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Continued support for SPHINCTER INJURIES, FISTULAE and other CHILDBIRTH INJURIES - the Ragged Bits Thread

952 replies

Jacksmama · 22/06/2009 20:12

Hi all,
old thread here.

Cyee started this thread in May 2008 after her op, and it's been a haven of support for so many of us who have injuries to our bits from childbirth. Especially with respect to sphincter injuries, fistulae and incontinence after childbirth, there seems to be such a lack of support for women, and the entire subject seems to be taboo. It's as if most MD's think that "a certain amount of damage is to be expected after birth and you just have to live with it". Well, that is simply not the case - and this attitude is unacceptable.

There are all kinds of Ragged Bits stories on this thread. Be aware that THERE IS NO "TMI" HERE - this is the one place where you can spill it all. If you read through the old thread, which is nearly full, you'll see that someone, somewhere, has probably experienced it - whatever it is! So don't be embarrassed or ashamed... we'll tell our poo stories if you'll tell yours.

And also - there are success stories here. Several of us who have been through the medical mill have been successfully "repaired" and are "fully functional", so to speak or even expecting again. In those cases, please join us for Pervwatch - the "after action" report for anyone who is once again venturing into marital relations!

Welcome everyone. We're sorry you had to find us, but we're glad you're here.

OP posts:
Jacksmania · 21/07/2011 23:15

Soapy it sounds to me like you may have PTSD or at the very least PND. Can you go see your GP and tell him/her exactly how you feel? Print out your post on this thread and hand it to him. You need some more help than you're getting, which sounds like exactly none at all. Have you got any friends you can talk to?
((((HUG))))

(I may not be online much for the next two weeks, we are going on holiday and I'm not counting on internet access - hopefully some of the other lovely folks from this thread will be around.)

soapy4 · 22/07/2011 06:41

Hi,

I hav no family the word is a joke they fone me wen mum complains about me etc im still left to care for my mum????? my hubby goes up with money etc for her as I look after it and anything else I told my sibblings from sept we will not b anymore doin it my hubby is also a carer we care alone.

And I hav no support at all and made to feel its all in my head??

ps my chum told baby yest and will bring her back on sun nite she lives far away so she cannot more than she wants to and sure nobody else understands im seriously going mad thanks ladies

soapy4 · 22/07/2011 06:43

14k I know these repairs are not successful I hav researched it and the repair fails in time so not lookin good I may hav a bag for life yuk

soapy4 · 22/07/2011 07:09

meant to say I was really annoyed by everyone wen they say will at least u hav a healthy baby well I googled forceps and yes I was lucky in that respect forceps could of seriously damaged my baby which I had known more. The hosptial were more interested in my pee tmi sori wot about the bowels this is horrible.

My last birth was horrible also and the memory has never my mind my mind it is filled with horror and I hav explained this 3 times to the doctor mmmm thet do not get it at all hv is rubbish sure start were ok but know nothin about this iyswim thanks

soapy4 · 22/07/2011 07:10

(thanks)

KellyKettle · 22/07/2011 08:10

Just marking my place for later. soapy I was on your other thread (happyhols) & used to post on here about s year ago

KellyKettle · 22/07/2011 08:14

Soapy - a healthy baby is not the only important thing about birth. Makes you feel as though your body and feelings don't matter & they do. Yes of course you want a healthy baby but missing a 4th degree tear is huge & with devastating consequences for you. its too early for me to rant coherently on this but people probably think they're being nice, showing you the positives.

I will come back and read your birth story etc later.

l4k · 22/07/2011 12:17

When I said go for the repair ,I was thinking you can't be any worse off than you are now.Also,its better to thinks its possible it could work than go into an op totally negative.I'm so sorry if I'm not explaining myself properly.
I can't believe the gp has not been more help.
I agree with jacksmania.
Don't stop asking for help and come back and let us know.xx

Cyee · 22/07/2011 12:39

Hi everyone,
Soapy - sorry to hear about your situation. Don't stop asking for help and please keep posting.
For what it's worth, the person who helped me in advance of my op had a colostomy before the op. And it was removed some time after.
Take care,
Cyee

Jacksmania · 22/07/2011 14:52

Hello!!! It's great to see you on here! How are you?

