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Gluten and behaviour.

7 replies

susanmt · 24/01/2003 21:22

I have got a friend whose ds (8) has some fairly difficult but non-specific bahaviour problems. (If I give an honest opinion I think it is down to bad parenting, but that is another story!). SHe has gone through a lot of theories and is looking for some kind of 'diagnosis' for his behaviour. Her most recent thing is that he could be gluten intolerant. I just wondered if there was any real evidence that a gluten free diet can help behaviour problems. Anything either anecdotal or scientific would be much appreciated!

OP posts:
robinw · 24/01/2003 21:31

message withdrawn

Jimjams · 26/01/2003 10:07

Gluten free diets can make a huge difference in cases of autism (and related difficulties). To see an article on this have look at this link to the autism research unit The page aso includes a link to the ARU homepage where you can get instructions on the test (very sinple just involves collecting the first urine of the day).

Children who are helped by the diet (and those involving the removak of casein) have leaky guts, so breakdown products of gluten that would usually remain in the gut pass across the blood brain barrier and act like opiates on the brain. On removing gluten you can therefore see withdrawl behaviours- lots of tantruming, head banging, screaming etc. Most children on the diet also require the remoavl of MSG, aspartame, and thigs like gelatine (which contain the same thing as MSG). it is a very strict diet- far stricter than the coeliac diet. However if it works it is incredible. The literature says to give it a 3 month trial- in my experience if it is going to work it works dramatically in days. After removing gluten etc a close eye needs to be kept on the diet and further foods may need to be removed. An excellent organisation is "Allergy induced Autism" (AiA) - there'll be a link to them from the ARU homepage which can be accessed from the above link. Some good books are those by Marilyn LeBreton and Luke Jackson (a 13 year old on the diet). Also an american (i think) publication "special diets for special kids".

As someone else said fish oils can also be useful- especially in cases of ADHD or developmental dyspraxia- both of which can look like bad behaviour. Efalex or EyeQ are bth good brands and can be found in Boots. Slightly different formulas though so it might be worth experimenting with both.

FWIW I have some cards to hand out for people who are tut tutting at me in public, produced by BIBIC (British Institute for Brain Injured Children). They satrt "this child has autism. He?She is not being naughty and we are not being bad parents for not reprimanding them"

Obviously I have no idea about your friend, but undiagnosed AS (Asperegers) ADHD or developmental dyspraxia (all of which it wouldn't be unusual to be undiagnosed in an 8 year old) can look likebad parenting. Guess I'm just saying don't be too quick to judge. Also if there is a problem it can be very difficult to parent effectively if you don't understand why your child is behaving the way he is.

PamT · 26/01/2003 10:15

Not gluten, but I do know of a child who had terrible behavioural problems due to milk intolerance. Once the problem was recognised and his diet adjusted he was a completely different child. Often if children are uncomfortable they will act aggressively or be bad tempered as they don't know of any other way to express their feelings.

susanmt · 26/01/2003 11:48

I don't think I am judging, Jimjams. SHe has had all these things like autism, AS etc tested for and he remains undiagnosed - there appears to be nothing wrong with him other than the fact that he plays up, as she always gives into tantrums etc. SHe has spent a lot of money trying to get a diagnosis - I think she is just unprepared to take responsibility for his behaviour. All children who play up in public or not are not being naughty, but all children who play up in public are not brain injured either.

OP posts:
Jimjams · 26/01/2003 11:56

Not saying they are susanmt- as I said I don't know the mother or her child. Did you see the programme on channel 4 - "chidren behaving badly" - the last one was about autism. There was an 11 year old boy on it who had seen loads of experts and remained undiagnosed. They showed footage of him having his hair cut and he was so obviously Asperger's it was unreal. God only knows how all these people he'd seen had missed it. During the course of the prgramme he was diagnosed as Asperger's. It's not uncommon for children to see loads of people and get to the end of primary or later and remain undiagnosed (I assume the case is the same for ADD, ADHD, SID, dyspraxia etc).

Once again I'm not saying the child does have any if these problems, maybe it is poor parenting, I was just making a suggestion, coming from someone who's been on the receiving end of some tut tutting in my time (including from people who should know better).

SueW · 26/01/2003 16:42

Jimjams are you going to the Aspergers/autism conference in Nottingham next month? I noticed it advertised in our local paper this week.

On dyspraxia - at DD's dance school yesterday, one of the older girls who helps run it was saying they have a number of children there who have dyspraxia.

Jimjams · 26/01/2003 20:22

ooh which one's that sueW? I wanted to go to a 2 day one recently in Birmingham on diet and medical intervention in autism. I'm a bit stuck at the moment though as I'm still breastfeeding ds2 which makes it a bit hard to slope off for a couple of days There's a one day one in Sunderland in March which I'd love to go to (medical interventions + diet again) - really cheap as well (usually these things are hundreds), but I can't get up to Sunderland and back in a day

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