This isn't a nurse who's looking after my dad btw, but is someone with expereince of this rare Syndrome. My dad was in hospital for nearly 4 months with a mystery illness that the consultant always said he didn't know what it was.
Dad was discharged 2 weeks ago, consultant still hasn't told him what the illness was. But gives him a letetr for the GP saying its Cogan's Syndrome. It would have been nice if someone had thought to tell my dad.
Anyway its quite rare, GP never come across it before. I can't find much on Google. But yesterday a nurse I know said when she was a Paed nurse she knew 2 children who died of it and life expectancy is normally 10 years max from diagnosis, probably less in an older person who will be more suciptable to infections. She also said that dad won't get his mobility back and what limited mobility he has now will deterirate.
Do I tell him this 'cos noone else has? He's on about buying a house but if he isn't going to be able to walk in a few months time/years time I need to tell him not to?