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Epilepsy following a stroke- any experience?

1 reply

littlelamb · 04/04/2009 22:38

My good friend had a stroke when she was 17. SHe then caught meningitis and the combined effect of both meant that she spent more than a year learning to read, write, speak and walk again. She's now 24 and 2 weeks ago had some kind of relapse. Her speech is very laboured, and she keeps getting headaches. Her boyfriend took her straight to hospital but she was discharged the next morning. Since then she has good days and bad days, her speech being the most noticebale side effect, but she has also lost her fine motor control- she can't work her phone properly and I had to go and help her with some safety pins. Noone seems to be in a hurry to diagnose the problem, at first they were saying ataxia and now epilepsy seems to have been suggested, but it is a months wait for a brain scan. I am worried because attacks seem to be getting more frequent and unpredctable. She is usually such a confident and outgoing girl but she is now afraid to leave her house by herself Part of the problem is that because she has a background of being in care (with a lovely family as it happens, so not the usual story) she has to fight to get doctors to believe her- when she had her first stroke she was told that she was obiously faking to try and get out of care In this situation, would you be pushing for an earlier scan? What else can we be doing in the meantime?

OP posts:
VickieF · 05/04/2009 14:50

hiya i've got a friend in her thirties now and she has simular problens to what your friend has. she had her first stroke when she was 19. it was only when she was in her late 20 she was diagnose with porforia. its a silent problem that hides its self behind epilepsy. so when a doc looks all the see is epilepsy. but its only when they have a stroke or what seems like a stroke porforia crisis is what is called that anything is discovered. she has very simular problems with her speech she knows what to say and what things are called it just doesn't come out. my friend has lost most movement in the left side of her body. and to look at her she just looks like shes had a stroke. maybe your friend could mention it to her doctor. hope this helps. vickie

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