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Remember those threads I started a while back about pins & needles/numb face/jelly legs? Neurologist said it was migraines? Well, had the MRI results today, do I have to tell people? Work??

42 replies

FluffyBunnyGoneBad · 01/07/2009 22:13

My mum's a tad on the sensitive/overreacting type, the course leader's the annoying/OTT/'you can't have time off unless you are dead' type. I'm not into pitty. Do I have to tell them?

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wrinklytum · 01/07/2009 23:20

Oh Fluffy,I am so sorry

Could you see occy health?Also your degree supervisor.?

I think that would be your first port of call.

You need some time off atm,you really do,just to get your head round stuff.xxx

My personal experience of nhs occy health has been good,they sanctioned leave for me for 6 months ostensibly on "stress leave"when my dp becme incapacitated and were generally very supportive.

At the moment your health is the priority,I have a colleague who had a disabling condition who was supported at work by them reducing her hours,it doesn't necessarily mean you will have to jack your course...I had always been a bit wary of occ health but they have proven to be very supportive.

FluffyBunnyGoneBad · 01/07/2009 23:23

Thanks Milliways. The waiting's hard, you do tend to concentrate on the symptoms more. I found going to a chiropractor helped with the odd symptoms, do remember that there are alot of things that can cause your symptoms aswell. It's not a long wait here for an appointment, about 3 weeks. I really do hope yours gets sorted out soon, it's really stressful waiting.

I have emailed you thumb

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FluffyBunnyGoneBad · 01/07/2009 23:26

I've almost finished the year wrinkly, one exam tomorrow (great timing!), one next week and a piece of coursework. It didn't shock me to be honest. I may have a chat with an approachable tutor and see what he says before I do anything else. There's no degree supervisor, most of the tutor's are under the course leader's thumb, you email them, they send her a copy

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thumbwitch · 01/07/2009 23:37

replied to your email fluffy - 1st instalment, anyway!

FluffyBunnyGoneBad · 01/07/2009 23:38

Thankyou. I owe you a bottle of wine!

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thumbwitch · 01/07/2009 23:41

nae bother - it allows me to exercise my instructive side!

wrinklytum · 01/07/2009 23:42

Re your mum,she may suprise you.Mine is a stubborn old bugger,has chronic health issues of her own,very much a "Get on with i tand deal with it" stiff upper lip person,but she has really come through with dp and dd being ill and helps out when she can even though she lives away.I think if you feel yiou can you should tell her.She may suprise you.

jasper · 01/07/2009 23:45

Fluffy my dearest friend was in exactly your position 20 years ago when diagnosed.

I was the only other person who knew. DF decided to tell NOONE, and particularly did not want family to find out .

The secret was maintained for about 5 years until a medical person completely by accident told DFs sister (asked how DF was coping with the condition - sister said "What condition?" )

Beanie4 · 01/07/2009 23:50

I was diagnosed with MS in 1997 so Im sure you are in shock like I was. If it helps, talk to friends if you want but I dont think you have to tell work if you dont want to. If it gives you a bit of comfort, I havent had any relapses since 2003 and have felt well since then. I was very unwell around the time of diagnosis obviously, but it wasnt all downhill from there. Nobody would know that I have it unless I said something and hopefully you will find that you have a mild form too.

FluffyBunnyGoneBad · 01/07/2009 23:51

My mum has mental health problems so I'm guessing it won't go down too well. My sister does know I was having tests, as the neurologist said it was a migraine. I'll have to have a think.

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FluffyBunnyGoneBad · 01/07/2009 23:59

That's really good Beanie. I've got to have a lumbar puncture. I'm feeling really well at the moment (apart from the bouts of tiredness and the really annoying memory problems). It's different for everyone. It's good that I got better from last time.

It's really good that you are well

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Pheebe · 02/07/2009 07:19

Fluffy, you seem really well informed about your illness. My dearest and oldest friend also has MS and I remember vivdly the day she told me, I literally broke down but once the dust settles it is, for most people, such a insidious illness that most of the time we all forget it. I would encourage you to at least tell your sister even if you don't think your mum is up to hearing the news. Having emotional support is so important.

Also I think someone mentioned anti-discrimination laws, not sure how they apply to uni course in a legal sense but I don't beleive they can 'throw you off' the course unless there is a possibility of you putting someone else in danger, which I think they'd have to prove. You may also need to inform DVLA if you drive. It does not mean you will automatically loose your license (my friend still has hers 15 years after diagnosis) but your insurance may be invalid if you don't.

Bumperlicioso · 02/07/2009 07:42

Hello Fluffy, sorry to hear about the results but you sound like a very sensible person and completely able to cope.

I hope you get things figured out with you course. I'm sure you are protected somehow but they can make your life difficult can't they?

mum2RandR · 02/07/2009 08:03

Hi FluffyBunny hope you are ok. About 6 years ago I had two episodes of double vision and the doctors wanted me to have a MRI to check for MS.
They found a lesion (1 I think) and told me that I could have MS but also might not, might just be something that I have on my brain for no particular reason.
I decided against having a lumbar puncture as I hadnt had any other MS symptoms and to be honest I dont no how I would have handled getting a diagnoses of MS.
I havent had anymore symptoms or double vision so still dont no if I have it or not, just trying to focus on my life and not think about it until I might have to.
Just wanted to wish you luck on your decisions and hope you find the solution thats right for you.

FluffyBunnyGoneBad · 05/07/2009 15:41

Thankyou all.
How do you know if you are getting ill with this and you are not just having another strange symptom?

I have told the Uni, not much sympathy from them. I was still expected to complete work on time (two days later!). I've heard nothing from them.

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lil · 06/07/2009 18:21

I read your last thread just yesterday as I was having similar symptoms and it cheered me up and stopped me worrying but now.... am so sorry this is the diagnosis. But looking back at your thread it just validates everything I hear about chiropracteurs ie they are shysters who use pseudo science. He /she convinced you it was trapped nerve etc and it wasn't.

At least your doc learnt from it. What did the chiropracteur say?

sarah293 · 06/07/2009 18:25

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