Any hearing impaired mums? Anyone had a Stapecdomy?

[BettySwollux]

How bad is your hearing loss, and how do you cope with crying at night?
I cant hear anything under 60 decibels, so have 1 aid, have just been told I should have 2, am getting this next week.
At night, I either have to take the monitor up next to me on full volume (even though DS2 is only about 12 feet away in his room) or rely on DH.
I was told yesterday that I may be able to have surgery to replace the stape bone, but this has around 20% chance of complete hearing loss.
Does anyone have experiance of this, either yourselves or someone you know?
Would love to get another perspective as google only tells you facts, not feelings, IYSWIM.

I'm so glad you thought it was worthwhile!

My understanding is that a conduction test is about assessing the degree of nerve damage as opposed to middle ear trouble and I would expect that if you were having your right ear tested then the headpiece that makes the sound should be behind your right ear, and I think the headphones would be ON your ears and the rushing noise played so that you don't hear the noise via your middle ear transmission. Am not 100% sure I have got that right though!

Has it all changed your life much? Are you still wanting to get the other ear fixed? And how close to normal hearing range have you gotten with your "new" ear?!!

Love Pod x

Hiya Pod, good to hear from you.

I asked about the conduction test, as the 'rushy' headphones were on my right ear, with the with the piece that transmits sound behind my left.
I thought it seemed odd at the time when the audiologist said that what the end of the test.
I asked if she was going to test my right ear, and she said "Not today".
Then I had to wait an hour to see the consultant and forgot to bloody ask! [brain like a fishnet stocking emoticon].

But, yes it has changed things, although it seems 'normal' now, like it's always been this way IYSWIM.
I can definitely hear better tho, a friend shouted my name, way down the street the other day - and I heard it first time YAY.

Cant wait to get the other ear done, and hopefully chuck away the remaining aid!!!

Ah so glad it has helped you, I bet you are really pleased. So its feeling comfortable too now then? When will you be able to get the other ear done?

Hi jen, how are you?
Ear feeling fine now, thanks. Teleporting stopped unless I'm very tired.
Should be able to have the other one done in a year or so (fingers crossed).
Any progress on your diagnosis yet?

Hi Betty
I am ok, I had an appt in birmingham and saw a specialist who thinks it is most likely genetic and it ownt get any better, it may get worse or 'bum out' as he said! He has mentioned implants, middle ear implants, which are not the same as cochlear as my hearing is not bad enough for cochlear. It is something I have to think about really. It involes the whole implant being inside my head so not sure how I go about changing the battery every 5 yrs!!!
here is the website.

Glad you are feeling better though and that things are going well. I bet you will look forward to having the other ear done now knowing it really has helped?

Hi jen,
thats great news that something can be done, I've never heard of these.
The website looks quite informative, can you get in touch with anyone who has one of these?
I found it a great help talking to people who had stapedectomys in order to make my mind up, and Im so glad I went ahead.
Maybe your consultant could help you find someone willing to chat?

How do you feel about it though?

Hi betty They have only had afew trials of it and I dont think many people have been fitted here in the uk but its worth checking with the consultant. The man I saw was not my normal consultant, he was a specialist in Birmingham but he may know of someone to put me in touch with. I have looked on the net at them and do want to speak to someone who has had them but as they are so new it is difficult. Am slighty concerned as the battery life is approx 5 yrs so that means they would have to open my head up to change it that freaks me out! I also want to make sure that they will be a good improvement to hearing aids otherwise maybe it is not worth it, I know cosmetically they will be better as they will be hidden!

Betty how is the hearing now?