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Doc has referred me to neurology for a scan and EEG. I'm really worried. Come prop me up a bit.

64 replies

dragonbutter · 17/03/2009 15:35

I collapsed in the middle of the night (again .

Previously i've been told this is a vaso-vagal syncope (a faint) caused by having a poo during the night. In this case explosive diarrhoea (TMI!)

But because i lose consciousness for a little while and am rigid and possibly shaking while i'm unconscious, doc wants me to have a scan and EEG.

The worst part is when I came round i could hear DH crying. It's worse for him. But i stupidly apologise as soon as I come round [wtf?] like i'm doing it on purpose.

'oh i do apologise, i appear to have shit on the floor and made you think i was dying, terribly sorry about that ol' chap'

I'm so worried now, I can barely talk to DH and the kids. I want to curl up in a ball and cry. It's a beautiful day out there and i'm indoors wearing a cosy cardigan feeling horrid.

Come prop me up a bit and tell me what to expect from neurology.

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dragonbutter · 21/03/2009 10:14

update: got an appointment in 4 weeks.

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bella29 · 21/03/2009 11:59

Oh good - at least you won't have to wait so long as you originally thought.

Try not to worry (easier said than done, I know) but your symptoms were similar to a lot of people on this thread and even if it did turn out to be epilepsy, it's best to know. And as flowerybeanbag shows, life can go on pretty much as normal.

If it were me I would try to stick to normal routines, arrangements etc., (like DH going away) - that should help the time pass quicker.

TimeForMe · 21/03/2009 12:59

Oh that's good news

I agree with Bella regarding sticking to normal activities, keeping active won't leave you time to worry.

olivo · 21/03/2009 18:15

dragonbutter, i havent read all the posts but i will, as i have recently been told this is what i may have. i've been suffering 'episodes' for a few years - go to the loo i nthe night, usually have diarrhoea, feel hot and faint and sometimes out, falling off the loo. sometimes sick after too. if i feel it coming on, i can usually prevent the faint by lying down immediately. i laso warn dh if i feel it coming on. I had an embarrassing and scary one when it happened when on my own out with dd, during the day. i felt odd and had stomach cramps, so sat down, when icamne round, people around me and dd clinging to me crying. very frightening. if it happens again, i will be being referred.

good luck, and will be interested to hear an update.

StealthPolarBear · 21/03/2009 18:16

Glad you have an appointment now. Sorry I have nothing to add as no experience of this at all. There's no chance this could be as straightforward as really low blood sugar could it? (Obv then they'd need to figure out why the BS was low).

olivo · 21/03/2009 18:27

just read the rest of your posts, sorry to hear this is stressing you so much. take care and hope you get some answers soon.

dragonbutter · 21/03/2009 18:39

olivo, how scary!
luckily i keep my bizarre behaviour at home, so far at least.

stealth my fasting blood tests came back normal so probably not blood sugar.

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StealthPolarBear · 21/03/2009 18:46

oh of course, sorry

QuintessentialShadow · 22/03/2009 20:59

Oh poor you db, what a worry for you and your family. I have no advice, I dont know anybody who has experienced similar.

Can you try busy yourself with some baking, and some online shopping?

dragonbutter · 22/03/2009 23:00

4 weeks of baking and online shopping?
i'd have to buy clothes a size too big to fit in them after i'd eaten all my baking.

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QuintessentialShadow · 22/03/2009 23:30

you have a point there.

dragonbutter · 22/03/2009 23:36

i went to bed.
couldn't sleep.
now i'm up again.
have talked myself through all the things worrying me tonight, have reasoned with myself that none of it i can do anything about, the rest was of no consequence to anything, the rest is about feeling up to work tomorrow, but of course now i'm awake, and will be tired tomorrow.

idle musings, sorry.

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QuintessentialShadow · 22/03/2009 23:54

I am off to be db, I hope you manage to get some sleep, and have a good day in work tomorrow.

dragonbutter · 22/03/2009 23:56

thanks. night

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