Anyone want to join an Itchy and Scratchy club?

[OhYouBadBadKitten]

Wondered if anyone with psoriasis or eczema or other skin stuff wanted a whingers support thread?
after having a bad night - awake til gone 3 with the bad itchies and sore joints today am feeling a little irrational fragile.
Anyone else?

they look really nice and sound ideal thanks for the link. Am so glad your skin is behaving well at the moment. Skin coloured is good!

Shouldn't be a novelty - but it is!

Sorry to hear that yours is bad again. Sending positive vibes your way....

thanks

Can I join on behlaf of my hubbie?

He gets really bad scalp psoriasis, then patches of psoriasis behind both ears, on both eyelids, patches on his hands and on his inner thighs.

I feel for him SO much and hate myself for constantly nagging him for scratching, especially his scalp and ears. He doesn't realise he is doing it at all.

I try and ensure he keeps some sort of regime with the scalp lotion and eumovate plus all the other creams and potions, but he's not good at it.

Sympathies to you all - for some reason it seems particularly bad at the moment - am thinking the fact people are now putting central heating on doesn't help???

Of course you can join - welcome
I expect I drive dh batty with my constant fiddling with my scalp. It is really hard work keeping up with treatment and sometimes it does seem easier just to scratch and flake.

We havent got our heating on here, instead I'm putting up with blue hands but I think dry air does make the flaking and itching worse. (as opposed to cold damp which makes the arthritic component worse!) Once our heating goes on the washing gets dried on the radiators which does help to humidify.

I'm a strong believer that a lot of psoriasis is worsened by fighting off infections and its that buggy time of year! I think (not very scientifically) that it provokes our immune systems into misbehaving. Certainly on a personal note I've noticed that any illness I get provokes a flare.

Any way, this is a good thread for grumbling in

I really empathise with all you sufferers. My DH is comparatively lucky as the only bits visible are the tiny patches beneath his eyebrows and on his hands. He has thick dark hair so you can't see the angry red patches on his scalp. He isn't at all bothered or embarrassed by it - he just gets on with it. He just gets fed up with me for banging on about not scratching. I don't mean to hassle him but it drives me insane.

He saw a dermatologist but ultimately whatever product he uses works for a couple of months, he then gets immune to its benefits so moves onto the next. However, I don't want him using steroids ongoing so we try and ensure he rotates the products as much as possible. He seems to have tried everything available so i was SO interested about the new scalp potion you mentioned - such a shame it isn't now available.....

Good luck everyone!

I'm back and my skin ahs worsened over the last month. GP just gave me moisturiser!. Used Cocois on scalp last night, what a smell, but it has improved it.

Does anyone have trouble with their nails from Psoriasis, mine are a mess.

nails, what nails!

mine flake + break (doesn't help that I chew them)

hi lazymum. Is it your guttate thats flaring again? Its difficult to treat isnt it. Do you know whats provoked it this time? Sorry to hear its flaring up.

My fingernails arent too bad - a bit pitted and very ridged but all in all ok. Toe nails are a bit bleugh and a couple of toes are bright red and swollen - not sure if its chilblains or arthritic stuff. who knows...

Finger nails are ridged and pitted and come away from the nail bed. Most are discoloured, a murkey white colour. One of my thumb nails has gone green - very attractive.
It is the guttate which is back I think. Small spots on my stomach area and legs, actualy a few on arms as well. I just get sick of treating it and I'm very haphazard at putting ointment on as it takes ages. Sometimes I smear ointment all over as I get fed up with being careful.
I could go to the dermatologist and try and persuade him to let me have more UV treatment, but that involves going 3 times a week for about 2 months which is very time consuming.

lazymum - last time I went to the dermatologist he did say to smear cortisone all over rather than dab it. Not really sure it was good advice!
Its mostly the guttate with me too atm, rather a bugger really isnt it.
Ouch on your nails, they sound bad, not sure you are supposed to go mouldy?

I have, ahem, problems with itchy buttocks (honestly, of all the places). Have been suffering quietly for years, finally saw gp who prescribed various lotions and potions all of which made the problem worse. Eventually got to see dermatologist who seemed embarrassed about inspecting the buttocks but prescribed probiotic cream (sounds like a a yoghurt!) and some other cream beginning with E that I cant remember offhand, but will be applying it shortly before I go to bed.

The itching is horrendous, made worse by walking (I guess its the bum cheeks rubbing together...) and sometimes I literally squirm when I'm sitting down. Its put a real dampener of my life. Its become all consuming to the point where I cant focus on anyone or anything else. Dont understand why I am plagued with this nightmare itch. It started a couple of months after giving birth but no-one seems to be able to tell my why giving birth would bring this on. I hate that I cant have a nice bath with bath oil and have to regularly apply creams to my bum cheeks, and of course I feel paranoid in the bedroom department... sigh.

Anyway, glad I have found this forum. I cant really admit to the itching buttocks problem in real life, I would die of mortification...

you poor soul its not something you can really complain about to people in real life and that makes it much harder to deal with. It sounds really uncomfortable. I really feel for you.

