Are Bronchiectasis & Bronchiectsis different conditions or just bad spelling?

[Katymac]

Please; I would appreciate any help

Pretty good actually

He might be out on Friday afternoon, if he only has 3 or 4 chest infections in the next year - I don't think they will treat the mycobacterium

katymac - i'm also a respiratory physio!

2 tips for him - if he finds the "huffing" technique too tricky he could try a gentler technique called autogenic drainage. Its also tricky the first couple of times but is much gentler and can be done anywhere as you do it in a sitting position.

Also even though he may not feel like it all the time he needs to exercise on most days of the week for about 20 - 30 mins. To some patients this seems like too much but its really effective in clearing the phlegm. Even walking would be good.

You should be able to attend his physio appointments with him - we saw loads of family memebers and it was always more help to have them there to reinforce the advice.

He only gets Physio while in hospital (last July & now) I can't get to the hospital as it is too far away

When he is well he plays short tennis twice a week, he is a dance teacher & takes lessons twice a week. He also does the school run twice a day.

The problem is when he is poorly - as he ends up in bed

if he sees the respiratory consultant he shoudl be able to ask for an outpatient referral to the local physio - most departments offer a service - he may only be seen a few times but it would give him a chance to speak to someone when he's well.

Is that his consultant (Dr Barker at Papworth?)

whoever he sees for his bronchiectasis!

He doesn't seem to see anyone twice

We saw Dr Barker last year when he was in hospital & again this year - but all his other appointments have been different people

Ah well never mind I'm sure it will sort out

BTW the physio says his mucus isn't sticky enough for a flutter

Hi Katymac.
I also have bronchiectasis and like oxcat am on daily antibiotic treatment plus physio, inhalers and more drugs. With the physio, I have found a device called an acapella really good, easier for me than the flutter. I am also being taught autogenic physio by my respiratory physio to see if that helps.
It's a frustrating disease, it's so rare it's hard to get answers at times. I'm on a really good support website which has loads of fantasitc information - check it out: www.bronchiectasis.info
Any questions I would be happy to answer. The number of infections issue is changeable, the condition can be mild, moderate or severe. Mine is severe cystic bronchiectasis and I usually get at least one infection per month, often 2 in the winter or just ongoing, so it is possible to have that many. I can't work but do have a better quality of life since diagnosis and use of physio etc, so do push for the CT etc. Good luck

Sorry what is the CT? I am getting confused

Thanks for the info - DH has been unable to work since 93 - but he had treatment up until Feb 2008 just for asthma

Thanks for the website - I'll have a look after work

he might not see the same doc every time but he will be under the care of a consultant for his bronchiectasis - maybe this dr baker! but when he goes to the clinic he will see one of dr baker's team (and they change every 6 months or so). So it doesnt matter who he sees at the chest clinic he can ask for a referral to OP physio.

A CT is a scan which allows them to indentify the areas of the lungs affected by the bronchiectasis.

Oh sorry Of course CT scans - he has lots of those

Oh sorry Katymac, serves me right for skim reading.
Similarly to your dh, I also was only on asthma treatment up til about 4 years ago when formally dx'd with bronch due to a CT scan. Sorry to hear he's also not been able to work in so long. does he get DLA/IB?
Take care.

DH is home - at 4:10 - hospital car home

DD is over the moon