epilepsy anyone else fit like this ?

[kirsten75]

up until recently when i had a fit i would just have absence and sometimes have more serious ones where i fall over hurt myself /bite insides of my mouth i take tegretol retard and topirimate and for the last 2/3 months i,ve been wakened during night sometimes with strange feeling which is like my warning sign. then i,m aware i,m thrashing about in bed and my hearts racing theres nothing i can do but let this pass i can,t bring myself out of it its very upsetting when i,m thrashing about its almost as if i,m watching someone else having a full blown convulsion am i crazy ? i,m under alot of stress just now i know thats a trigger for my epilepsy but its so hard being a lonely single parent to a 3 yr old boy !! any advice appreciated

kirsten75 that is the type of fit that I used to have. The medication reduced it down to 'absences'. When I get stressed or over tired my fits definately get worse. Sorry I can't offer you any advice just that I know how scary it is, especially when you've got a child to look after. Go back to the doctors and they can refer you back to the neurologist, sounds like you might need your dose increaseing.

BTW if you are on FaceBook they have some really helpful epilepsy groups which offer loads of understanding and great advice.

thanks shannaratiger i,m actually going back to see my neurologist on wednesday . iwas thinking i realy was losing the plot with what was happening to me.i,ve had epilepsy for ten yr and it only seems to be getting worse the hospital have tried more than a few different drugs to help control it but what next ?? wish me luck for wednesday

Good luck for Wednesday, will b thinking of you.

My ex had night seiures like that. He used to wake me up, say "Its gonna hapen" and then I'd dive out of bed and put pillows on the floor incase he bounced out of bed.

Did youu know you can get epilepsy monitors that go under your bed, and then call a call centre. it might be reassuring for you if they were able to cll you after a fit to check you ok???? also if the fit went on a long time they would be ablle to send help. You should be able too getthis sorted by an oT - they dont all know about it but they should know about Telecare, which this comes under. - either ask at the hospital or or ask the consultant to referr you too socialservices OT. This is very different from socialservices for child issues - I AM NOT sUGGESTING YOU NEED THAT!

good luck!

been to hospital today and i have to increase my topirimate tablets but because this lack of control with my epilepsy is not getting much better i,m now on a waiting list to get admitted so they can monitor me 24/7 then they will learn more and maybe be able to offer me surgery.