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Calling the Cod re ptosis repair

16 replies

piffle · 13/04/2005 21:34

Hiya
After saying my dd would not need to get it done (ptosis repair both eyes) as it was not affecting her eyesight, it now seems it is affecting her sight and we have to decide when to get it done
She is 30 mths.
Would you be able to tell me how your ds dealt with it and what it would entail again?
With thanks
Piff (horribly worried)

OP posts:
JanH · 13/04/2005 21:36

Sorry to hear this, piffle, but she is such a calm and phlegmatic little person I'm sure she will take it in her stride (better than you, probably )

cod · 13/04/2005 21:38

Message withdrawn

piffle · 13/04/2005 21:54

I get the impresion they want us to do it soon ish as she is now tilting her head to one side to gain better vision and also cannot see depth, ie, stepping off carpet to tiles looks like steps to her, obv walking around the shops takes forever...
Might google it when I'm feeling braver
Jan you're prob right, she is one of lifes troopers, I'm one of lifes shriekers
Thanks

OP posts:
titchy · 14/04/2005 11:09

ptosis

This one has the basics. There are many US sites if you just put 'ptosis' into Google.

As you may remember ds had this done about 6 months ago and it has made such a difference to him. His eyesight wasn;t affected by his ptosis, but I was told that if it did affect his eyesight surgery would be needed pretty quickly as childrens' eyesight can degenerate very quickly, to the point where it can;t be reversed.

tbh it was the anaesthetic that scared me the most - the actual op. is quite straightforward, and if your dd is now having sight problems you will notice the difference in her BIG time - she will be so much more confident and able afterwards. I know it's scary but it really is worth it. Feel free to CAT if you like....

titchy xxx

piffle · 14/04/2005 11:57

ahhh it was titchy who mailed me last time, sorry I mixed you up with Cod!
I may well CAT you soon Titchy we are up for opth assessment on 27th May to make a decision.
Thx again xxxxx

OP posts:
franch · 14/04/2005 12:07

piffle, feel free to CAT me also if you have any specific questions - DH is an eye surgeon (specialising in children). If you give me lots of info about your dd he should be able to help. Which hosp are you using? Hope it all goes well.

titchy · 14/04/2005 12:12

No prob. piff - delighted to be mistaken for Cod!

piffle · 15/04/2005 13:43

lol!
Have CAT you franch, thx very much petal
xx

OP posts:
ocd · 04/08/2006 08:23

ooh ooh UPDATE
ds3 has an appintment next week wiht e surgeon
its a long appointment apprently full of measuring and photos

ocd · 04/08/2006 08:25

piff what was yourupdate?

ocd · 04/08/2006 11:22

piff

TambaIsBadBadBad · 04/08/2006 11:54

.

CodGuevara · 09/08/2006 21:25

.

PifflinePankhurst · 09/08/2006 21:28

Ahhh
MEt a happy new shiny laidback doctor and he says it is not affecting her sight, initially as she tired easily, her eyelids dropped more, now she is less affected by tiredness and it is fine
If its down to cosmetic, then I'll leave it up to dd, she has pretty bad eyesight due to other problems so I'm loathe to touch anything for a while...
She is having a world reknowned professor on her eye condition (nystagmus) seeing her in September, so that should be interesting...
So no real news
thus

CodGuevara · 10/08/2006 21:12

we are now ont eh waiting list
! 6 months

MammaTJ · 01/06/2012 07:40

New to this site. I searched Ptosis and found this. My son, now 5 has had 2 ops, not very sucessful to repair his ptosis. Not for cosmetic reasons but because his sight was deteriorating. He now has to wear patches for a few hours a day, so he does not lose the sight in the affected eye completely!
How is everyone doing?

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