Is anyone who helped on my thread about DD's psoriasis about? I've got some info from the psoriasis association through and am really worried, anyone free to come and tell me I'm over reacting?

[used2bthin]

It listed types of psoriasis and included two types which can lead to loss of fluids and the body getting too hot? I can't remember the name and don't really want to get the info back out but it said with both of these types its an emergency situation. My DD is steroid dependant and her condition causes her kidneys not to retain salt so she is more at risk from dehydration than most babies so you can imagine how much it has scared me. This must be quite rare? If you have one type, how likely are you to develope another?

The psioratic arthritus has really worried me too, she has a 30 % chance of developing it apparently. And if it affects her head she could lose hair? I wish I'd asked more when shewas diagnosed, I just was relieved because I thought psoriasis was a bit like excema and that noe they knew it wasn't excema she would get the right treatment and it would go

bump

Final bump in case any of you are about tonight.

Hi Used2bthin I'm sorry you've been so worried about your daughter. I haven't seen any of your previous posts about her and don't know how old she is, but can appreciate how scary it must be reading about any potential problems.
I think you may have read about Erythrodermic psoriasis. This is where a large area of the skin becomes red and inflammed, and like a large area of severe sunburn people can become unwell with shivering and fever leading to dehydration. This is VERY rare, and the vast majority of people with psoriasis never get this type. Psoriasis is actually very common, 1-3% of the population have it, and it has a wide range of severity. Some people don't even realise their rough elbow or knee skin is psoriasis;for most people, it's a nuisance, but one that can be managed with different creams and treatments; and a minority are more severely affected.
From memory, I think the usual chances of a person with psoriasis developing the arthritic type is about 5%, but there may be particular reasons why they think she may be more at risk. If her risk is 30%, it can sometimes help to hold onto the fact it means she has a 70% chance of not getting it.
Its not unusual for psoriasis to affect the scalp, but significant hair loss is rare.
The psoriasis association is very good for information and further support, but its often hard to take everything on board when you have been given a new diagnosis, especially when your daughter has other heath problems. It may be an idea to go and speak to your GP with your questions. HTH

Oh thanks lazyhippo that is exactly the kind of thing I needed to hear. So I'm guessing the Erythrodremic psoriasis (yes that is the one I meant) would have to cover a really large area of skin before this happened? My DD has got one big patch that has spread so that it covers a lot of her elbow but this would be bigger than that wouldn't it?

I'm relieved to hear the 5% statistic for psoriatic athritus, I'm not sure where I got the 30% from, maybe when I googled it. I am silly because I know not to google stuff like this from when my DD was diagnosed with her genetic condition. She is only 21months it does feel very unfair when she has so much else to cope with but I suppose life isn't fair!

One thing I am woried about is that she needs regular blood tests due to her condition and I also have to do blood tests via finger prick at home and she sometimes has to have her steroid by injection if very poorly. I read that immunisations can trigger psoriasis at the site of injection and I'm pretty sure that her first patch (on her body she's had excema/undiagnosed psorasis on her face for some time now) came up after I had to give her an injection when she was ill. Does this mean that any time she has a blood test or any of the above she is at risk of getting psorasis there? Thanks very much for your help.