Tell me this will pass (please). Sorry, I know it's self indulgent but if you have had legs that feel like jelly when you stand, does it go away? How long?.

[FluffyBunnyGoneBad]

I started a thread under my pre-easter name, I had a cold/stinging sensation in my face which is very slowl going, however, since Monday my legs have been erm, well, they feel wobbly when I stand/walk, like I'm on stilts and they are like set jelly. It's not all the time though. I have been to the GP, I wanted to go back to see a useful one but couldn't get an appointment so will try again next week. I don't need to know what it is as I have a good clue, I just need to know if it will pass so I can walk normally without feeling like I have no control over my legs.
If I went to A&E tomorrow with this would they tell me to go and see my GP?
Sorry if this thread sounds odd and self indulgent.
TIA Scrooged.

Out of hours service is probably a better bet than A&E - if you call your GP this weekend your call will probably be forwarded to them.

It may need treatment before it goes! So the sooner you get treatment the sooner you will feel like you haven't downed a bottle of gin!

i think a+e would see you. or you could call out of hours tonight.
you need a proper neurological exam - of your face and limbs.

did the gp examine you?

The GP didn't really. He didn't even ask what other symptoms I had, I did tell him about my legs, he said it would indicate a lesion then he changed the subject. He did see if I had sensation in my face, nothing else. He sent me off for a blood test (diabetes and Vit B12). I've tried to make an appointment with someone else but have not got anywhere. I saw the out of hours last Saturday before I had a problem with my legs, he did basic tests to check muscles in arms and sensation, these were OK though. He told me to see the GP on Monday, I went on Tuesday as I slept all day on Monday. If it's a lesion then it will show up on an MRI for a while right?

I don't feel drunk any more, the legs still think I'm pissed though, the double vision and dizzyness/headache is alot better now.

are you having an mri??
terrible he didn't examine you

i think you need to see another doc. write down all your symptoms so you don't miss any out.

good luck.

Could it be vertigo?

I'm having nothing at the moment, not even a referral to a neurologist. I do need to go back, I've had odd symptoms for over 2 years, it's been put down to glandular fever (I don't think I had this, no sore throat, no fever, just a slight positive blood test), then post viral fatigue (because of the 'glandular fever' and IBS (with pain in the region of the gallbladder and pancreas). I'm starting to think they've made a very big mistake. The symptoms for post viral fatigue are similar to those of MS but they have just let me feel like I'm a hypochondriac rather then do anything except for blood tests that have always been normal.

If I had an MRI would it show up the illness I had that they thought was glandular fever a couple of years ago?

Sorry to moan.

I don't think it's vertigo. I don't feel dizzy, just like my legs are going to give way.

I get the wobbly/jelly-ness in my arms/legs/face/body if I let my blood sugars go too low...I'm not diabetic but am hypoglacaemic (sp?).

Hope you get sorted.

I do get like this if I've not eaten Claire, this doesn't feel the same though. More like my thighs and knees are like jelly or the feeling you would have if you are on very thin stilts, very wobbley.

Thankyou

No problem, I hope you get a diagnosis of some sort v soon.

Thanks. I hope it goes away v soon. It's driing me nuts. The GP doesn't help.

Doesn't sound a v good GP, I'd go to A&E if it persists and the GP isnt helping/doing his/her job correctly.

The thought has crossed my mind. I don't think A&E would do anything as I've not had an accident and it's not an emergency. Last time I went (abdo pain) they just did a couple of blood tests and told me to see my GP. They did give me a note though asking the GP to refer me to a gastroenterologist. I can't win. Maybe I am a hypochondriac after all!!!

Ahh, crap!
Your not a hypocondriac! You know something isnt right & are struggling to prove it/get your point across!

I hate going to the doctor for that reason! They dont listen/hear you out at all here.

