Post viral fatiue

[giraffescantdancethetango]

Whats your experiences of this? How did you get diagnosed?

I had glandular fever, after the blood tests were clear I was picking up illnesses from work etc like there was no tomorrow, followed by episodes of complete exhaustion. They diagnose by rulling everything out, which means they don't know. There are no blood tests/scans etc.

Thanks for info. How are you now?

Got Drs tomorrow so will see what happens then.

I have had 3 sets of bloods taken - they have tested for everything.

After 5 trips to the Drs of the "yes, it's me again, still ill" variety I have been refered to a consultant.

In the meantime some of my more treatable symptoms are being treated - with losec for days when my stomach hurts, anti inflam for days when my arms and legs ache etc.

My neighbour who is doctor suggested getting my teeth checked as having absesses etc. may give the same symptoms, but because doctors aren't dentists they apparently don't mention it. I am doing that on Wednesday.

Snap scrooged -
Had glandular fever - went back to work too soon.. felt terrible.. eventually off work .. couldn't walk for a year.. sweating.. couldn't sleep.. pain all over.. nausea.. lost weight (was six stone 10Lbs)

Was out of work for 8 yes eight years and now am Ok if I don't over do it and I have to watch my diet: no allergens. Had a bit of a relapse with DDs arrival.

I remember crying with relief when I got a Diagnosis. I had been so ill for so long and nobody could find anything amiss with my bloods - they were suggesting I take ADs / vitB injections.

However I went to a GP who was a naturopath (bless him) and he had many tests of his own, and questionnaires and pretty much immediately knew what was wrong.
And he told me that I wasn't losing my mind, imagining things: that I was ill, but that I would get better, if I did what he told me to do.
I did, and I did

I got all my Hg mercury composite fillings taken out 20P (with special ventilator extraction fan on full blast) and that helped a lot. It might be good for you?

Are you feeling terrible giraffescantdancethetango?

There is a case for megadosing with Vitamin C in PVS/ CFS etc. Despite conventional wisdom that you only need 40mg per day and you pee the rest out blah blah, some people with CFS have had good results from taking Vitamin C in doses up to 10g per day. I am not suggesting you take that much, certainly not! But you could try taking at least 1000mg/day - and if you want, you could try pushing it up until you reach your own bowel tolerance level (i.e. when you start having bowel ishoos, you've gone too far)

In reality, you shouldn't try this without having some kind of professional advice, but it's up to you whether you consider nutritional therapists as professionals or quacks.

I know someone who had PVS/CFS who needed 10g/day to recover her health and she is doing very well so long as she doesn't overdo things too much. She is a nutritional therapist herself now, as she found that it was the only thing that helped her to recover when the medical establishment couldn't help her at all.

I have two mercury fillings left - but I never get them out because I always have a more pressing issue when I get to the dentist (I always book time for a filling with my checkup).

I will have the now achy one fixed and immediately make an appointment for the other two. It can't do any harm and at least it will look nicer.

Zazen its been going on for a while, infact I left uni partly due to being so tired. Constantly get everything, sore throat almost all the time, swollen lymph nodes behind ears and on back of head all the time, often get sore joints - back,legs and more recently every single joint - hard to even switch on a light. Sleeping lots, cancelling everything to sleep. However also have insomnia - like Im more active at night. Chest pain (inflamation between the ribs) recurrent labyrinthitis.

Have been before but never got anywhere its always been that my bloods get checked - all clear and Im sent away. And I just think well maybe Im lazy or something.

giraffes, re the labyrinthitis - this is a common precursor for ME, I don't know if that helps you or not.

Depending on how often you get it, and how long it lasts, it might not be viral at all though - I had transient vertigo for ages, plus 2 bouts of labyrinthitis, and the vertigo was cured by my osteopath putting my neck back together the way it should be. It might be worth seeing one for that at least.

The vitamin C is to replenish your immune system, which requires vit C, zinc and selenium to function - you sound like your immune system is running on empty and needs an urgent boost.

One thign I am sure of - you are not lazy. You probably weren't depressed before and if you are now it is a reaction to your illness, not a cause. Please don't fall into the medics trap of "we don't know what's wrong with you, if anything, so go away and pull yourself together".
Self blame will not make you better.

Thats interesting re the labyrinthitis, am off to search google for some more info.

Saw Dr for all of 30 seconds today he asked me what I thought was wrong. Getting bloods on Friday and to see Dr again next week, will try asnd see my normal Dr though who I like.

Yes, I second that from thumblovewitch - you most certainly are NOT lazy!

If you were you wouldn't post here looking up how to get well for starters, now would you
Also I'm guessing you are feeling guilty about not 'achieving' anything - in other words you are a classic type of person - driven and ambitious, and a little highly strung? - who gets ME.

Best of luck with your GP - ask her / him to send you in for allergy tests - there could be something in your diet / environment that is stressing your system
I found this book by fatigueexpert Joe Fitzgibbon brilliant.

Hugs! yes! Hugs your way!