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Original poster

Mutual breast cancer support thread - Part 2

75 replies

lalaa · 04/10/2008 17:38

Pigleto - here it is!

OP posts:

huffpuff · 12/12/2008 21:48

hey all

got my results this week and all is looking good - boob that i had taken away had pre invasive cells that would have changed into cancer within months. My glands were clear. Next step is radiotherapy and continuing with the herceptin. Looking forward to a bloody good xmas!!
Hugs to you all XX

ClausImWorthIt · 13/12/2008 12:37

Hello all - didn't want to gatecrash your thread, so I've started my own

here

If any of you can help I would really appreciate it.

(ps have to ask - huffpuff, are you a 10th kingdom fan?!)

crankycrane · 13/12/2008 12:39

just posting to wish everyone well on this thread

Original poster

lalaa · 22/12/2008 17:10

I've had my gene testing results today and they've come back normal, which means they didn't find a fault. So my bc was just bad luck. Am delighted (but also mindful that others here are not so lucky).

Wanted to say Merry Christmas to everyone who has contributed to this thread. Here's hoping for a healthy 2009.

OP posts:

Original poster

lalaa · 20/01/2009 18:38

How is everybody?

OP posts:

BlaDeBla · 20/01/2009 22:08

Good to hear you've thrown off your chest infection, lalaa, and that you've got normal results.

I'm so glad Christmas etc is all over. I really dont like the time of year. Now I'm trying to deal with my nicotine addiction and trying not to drink so much and wondering if it's time to come off antidepressants. In the first place they say to deal with the thing that's going to kill you first, so for a long time drinking and smoking weren't an issue. I don't really know what to think now I've been treated for bc. I don't smoke any more, but am addicted to lozenges (how sad is that) and I drink far less than I used to.

I hope other people are doing better. I don't like it very much at the moment.

anorak · 29/01/2009 12:54

Hello all, this thread seems to be dwindling away, and I can only hope that means we are all feeling well.

As for me, I am feeling very much better. I am going over to Boston again at the end of Feb to have another op, like the one Madhouse's cousin had to even out her breasts.

It's just lovely to be able to wear my normal clothes again.

I hope you are all well.

BlaDeBla · 06/02/2009 17:16

Not long to go, anorak!

I'm not going to my bc art group any more. I don't think it really helped very much, tbh, but it was nice to be able to play with glitter and shiny paint and make a mess.

I need to do some work for real....

pigleto · 25/02/2009 11:32

Glad you are doing so well anorak.

Art therapy only seems to work if you are a believer.

I am waiting for the results of a bone scan. Fingers crossed.

TheMadHouse · 25/02/2009 13:25

Hello ladies

I hope that the fact you are not all posting on here means that you are all doeing well and that things are looking up.

I go in for my operation on Friday morning at 8am. I am shit scared, but know I am doing the right thing.

So I am not an MRSA carrier, my iron levels are fine. The boys are going to be well looked after and everything will be well.

I have made the decision to have implants, but will be having a radical bi-lateral mastectomy, as my MRI last month show some changes (although hard to interperate, as I am 35). They are also going to take a lymph node from under each arm too.

I will either have implants or chest expanders depended on my muscles and the size of implant they can get in.

Pigleto Fingures crossed for your bone scan.

BlaDeBla · 25/02/2009 14:53

It's a bugger that they are taking a few lymph nodes out too.

Please try not to worry about the operation. I expect you have already said, but how long are they klonking you out for? I think my operation lasted about 9 hours or something, and the worst bit was coming round from the anaesthetic, and when all the clocks seemed to stop because of the morphine. Some people seem to really enjoy morphine!

I hope your bone scan is ok, pigleto. I had one too.

How interesting that art therapy only works if you believe in it. Well, at least I've given it a go!

TheMadHouse · 25/02/2009 16:19

Bla I have been warned that it could be a while and also a couple of hours in recovery too. TBH I would rather have the nodes done and be sure that I am all OK.

