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Just been diagnosed with Graves Disease (Hyperthyroid), Please tell me your experiences?

7 replies

supergluebum · 18/02/2009 16:10

After much faffing by Docs, I have a diagnosis. But been prescribed Carbimazole and propranalol. One for the thyroid and the beta blocker for my jitters! It's only been a couple of days and I think the beta blocker is working. How long will I be on it for? I don't drink often, but can I have any alcohol? I'm steering clear for at least a month until I can feel better, but just wondered what other hyperthyroid suffers experiences are.
Thank you

OP posts:
PuzzleRocks · 19/02/2009 16:07

Bumping as this was about to drop out of unanswered after 24 hrs.

Best wishes.

georgiemum · 19/02/2009 16:12

Sis has had this since a teenager. She is on thyroxin and has it tested when she can be botheres. She drinks like a fish and is into keep fit right now. She has had no restrictions in what she does.

GrimmaTheNome · 19/02/2009 16:32

Thyroxin is the treatment for hypOthyroidism, which is the opposite (underactive thyroid).

However, Grave's disease is sometimes treated by deactivating the thyroid gland, and because it's easy to treat hypo- than hyper- they tend to err on the side of knocking out too much and then prescribing thyroxin. My DH takes this (being hypo) - no side effects and you get ALL your prescriptions free thereafter.

supergluebum · 19/02/2009 17:14

Thank you puzzlerocks

Thanks georgiemum and GrimmaTheNome, it is Hyperthyroid for me, so it is good to know no side effects. I happened to see my GP today and she clarified that the beta blocker is short term, so I'm a bit happier about that. The thyroid medication side of things I am resigned to the fact that it's probably for the rest of my life! But it's taken a while to diagnose so I'm just happy to have a diagnosis!

OP posts:
santababi · 20/02/2009 19:49

You are fine drinking with both those meds.
Youll be med of some sort for ever probably now-youll get lots of support from thyroid uk.
I havent got long now but you may put on a little weight with the carb-make sure your tsh t3 and t4 at least are checked every 6 weeks for the first year. Propanalol will slow your racing heart and shakes and if you felt a bit manic (i did ) will slow you down to a more chilled out you. I found propanalol completely zonked me for about 4 weeks-i could quite easily have fallen into a deep sleep about 3 pm ! , but stick with it and youll feel the full benefit after about 6 weeks-prob wont realise how naff you feel now until you feel better.
Good luck and getting a diagnosis is brill because you can now move forward. x

sickofsocalledexperts · 20/02/2009 20:06

I was on both those for about a year, and I was lucky as after that my thyroid gland seemed to reset itself and i could come off them/ The doc says that does sometimes happen, but they don't really know why - one possiblity is the shock to the system of giving birth puts your thyroid out of kilter, but the pills for a year switch it back. God I felt better on carbimazole and propalonol though - though I was going mad before as was so hyper - even went to hospital with it!

supergluebum · 21/02/2009 12:43

Thank god! It's a weird one isn't it! I am already feeling the effects of propranolol, but obviously it will be a while until the carbimozole kicks in.

Good news that yours went after 12 months sickofsocalledexperts, but santababi I am prepared to be on this forever . Know what you mean about the sleepiness too! But I've been feeling that for a while. x

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