Am trying to pluck up courage to get help for the psoraisis on my bum. Its not itchy but it is raw and I prefer standing up at moment but uless you had posted about your horrid itchiness I probably wouldnt have confessed it here. You are braver than I cos you have sought help for yours!

hi itchy skin!! i have lots of expereince with this with my children, they had excema and i got rid of it completely, by removing wheat from their diets, they all seemed to have a slight intollerance and they were not all related one child was fostered, but it did work, and when they were finally tested at the allergy clinic they were all with a slight intollerance, and dietician or nutritionalist can help and gp's can prescrive wheat free products brand name juvella for you to receive.
also itchy skin,i had itchy skin with little dots come up on my hips, when i was stressed, i eventually realised i had a under active thyroid, although my tests came up as normal with the nurse i was borderline, and it often doesn't show on the blood test. kelp selenium and madnesium can cure this slowly!!And avoiding wheat, other symptons include aching joints, leaky gut ,tiredness and lack of sex drive. lots of books on both subjects at www.thenutricentre.com

BadKitten- I did eventually seek help when the pain and itching became unbearable- I realised how much it had started to affect my everyday life when I couldnt even go to the park with my dd because of the pain and itchiness walking causes. I have to say the 3 gp's I saw werent very helpful, they recommended pile cream (hello, dont have piles its on the buttocks not the anus!) and other creams which just inflamed the skin even more. To be honest wish I did have piles, at least there are things they can do to correct that particular problem.

Have been using the creams prescribed by dermatologist for a couple of weeks but although they help a little they certainly havent cured me. I have another appointment in a month or so and i think I will have to admit just how desperate I am, I dont think people can appreciate just how all consuming the problem can be if they've never suffered themselves.

Have you thought about seeing your gp about your problem? I know its embarrassing but it got to the point where I didnt care who looked at my bum cheeks as long as they could offer some help!!

I'm not surprised you a desperate - its not a part of the anatomy you can really ignore. I really hope that the creams help you properly soon.

I suppose I ought to see my gp. I saw her last week about my rheumy problems, suppose I ought to tell her that I'm losing control of the psoriasis.

AAArgh...need to whinge

Out pushing dd's buggy today in the wind and rain, so put on heavy anorak.
I now have weeping, sore and swollen skin from the hands to the elbow and the little pus blisters are all over my palms

That's what I get for bragging about the nice skin????

Sorry to hear about everyone else too. Hope you get relief soon folks

oh Macdog I'm sorry - that must be so uncomfortable for you.

How awful for you MacDog, infact what a bloody nightmare! Heres hoping, sigh, we can all get some relief from this itchiness soon. I've just walked round the supermarket and as per usual had to stop myself from scratching...

Blisters infected today
having neighbour hassles which is not helping either.

Ichthopaste bandages and antibiotics for me tonight then......could always go as a mummy at hallowe'en ?????

i will join this thread if its ok?

i have had bad eczma since i was a baby, my mum used to have to bandage me up, i have worn gloves at night and have had three courses of prednisolone this year, even when pregnant i had to take it as my skin was so bad.

currenlty it is all over my hands, arms, feet and a bit on my legs, back and in my scalp. it is dry, cracked, weepy in places and sooooo bloody itchy and flaky, it keeps me awake all night and the bed it covered in my dry skin by morning, i am constantly changing the sheets or hoovering the bed, its awful and does nothing for my sex life as i feel so disgusting my dp is really understanding luckily.

i have seen loads of dermatologists, will be seeing the specialist allergy nurse in a fortnight and am hoping she can help.....

i have had uv treatment which helped for a bit but its such a nightmare getting to the hospital 3 times a week for weeks on end, esp as i dont drive and have at least two little ones with me.

my dermatologist is thinking of putting me on some of the immuno suppressent drugs that they give to transplant patients, apparently they can work? i am a bit wary but am desperate tbh, my skin is scared in places and i feel so low because of it. not helped as i have recently been hospitalise with post natal psychosis and am now on strong anti depressents etc, my skin gets worse with stress, ho hum.

anyway if any of you are interested on BMC there is also a thread for those with sensitive skin etc, i will try and find a link as it has some good advice and tips on it, you dont have to join bmc to read it.

sending non itchy vibes to all xxx

that should be SCARRED not scared, tho my skin is often scary looking

Poor you..this thread is making me realise how lucky I am.
I sincerely hope you can get some relief soon

my skin has stopped seeping, but is so dry it hurts to move my wrists.
dd (aged 2) is being very nice and kissing them lots

I'll join.
I get psoriasis on scalp and face, not on body YET.

4madboys - those drugs can be really amazing for some people. Poor you, you sound (unsurprisingly) utterly miserable with it.
Sometimes I joke about the fact that I can't take up a life of crime because I leave so much dna around the place. Might not be a good career move for you either

Mac - sounds like the antibiotics are kicking in. I hope you are more comfy soon.

Welcome Goober hows your skin doing at the moment?