you being sick.

I've supported my BF and mother through cancer diagnoses and treatment. I found my pals didn't even know how to support me through this process, particularly when things were going badly. They just ignored it, didn't mention it or this huge thing I was going through. They were relentlessly optimistic, even when that was not appropriate. Which made me feel both guilty and very alone. People don't know what to say, so they say nothing, which can make you feel that they don't care when really they do.

Remember cancer is just the name for a group of diseases, which vary hugely in their outcome. Deal with one step at a time. Your Dr did the right thing in doing a biopsy, he is being conservative- the best approach.

I have my fingers crossed for a good outcome for you- and an improvement in how you feel.