Soapy, it does sound like you have PTSD if you keep having flashbacks to your other birth. I had it. It was awful.
Please please speak to your GP. Scream and break down if you have to, to make them listen.

Cyee --- thanks!!! xxxxxxxxxxxx

soapy4 · 24/07/2011 14:38

cee,

did u mean u had a colostomy or someone else had?? im confused they asked if I wanted a bag now or wait and hav all the surgery at once I wanted to wait

soapy4 · 24/07/2011 14:40

hi everyone,

im waitin on my maternity notes atm to see what went wrong maybe I will get some answers and I will keep posting feeelin v ill today will b back soon

l4k · 24/07/2011 17:49

hope you get some usefull info from your notes,soapy.
let us know
have you thought about post traumatic stress disorder? does that sound a possibility for you?I wish you had someone to talk through it all with.

KellyKettle · 24/07/2011 19:25

I'm great JM Smile just waiting out the last trimester for DC2 to be born (planned homebirth - community midwives less than thrilled!).

soapy I was diagnosed with PTSD last year. I'd been living with it for 18 months by then. It's more common than PND apparently and I got better very quickly once I got treatment. I saw a female GP and ended up just crying and crying to her. She referred me for psychosexual counselling but the counsellor said I didn't actually have sex issues but PTSD & treated me anyway.

How do you feel about having a colostomy bag now? Might it give you some freedom until your operation?

I still need to read the thread but finding it tricky at the moment. Will do ASAP.

soapy4 · 25/07/2011 10:07

Hi Kellykettle,

Im horrified at the thought of the colostomy havin to watch poo coming from my stomach sori v tm and u do not know wen its gonna happen I hav some info on it and im horrified by it all totally disgusted by it all.

The pain over rides everything I can do nothin im havin to pat after the loo sori tmi the area was looked at 4 times by mw wen I got home from hospital I was seen by the doctor and the hosptial all within 3 weeks were they all blind.

I do hav PDSD after reading about it I know longer know who I am feel like im in somebodys elses body, scared for my safety who am I is the question I ask myself everyday, my dignity has been taken my marriage is in tatters im a stranger livin in my own home etc my life and body marriage relationship with my son is ruined take care.

soapy4 · 25/07/2011 10:13

14k,

The consultant said I had a tramatic birth and if I needed to see her to phone for an appointment she has fobbed me of to the pain clinic and the doctor at the pain clinic has gone on holidays for 4 weeks and the tablets never worked

Seems odd I need to seek my own therapy incontience is dealt with such incontience nobody gives a toss

KellyKettle · 25/07/2011 13:50

Oh soapy, I really wrote all of those things myself. BTW no such thing as TMI on here so please don't apologise.

I had an "accident" in a department store when DD was a few months old (less than 6). I was with a friend and had to tell her what had happened. She watched DD while I took the change bag into the toilets and put one of DDs nappies on. I had to call DH to leave work and get me. I understand the humiliation of incontinence.

My DH also used to refer to my body as having been "butchered". I found this incredibly upsetting and he couldn't see why. We had joint therapy last year and the therapist managed to explain to him why I hated it. He has never said it since. He may call the hospital butchers - that doesn't upset me in the same way. I was worried about how he saw my body and we have discussed how our life will be once I have a colostomy bag. He says he doesn't care but I imagine it will take serious adjustment.

I felt old after becoming incontinent. I felt un-sexy (though sex was painful anyway so it didn't matter too much). I felt like everyone knew.

How much control do you have? Can you go out?

I found the pain awful and partly so because I couldn't explain to people why I was in so much pain. I remember going to visit DHs brother and his wife - a 3 hour car journey at the time. I was in agony by the time we got there at 8pm. I just wanted to lie on my side and cry. I asked DH if he could speak to his Dbro and ask if I could have a cup of tea with some painkillers and go to bed. They said no, they didn't allow drinks upstairs. So I just cried myself to sleep.

DH said I should have just explained but I didn't want to have to tell them anything so personal.

