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Original poster

could this be CP

43 replies

tiffini · 28/04/2005 20:57

have had an awful feeling recently that my DD may have CP, if any one has any experience would you mind reading the first post on my previous thread and let me know what you think. TIA. She was born by cs and not breathing by herself.
\link}http://www.mumsnet.com/Talk?topicid=138&threadid=68586\thread}

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Original poster

tiffini · 30/04/2005 23:52

no they never had any bleed in the brain, and as far as i am aware they did'nt have an ultrasound, but twin2 was not breathing when she was deliveres for about the first 30 seconds.

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sparklymieow · 01/05/2005 00:00

have you been to the scope site?? There are FAQ pages there. I brought both my children home thinking they were fine, Ds was 2 1/2 years when they finally diagnosed him, Dd1 was 13 months. You have an appointment with a physio soon, is that right?? A physio may be able to help you and get you referred to a doctor at the hospital, though I guess you are already under one because they were early. I would demand a MRI just to see if everything is ok. The earlier CP is diagnosed the easier it is for everyone. When they dignosed Ds he had been walking for a year without physio and special boots and because of that he now has modarate CP with very tight tenons, Dd1 was dianosed early on and had physio and special boots and her Cp is very mild.

Original poster

tiffini · 01/05/2005 00:04

thanks sparklymieow for all your help, i will look at the scope website, they were unfortunutely signed off at the hospital when they were 6 months old, but i will push to get this checked, her appointment with the physio is 11th May.
Thanks again

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sparklymieow · 01/05/2005 00:07

I'm sure if you phoned the hospiatl and explianed that you have concerns they will be able to 'pull' her file and get another appointment for you. Shocked that they have signed her off so quickly tbh, dd2 was born at 33 weeks, and she is still seen yearly, and she is 3 now (and she is fine) the other two are seen 6 monthly.

Original poster

tiffini · 01/05/2005 00:13

thats a good idea i think i may well do that, they wanted to sign them off at 3 months, but i put my foot down about that, no-one has told me how long they should be under the hospital for, i wish i had known i would have made sure they were still under thier care, because they tried to sign them off at 3 months i thought i would be pushing my luck after 6 months.

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sparklymieow · 01/05/2005 00:21

I know here that premature babies are noramlly under the hospitals care for at least a year. And as many premature babies have problems, its a good thing too. Normally CP isn't picked up till the baby doesn't reach milestones, Have you thought about talking to the HV about your concerns, she maybe able to help.

Original poster

tiffini · 01/05/2005 00:25

Since starting this thread, have realised i need to do all i can, so i may contact my HV if the hospital wont see her without her being reffered.

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sparklymieow · 01/05/2005 00:29

well, I'm here if you need anymore advice, just gimme a shout anytime or CAT me. Normally here in the evenings, hope you get somewhere, its a long struggle. My HV here helped get an emergancy apointment for Dd1 when she realised that Dd1 was very floppy and wasn't doing what she should have been doing.
Just remember i'm here for you..

Original poster

tiffini · 01/05/2005 00:31

thankyou so much.
Why is it always a bank holiday when you realise something urgent needs doing, typical.

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Original poster

tiffini · 03/05/2005 17:52

spoke to health visitor today, she said to wait untill she has been to physio, to see if they have any concerns first, im'e not sure how much a physiotherapist will know about cp though, and i dont want to be fobbed off, so i am gonna try the gp tomorrow.

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sparklymieow · 03/05/2005 18:03

physiotherapist have a great deal of knowledge when it comes to CP, most of their cases will involve a child with CP. DS' physio knew that he had spastic diplegia CP before he was formally diagnosed, just from the way he sat, and how his muscles felt.

Original poster

tiffini · 03/05/2005 18:06

OH GOOD, i was'nt sure how high thier skills were, thanks that is reasuring.

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Original poster

tiffini · 04/05/2005 20:51

Yippee, Twin 2 started walking today and she is very proud of herself.

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sparklymieow · 04/05/2005 20:52

how is she walking?? Great news!!!!

Original poster

tiffini · 04/05/2005 20:56

she is walking a bit awkwardly, and not as steady as her sister was the day she started walking, she walks as if she has a rugby ball between her legs.

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sparklymieow · 04/05/2005 20:59

awww bless, lets hope that all your worries are unfounded and she is fine eh?

Original poster

tiffini · 04/05/2005 21:00

i certainly hope so, a week today is her physio appointment.

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Original poster

tiffini · 11/05/2005 18:36

well nothing much happened at physio today, they are going to give me a home visit in 5 weeks to see her in her own environment. She thinks CP is unlikely but is baffled by all that i have mentioned, so i can relax a bit now knowing it is not likely to be CP, but i am still no closer to any answers.

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