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Almost at breaking point..........................(A long one)

7 replies

Melscorp · 08/02/2009 14:59

In October I visited my GP because of heavy bleeding (Forced by my friend after telling her the blood clots were as big as two joints
on my finger). My GP said she thought it might be a misscarriage, but wasn't sure, so she referred me to the hospital, as urgent. Obviously, they took their time in booking me in for an appointment. I was reduced to tears when the gentleman that did the examination told me that I had definitely had a misscariage and he would write to my doctor and ask that I be sent back to the hospital urgently as I would need to have the remains removed. I was extremely upset. This was the Friday.

The following Tuesday I received a letter stating that I needed to attend a different hospital. I thought it was for the procedure to have the remains removed. I was amazed when I was actually taken to see a consultant. He was extremely negative about the examination I had at the other hospital and insisted that I be seen by their own department for another scan.

The following Monday afternoon I received a phonecall from the dappointment department and was told that I would have to attend the hospital the next day at 3 p.m. because the consultant needed to see me on Thursday. I asked if the appointments could not be on the same day as my husband would have to take time off to be with my little girl, who was under two and it would be a bit difficult. I was informed that was the only available appointment.

The lady who examined was extremely nice, she said she could see a mass in my womb and my lining was abnormnally thick, but she couldn't tell me anymore. I would have to see my doctor. I was at least grateful that she had tried to explain it to me.

On the Thursday I saw a different consultant who explained that they had found a mass, butr didn't know what it was. They would have to perform a laproscopy and see what they find and take a biopsy of the mass and the linen of my womb. They would also go and see if there were any adhesions and try and remove that, as he suspected I had endometriosis. He also mentioned that if the camera damaged me or there was excessive bleeding they would have to take what ever steps that were necessary. I made a point of informing him that we only had a daughter aand I wanted to try to have another child, so only if it was imperative was I to have a hysterectomy.

Well, my operation was scheduled for the 19th January 2009. I was extremely nervous, but I knew it had to be done.

On the morning of the operation we saw a different consultant ( Number 3). I made a point of telling him that we wanted more children, so I did not want a hysterectomy.

Later on that day I remember being woken up and the first thing I said was "Did I have a hysterectomy?". I remember the nurse laughing and saying, "No, but we did more than we expected. We drilled your ovaries and the fibroid was bigger than the size of an orange or grapefruit as we thought. The doctor will be down to tell you more."

A young doctor finally appeared. He just said, "We did what we were supposed to do and more. We drilled your ovaries, removed the fibroid, which was bigger than we thought and we did microwave ablation....."

Last Monday I decided to surf the net on microwave ablation and was SHOCKED to see it said "Not recommended for women who wish to have children as .............." I immediately became upset, but decided to pull myself together. My husband returned from his walk with my two year old and when I told him he said he would make an appointment to see his GP (as he thinks he is the bees knees). I saw his GP on Thursday morning and when I told him what I had read, he said, "I would sue them if they have done that procedure as they had NO RIGHT!!!". When he saw my eyes were brimming over he told me not to stress until he got my notes from the hospital.

You see ever since I found out they didn't do a hysterectomy I have been sailing. I was in pain, but it didn't matter. Now, I feel as if I have had my heart RIPPED out yet again. I was so DISTRAUGHT when I had the miscarriage and from then onwards it has been an emotional rollercoaster.

I don't know what will be next.

Part of me STILL hopes that the doctor got his terminoloy wrong or mixed me up with another patient!!!!!

OP posts:
suwoo · 08/02/2009 15:15

Have no experience of this but I hope you get the answers you need. Good luck x

flourybaps · 08/02/2009 15:31

You poor thing, you have been through such a lot, im afraid im no help but bumping and hoping someone comes along who can give you more info.

Judy1234 · 08/02/2009 16:20

I hope it's not as bad as you fear.
When I was having my twins (4th and 5th babies) I made sure written on all notes of mine of any kind in very big letters was wants more children and that I did not consent to anything that might damage my fertility. Made it clear that if tehre were more to be done than they thought that I should be stitched back up and that done later when I'd talk and thought and considered.

diedandgonetodevon · 08/02/2009 16:42

oh you poor thing. You have really been through the mill.

I'm afraid I have no wise words but i hope everything works out for you

Lulumama · 08/02/2009 16:58

have you had a follow up from the hospital ,from who did the procedure? it might not be as bad as you think, but it might also have been balanced agaisnt what was found during the procedure

the ablation might have been the best thing to do , as you did not want a hysterectomy, but the ablation might have been medically necessary

you need proper follow up, not from your GP but the hospital

i am so sorry you are going thorugh this, but you cannot base your future on what you have discovered through google

and it nmight have been the procedure was necessary

best of luck

bitchyfanny · 08/02/2009 23:22

melscorp, im so sorry you are going through this, i know nothing about this, but it might be an idea if you posted on the miscarriage page. maybe the ladies on there will know more, and you will get lots of support on there.

Melscorp · 09/02/2009 00:54

Thanks to all of you that took the time to read this. I really do appreciate it.

The last doctor to speak to me at the hospital told me if I have any problems or need any advice see my GP. I did go and see her, but she read the form they made me sign in November 2008 and then promptly told me that they did everything they said on the form. Yes, she may have well been right, but when I saw the consultant on the morning of the operation he amended his notes, but didn't amend my form, so............My form just had what they had intended to do after seeing me in November 2008. This was why my husband insisted I see his GP. His GP made a point of telling me basic things that the hospital should have told me before discharging me.

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