I didnt know morphine made the clocks stop - I am hoping I "enjoy" the morphine, but I am not sure I will as I didnt the pethidine when in labour

BlaDeBla · 25/02/2009 17:20

Yes, I know what you mean about the nodes. What I meant was that it is a bloody nuiscance that we are being put at risk of lymphodema when they meddle with lymph nodes. My hand is much less swollen in the cooler weather. I really wouldn't like to live in a hot climate!

I have an implant too. It's a bit big for me, and there isn't enough saline in it to stop it being a bit lumpy. One of my dds asked the other day why I didn't have a nipple, so I told her that it was my rubber boob and they hadn't made one.

TheMadHouse · 26/02/2009 17:35

I am very sad to hear the news about Wendy Richards. I had a cry in the car about it when I was dropping my mum home this evening.
She was a very brave lady. RIP Wendy

Just need to pack my bag now, need to be at the hospital for 8am.

kizzie · 26/02/2009 18:40

Hi ladies - sorry to intrude on your thread. Just wanted to wish Madhouse all the very best for tomorrow (I saw your message on the horrible thread from today and thought you might not want to go back to that one.)Sending you lots of positive thoughts xx

BlaDeBla · 26/02/2009 18:58

All the best for tomorrow, TheMadHouse. Hope it all goes well and they look after you well. I hope you get some good things to eat as well!

Original poster

lalaa · 02/03/2009 10:44

TMH - are you back yet? How did it go?

All well here. Am seeing the oncologist on Wed for my annual chat. I have a new one (have been downgraded from consultant - good news!) and it's just formality normally. He's a bit overbearing (and talks over me, which I hate) so not really looking forward to it. Hate that waiting room too as it's the same place you wait for chemo and radiotherapy.

Am doing Race for Life again this year. Anyone else up for it?

OP posts:

BlaDeBla · 02/03/2009 11:27

I thought about doing the Race for Life and have tried running a bit when I take the dogs for a walk. It's not much fun running through mud and puddles and ruts in a pair of wellies, and I can't get very far. 3 miles is not a long way to walk, but it's too far to go at greater speed!

I too have an appointment this week. I go to London tomorrow.

TheMadHouse · 04/03/2009 18:37

Hi All

I have come home this afternoon, with my drains still inplace.

I will be back tomorrow I think. I am sore, but in fine spirits and glad to be back home

TheMadHouse · 09/03/2009 22:06

feeling sorry for myself at the moment - hope everyone is well

Plonketyplonk · 26/05/2009 11:59

How is everyone getting on? My appointment was fine. I started smoking again, which is horrible. It's been about 3 weeks, so I hope I can stop again properly and put this whole nicotine thing behind me once and for all.

How are you getting on, TheMadHouse? Are you recovering from your operation? It takes a long time to really feel better, and I don't think they really talk much about recovery times as it's not a definite thing.

MaryAnnSingleton · 07/08/2009 18:33

Hello - have found this thread and wondered how everyone is. I posted on the previous incarnation of the thread in '08 as a supporter of my SIL and now find myself just out of the other end of breast cancer myself - dx end of April,WLE and SNB - nodes clear, ER+ 24mm grade 2 invasive ductal carcinoma and associated DCIS. Lucky enough to escape chemo and finished rads 3 weeks ago, now facing tamoxifen for 5 years which I am very ambivalent about.
The really hard thing is adjusting to the end of active treatment - it's like a roller coaster ride for 3 months and then you're on your own (though bcns are wonderful,wonderful people and have been told you are never signed off from them) .

MaryAnnSingleton · 22/08/2009 14:43

Plonketyplonk · 23/08/2009 10:22

Hello MaryAnn! I've heard conflicting stuff about Tamoxifen. I'm not sure anyone really knows, so maybe they think it's better to give it to people in case it is helpful. I've had my 2 year mammogram and have to go to the hospital in a couple of weeks to find out if there is anything wrong with what's left of me.

I hope all's well with everyone else!

MaryAnnSingleton · 23/08/2009 19:57

thanks plonketyplonk...have been scouring the Breat Cancer Care forums and there some current heated debates which have rather made me think that tamoxifen is a good idea ! Am going to try it at least.

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