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Rectocele prolapse-Advice or other mumsnetters with same

43 replies

Undercarrigetrouble · 17/04/2009 22:54

Please help i think i may have this.infact i am very sure.I have looked online and all my symptoms match and it looks the same as pics i have seen.I cannot get an appointment with my gp for 5 weeks.

I have on/off constipation,wind,vaginal windand a large bulge towards the bottom at the entrance to my vagina.

It seems to have got bigger the last few days and i am now having backache and pelvic pain.

Can anyone help? i am very worried

OP posts:
Reesie · 20/04/2009 20:16

I was devestated at not running too as I absolutely love it. Until I started back I took up cycling and I found out I loved it too. Have a go!

Sawyer64 · 20/04/2009 20:24

Theres a much more up to date thread.I will link to it......

Sawyer64 · 20/04/2009 20:26

See here

I had a Rectocele Repair on 10th feb,as have a couple of other people on the Thread.Its still ongoing now,with new people adding on each week.

Sawyer64 · 20/04/2009 20:37

If it helps,most surgeries have "Embargoed Appointment slots",which cannot be booked until that morning,as the "embargo" then gets lifted.

If you try ringing the surgery on the morning that this GP works at about 8.00am,it is likely you will get an appointment(if you can get through

It is unlikely that it would be detected on a Smear,most nurses aren't trained to detect this unless it was very obvious,and it isn't to the "unskilled eye".

The examination is quite painless and not even as uncomfortable as a Smear.My Consultant used 2 speculum,(the instruments to see) very very gently.They ask you to bear down and cough,and then they can see if you have a Rectocele or Cystocele or both.

Undercarrigetrouble · 21/04/2009 23:00

Thanks Sawyer
I dont want to see any other GP at my practice as i dont like any of the othersso i have limited my own options.
I shall read the threads you have linked to with interest.
Today i had a horrible experience ,i had already been for a poo and then popped to see a friend and suddenly in the midst of our conversation i had an incredible urge to poo and had to use her loo(which has never happened to me)i had a strange popping sensation also.Within 10 mins it happened again but luckily i just got home in time.It also happened a further 2 times today
Tonight i am getting cramps in my back and pelvis,i am very worried.

OP posts:
fakeblondie · 22/04/2009 10:14

Hi
I havent read all of the read sorry because im in a bit of a rush.
OP if you cant get an appt for 5 weeks thats really not acceptable-however its not going to change the outcome if you have a rectocele because without surgery it wont get fixed or anything overnight , you can just be advised on how to manage it to reduce sypmtoms.
After suffering for several years, and suffering regularly with bowel incontinence in my early 20`s i can give you a little advice.

Ask for a obstetric physio referral-it will take weeks maybe months but you have to start somewhere.
Buy a really good pair of support pants-the really big old fashioned ones.
Dont be on your feet too long.
No heavy lifting.
Dont get constipated-good diet and plenty of fluids.
Around your period it will feel worse-like your falling out .Take paracetamol and wear cotton pads not tampons.
Lie down and put your feet up for a while if you can-or sit on a pillow to raise your bottom iykwim.You may not need to do this if you have no discomfort.
My best tip is to get a mirena fitted.
It will eventually lighten your uterus which has a knock on effect of reducing your rectocele by having less weight on your pelvic floor , and it really does help.
I also noticed a big improvement when i stopped breastfeeding, which i def, wouldnt recommend doing, but i did feed my ds for 3 years and did notice an improvement when i stopped-must have been hormonal ? Ive had surgery and am going for more but not yet-have put it off for now as didnt expect the mirena to work so well. Mine is severe but please be reassurred that a rectocele is very common and try not to worry. i remember thinking id got a cancerous growth years ago when i first found mine so i know it can be scary-now i know many people who have it and none required anything apart from intense pelvic floor and specific exercises.
good luck and try not to worry .

SammyK · 22/04/2009 10:41

I have a rectocele and cystocele prolapse, am 26 with one child no probs in labour. Gynae has said I must just have been born with weak muscles down there.

I am wanting the surgery but he has said to put it off as it may just happen again! He also mentioned finishing my family. It is finished DP has had a vasect, we have 3 dcs between us, I am happy with my only.

I am thinking of going back and asking him to reconsider, as it is really getting me down and affecting me.

Sawyer64 · 22/04/2009 12:18

I would go back.Even if you wanted another DC(which you don't) you could have a CS.

Sometimes you need to push for this.My surgeon said all those things,but I said I'd like to experience the improvement while I am young enough to appreciate it.Why put up with something that can be put right?

He agreed.Whilst there may be a need to repeat the surgery later on in life thats not definite either.

Alot of the people on "our thread" are much younger than me (I'm 44) and had more severe symptoms.

Its definitely helped me,bowel-wise,and even DH has noticed the difference

SammyK · 22/04/2009 12:38

Thanks for reply, I agree why put it off whe it is making me miserable?