It sounds strange, do your bones ache? Have you googled your symptoms at all? Even finding an online doctor and asking for medical advice that way?

its very difficult when no-one listens

Scrooged are you still not having any joy with this? So sorry that your GP is just letting you down so badly - you need to grasp them by the metaphorical lapels and refuse to go away until they give you a neurological referral. Camp on their doorstep until you see someone who will listen.

You are not a hypochondriac.

I have googled them. I work in a hospital (student radiographer) so I'm fairly certain it's MS. I'm fairly certain I've had it for 2 years and never had post viral fatigue, the symptoms are almost the same until now. The GP said ME can cause jelly legs. I've never had this before though, I've looked this up and it does not sound right. I don't have the excessive fatigue to have post viral fatigue either. My bones have ached but only very mildly and not very often. The blurred/double vision isn't there all the time. I thought it was my sight so went to get them tested. I have glasses but it makes no difference if I wear them or not.

Or make an appt. everyday and see the gp everyday until something is done!

No joy thumb. I've been phoning every morning to see the good GP, he's always fully booked. The one I see puts the legs down to ME (which I don't think I have). It's really hard just getting an appointment.

Hi again Scrooged. Really sorry you are having a bad time. I think what you should do is phone NHS Direct now and chat this all through with them. I am guessing you are scared about MS but it could be loads of other things too - not medical so don't really know what, but from my own experience of very scary neuro type symptoms which never came to anything, could be B12 deficiency as you mentioned, trapped nerves, stress, I even had hugely odd symptoms related to hyperventilation (shallow breathing so not getting enough oxygen so feeling dizzy odd & wobbly). This is not at all to belittle what you are feeling but the point is there could be lots of dif reasons. I do agree that your GP is being especially crap - to even mention the word lesion then not take it further is very bad indeed. Perhaps NHS Direct will say see out of hours doctor (who can check you over properly and do all the standard neuro checks) and tell you where to go from here. You mustn't worry what they think - you are feeling bad and this has been going on for a week or so now so you do need to talk it through with someone. Do you have a dp and if so are they supportive?

I wanted to see him last week. It's the easter hoildays now so I'll have to take ds with me, meaning I won't be able to talk to the GP properly. Darn.

Sorry, cross posts there. Didn't realise you work in a hosp - in some ways that makes it even more frustrating. Could you ask a sympathetic colleague not for their actual opinion on what's wrong but on what you should do next? With my own doctor friends I never ever ask them for a direct opinion as feels wrong when they are off duty and prob unethical and what can they say anyway without examining, but they can advise on what to do. I think googling is extremely dangerous as can easily make symptoms fit anything you care to google - I have got myself into a complete state doing that before.

I phoned them last week, they sent me to the out of hours who gave me a quick check over to see if there was any weakness then told me to see my GP if it was the same on Monday. I even went to the dentist to make sure it wasn't coming from a tooth. I don't have anyone to talk to, it's just me and ds. I know there's lots of reasons, I don't think a B12 defieciency would take 2 and a half years from showing up to getting worse though. It's normally caused by alcohol (amongst other things)/diet and I don't drink and eat healthily.

I don't know any doctors well enough to ask them perma. The one I have spoken to has said to get a referal via the GP.

scrooged, I hate to say it but I am inclined to agree with your self-diagnosis. I had a client who developed heavy jelly legs - it took them months to diagnose it but sure enough, it turned out to be MS. His father had had an aggressive form of it so he was convinced it was that.

B12 - now this I can help a bit with - we have approx a 2yr store of B12 in our bods (assuming adeqate intake prior to any change). B12 deficiency in non-vegans is usually down to lack of intrinsic factor (IF), which is absolutely necessary for us to absorb B12 from our diets. IF is made in the stomach and requires adequate zinc in the diet - so if you were zinc deficient, you might not make enough IF and not absorb B12 - and it would take about 2 years for there to be sufficient loss of B12 in the bod to produce severe symptoms. B12 deficiency is easy to test for though - and you have had that test. Loss of IF can be due to auto-immune conditions. Alcohol can affect B12 status too but doesn't affect absorption.

I really hope you can get some resolution to this pretty quickly.