I did eventually opt for surgery but this was a mixed bag. Success in terms of continence but came with more pain and a bulge into my vagina which made sitting painful.

I was then put forward for a trial of sacral nerve stimulation which uses electrical impulses to make damaged muscles in my sphincter work harder. This worked very well for me but I changed surgeons and my new one suggested I leave it for a couple of years to see how my body healed on its own before going for the permanent implant. I agreed and over the next 9 months things improved on their own.

I know this seems like so long to wait but I suppose what I am saying is that things are probably at their worst now. Its hard to think positively and look after a newborn whilst looking after everyone else too.

What's your next step?

If I were you, and this is only a suggestion, I would make an appointment to see a female GP and explain the situation to her. Tell her you're having flashbacks to the birth every day and that you think you need some counselling. I felt 100 times better just having someone who worked for the NHS (our counsellor) believe me. I'd been fobbed off by MW, HVs and a GP before then. It seemed to be that everyone thought "this is just part of birth, get on with it". Its not, don't suffer.

I also read a book called Birth Crisis by Sheila Kitzinger which helped me immensely.

I would also call PALS at the hospital, explain that your consultant offered to talk to you about the traumatic birth but you haven't been able to arrange anything since and you would like a birth debriefing. The consultant at mine apologised for the way I had been treated and said that he believed that I shouldn't have left his unit in the state I did. This helped with the anger I had built up over the 12 months it took me to arrange the debriefing.

And if it is too soon to go out and discuss this then keep posting here until you're ready.

soapy4 · 25/07/2011 18:26

kellykettle,

Thanks so much for ur post and I see this is normal to feel the way I do and why I have been fobbed of I will ask the doctor after my surgery about therapy as there will b more trauma then iyswim

My dh does not give a shit he rolls his eyes any time I mention it at all why??? he treats with the same attitude as dr mw hv does he think its all in my head as well maybe if he had a look he would take notice.

I can relate to ur post v much I had to wait 12 weeks to b told my stitches came out of my episomity and my 4th degree tear probably happened at labour and went unnoticed my consultant said sori and it should not of happened I was probably stitched up to tight

Wen are u able to sit ??or will I b in pain forever how was the surgery pain etc how was it done I hav never heard anyone havin a bag with this repair why was there a bulge sounds horrid

I will never hav sex again my dh thinks this is all wee buns I think and livin in a fantasy world and will not discuss anything at all with me

We hav a meeting with the stoma nurse in 2 weeks which I organised not that they understand there reading text books how do they know how I feel and they will not let me speak to someone who has a colostomy as they will only will tell the horror part it is all a horror story to me

Today I went and got my hair cut and bought new jeans my last ones were fallin off me I hav lost so much weight due to stress chat soon ladies

soapy4 · 25/07/2011 18:35

kelly kettle,

meant to say I had a debrief

It would of been nice to b told I was havin a episiomoty forcepts vacumn any wonder I hav trauma I just screamed wen it all happened I was probably heard for miles and was screaming no no no I don't want this did they not read my notes I was dreading it all and needed to know in advance what was happening

I wonder was my dh really there as he is not supporting me at all and refusing to look after his daughter

soapy4 · 27/07/2011 15:09

Hi ladies,

I hav got my notes with alot of lies saying I had not been to the toilet for 5 days oh I suppose that makes them sound better.

I was informed of the forcepts vacumn episomity wtf sori that is how I feel it was the opposite I asked gp for support for me and hubby things can start getting out in the open

flossiemama · 28/07/2011 06:10

Hi there Smile

I've been up all night trawling the net for info on 3rd and 4th degree tears when I came across this - and I'm SO glad I did. I had two awful experiences with both my DS, the oldest is 9 and the youngest is 5, and I'm still having problems 'down there'.

DS1 (9lbs) was failed ventouse, then forceps with episiotomy and 2nd degree tear that took around 6 months to heal. DS2 (8lbs) was supposed to be c-section after experience with DS1, however I went into labour the day before I was due to go in, and was told by the labour ward that I couldn't come in until my contractions were 3mins apart, despite me telling them I needed a c-section. Needless to say that by the time they eventually let me in, it was almost too late. But not quite. That was, until my MW decided to try and convince me that a "normal and natural" birth would be best and the chances of tearing again were "minute" and she had never seen it happen twice before......at that point the pain was so bad that I would've agreed to anything.