Think I will ask GP to refer me back to gynae again and see if I can convince him.
The surgery scares me but not enough to put me off!

Sawyer64 · 22/04/2009 12:50

I was "pleasantly"surprised by the surgery.it was no worse than having a baby/Episiotomy.

Sore and awkward to sit at times,but definitely no major pain etc.

The thread link gives you more details about post-op experiences,nothing horrendous.

moochygirlsmum · 30/04/2009 02:04

Have a rectocele and cystocele after dd born (she's 29 mths now). Symptoms started around 3 mths after her birth, which was traumatic. Induced with drip, had epidural. Dr tried turning her with ventouse, but didn't totally work as the ventouse was faulty - the pipe which creates the vacuum was too big for the cup which goes on the baby's head, so it kept coming off the pipe. Dr tried ventouse about 6 or 7 times then gave up as the pipe just kept coming off. Used forceps instead, again as dd was turned the wrong way it took about 6 pulls to deliver her. Was told by midwife after that if not for the epidural I'd have had a section, as Dr wouldn't have been able to have so many attempts had I not been totally numb.
Now I wish I'd had the section.
I can count on one hand the times I've had sex in the last couple of years. Been religiously doing pelvic floors every day, not made a jot of difference. The physio at hospital (referred there as altrnative to surgery)said there are other things to do other than sex - devastated as am only 33, and told my sex life is finished.
Periods are horrendous as can't keep a tampon in for more than a few seconds as the prolapses push it back out. TMI I know, but the only time they will stay in is if I need a poo, as the rectocele holds the tampon in place - vile, I know.
Apart from the physical symptoms are the mental ones - I can honestly say I despite and disgust myself, I don't feel like a woman any more, just a sexless deformed freak,mutant ugly freak - hate myself and even if sex didn't hurt like hell, I can't bear to be touched anymore as I feel so repulsive and ugly.
Anti-depressants stopped the crying, but don't fix the problem. being able to be me again to have a proper marriage again to be able to cuddle my husband without crying and setting off the feelings of what i have lost would fix the problem.
I know all sounds incredibly selfish and I know I should be grateful my dd is here, happy and healthy. But the thought of this for the next 30 odd years depresses the hell out of me.
Sorry this is so long, never spoken about it like this before.

moochygirlsmum · 30/04/2009 02:09

Also, am seriously thinking of going back and asking for another referral to request the surgery. For those of you that have had the surgery, was the not being able to have pain free sex taken seriously by anyone other than your GP??

loopylou6 · 30/04/2009 08:57

Moochy you sound so sad, PLEASE go back and request surgery, you dont have to feel like this, surgery would fix it

Undercarrigetrouble · 18/05/2009 22:30

well i finally got my appointment so thought i should update.

My GP says that she cannot see any sign of prolapse but my vagina is ruffled instead of being tubular so this ruffle is what is bulging out and quite possibly causing the ahem vaginal windDue to the sheer embarrassment this causes me i am being referred to the Gynae for hopefully a bit of a trim of the vag.

OP posts:
Undercarrigetrouble · 18/05/2009 22:31

As you were

OP posts:
Undercarrigetrouble · 18/05/2009 22:36

Just googled and i suppose i am looking at vaginal reshape.

OP posts:
moochygirlsmum · 06/11/2009 11:15

Update on my previous post. I've been back to the hospital and had a very long talk with registrar who said an instrumental delivery wouldn't have caused the prolapse (but he would say that wouldn't he?!). After examination said there was no prolapse!! Sceptical as symptoms haven't improved at all.
Had a diagnostic laparoscopy last Friday to find out why sex was painful.
Now been told that I have three prolapses, top wall of vagina, cystocele and uterine. Consultant said the only fix would be a hysterectomy, devastated as I'm only 34. In an ideal world with a bit of spare cash and the ability to have sex (!) we would have liked another baby and now being told I need my insides removed.
Basically, "put up and shut up" or have a hysterectomy.
The only good thing that came out of it is they gave me a number for a physcosexual consellor, who may be able to help with the way I feel about myself, build self-esteem back up etc.
In a state as you can imagine so went straight back to GP from hospital to try and get anti-depressants back, crying so much I could hardly breathe - GP said she thought it was a bit drastic and that a repair to suspend the uterus with mesh could be done instead of the hystercetomy and recommended a hospital where they are in her words "pioneers" in this type of surgery. After some googling found that you can even go on to have children (with CS delivery) afterwards. Feel there is now some hope.
Has anyone else had a mesh repair for uterine prolapse? Did it work? Can you have kids afterwards? and was sex back to normal?
Sorry, it's been another long one!

MrsBonkers · 22/11/2010 02:23

I know this thread is a year old, but are any of you able to offer an update?

I have a rectocele and am feeling so miserable about everything :(

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