Anyway, I ended up having a very quick delivery, with an episiotomy and subsequent 3rd-4th degree tear (no one seems to be able to make their minds up which) followed by all manner of infections, internal stitches that worked themselves outside and were missed by all but one Dr and numerous HCPs telling me I should be happy that I have a healthy child Angry........and 5 years later I'm still on enough painkillers to make me rattle and I'm doubly incontinent Sad which isn't helped by the fact that I have IBS.

I've seen a physio, and about 18m ago was going to start neuro-stim, but my brain decided that it had had enough, and that deep dark depression was a better idea. Months off work and some anti-deps later, I do feel (a bit, not much) better, and have started going to physio again with a view to actually starting neuro-stim this time. I'm waiting to see the gynae surgeon, and after seeing a colorectal surgeon a few weeks ago, I'm now waiting for a date for an anal sphincter repair op, and I'm absolutely terrified

I'm so glad I found you all, because I've spent all these years thinking that I was alone, I feel like a freak, and I hate my body for letting me down like this. I'm just so angry about it all. DH tries to be supportive, but our sex life is practically non existent, both through pain and the fact that I can't bear him to touch me because I don't feel 'complete'. I know that sounds silly. I just don't feel like a sexual being anymore. I feel broken. And I'm desperately worried that he'll leave for somebody 'normal' - and who would blame him??? Sad

Sorry for going on. Although I can now discuss my toilet habits (or lack of) without even wincing anymore, I've never really talked about how I feel about it all. So it all just came tumbling out Blush But thank you all so much for being so open about your problems - it really has helped xx

soapy4 · 28/07/2011 11:16

Hi flossimana,

I am also new here and have been looking on the internet like yourself I am desperate for support im havin a spincter repair with a colsotomy bag in sept which makes me ill even thinking about it all. If it works I will hav 50% control of my bowel working not much use if u ask me I too feel like a freak and wonder will dh leave me the pain is like broken glass with a blow torch stuck up there

Im nobody and function like a robot I hate myself and my body I could hav this bag for life and im only married a year keeping writing this board is v good but it can b slow take care

OldGreyMare · 29/07/2011 11:10

Hello everyone, been a while since I posted!
Flossie - glad you found the thread! I read it before my surgery and it gave me hope.
Soapy - can you get a second opinion? The colo-rectal surgeon who did my second repair (successfully) was the 4th surgeon I saw. Are you sure he said you'll only have 50% control or did he say a 50% chance of success? I was told that if the second surgery was unsuccessful I would need a bag before the third try. I cried at the thought of that, no young women wants that.

Im 5 weeks post-op now and I can sit without much pain! I only take something for pain before bed now. I also have ibs but it's pretty well controlled through diet. I discovered the other day that my open wound opens into my vagina! Wondering if it'll heal or if I'll have a vag-perineal fistula. I could tolerate that though. Not having fecal incontinence is sooo very wonderful! I'm scared that my vaginal opening might be too small for hubby though, hoping it's just swelling but I'll ask the dr at my 6 week check up next week. I'm still weak, 4 weeks of bedrest/no lifting and now I'm trying to care for Dd who now weighs 20 lbs has been a challenge.

Jacksmama - I'm in the Spokane area. :) I used to go snowboarding in BC before I got fibromyalgia. The good ole days...

Hope everyone is enjoying their summer!

soapy4 · 29/07/2011 11:28

hi oldgreymare,

When I asked the success rate for this he said 50/60 im quite sure about that that need to ask again when I see him in sept, seems v drastic to get a bag if the success rate is only 50/60 I was told the bag was for to allow the bum to heal does this make sense

I was in a state at the time but my consultant has noted 50/60 control in my file???

soapy4 · 29/07/2011 11:31

meant to say I did ask dr about second opion because of the bag he seems to think I have the best surgeon wtf im only 39 and getting a bag