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Pompholyx - anyone else suffer from this?

7 replies

IAteRosemaryConleyForBreakfast · 01/07/2008 20:03

I've had it for a couple of years now but it's just getting worse and worse. Tried hydrocortisone, eumovate and betnovate to no effect. I'm thinking of asking for a dermatology referral but not sure what else they can do

So itchy and my feet are constantly blistered and peeling.

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littlepinkpixie · 01/07/2008 20:06

There are stronger steroid creams than the ones you have tried. Might be worth seeing a dermatologist and getting specialist advice, if your GP has been treating this for 2 years without improvement then resonable for you to ask for a referral IMO.

IAteRosemaryConleyForBreakfast · 01/07/2008 20:43

Thanks. To be honest I think I'm probably looking at oral steroids because it's really bad but I'm really reluctant to go down that route. I think I'll have to go and see the doc again, won't I? [much dread emoticon]

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ElenorRigby · 01/07/2008 21:41

Ive had this for 10+ years. I get outbreaks in warm/hot weather. I have an outbreak atm.

The way I deal with it is not to touch it, no matter how itchy it gets, I just leave the vesicles to dry up which avoids the raw peeling.

I gave up using creams years ago becuase they never worked for me.

IAteRosemaryConleyForBreakfast · 02/07/2008 10:06

Thanks Elenor. I know I make it worse by scratching but how on earth do you stop yourself? I've been known to shed a tear at 3am because the itching's so intense I can't sleep. It only seems relieved by pain if that makes sense?

[hits eBay in search of a manacle]

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ummadam · 02/07/2008 11:32

poor you - it is very annoying. Sounds like a trip back to your Gp for the next step is in order.... I wouldn't expect them to try oral steroids at this stage and they may think a dermatology review could be helpful. You won't know until you ask...

In the meantime. Have you tried this....

  1. frequent moisturising - try emulsifying ointment from the chemist - very cheap, very gentle and excellent - helps the skin heal and the steroid creams to work better. Use at least 3 x a day.

  2. before bed, put the steroid cream on, lather your feet in the moisturiser (eg emulsifyign ointment or vaseline - it will be greasy but it is supposed to be) then cover with cotton socks. Do every night - should have some improvement after about a week.

It is a horrible condition but it does get better. As a child it was very bad, mainly on my hands. Now I get a few few patches on one finger every few years that go completely with a weeks moisturiser/gloves/low dose steroid cream combination.

good luck

ElenorRigby · 02/07/2008 13:59

IAteRosemaryConleyForBreakfast wrote: "It only seems relieved by pain if that makes sense?"

Yeah I know what you mean I think...
in the past the only relief from the itching I could get was by scratching until it was red raw, the pain of that was preferable to the itching.
Now I dont know how or when things changed, Ive had this condition so long. But now I prefer to leave it well alone unless the vesicles are unbearable big which happens occasionally, then I erm (TIM!) I drain them in a controlled manner.

I think I found in the past the more I itched them the more it spread (I get the worst outbreaks on my feet) so the pain of one patch became outweighed by having difficultly walking due to a very large area of my foot being red raw.

Sorry I can't be anymore help. I hope you get some relief, as others have said it does get better with time erm or maybe you just learn to live with it!

IAteRosemaryConleyForBreakfast · 02/07/2008 21:51

Elenor that's exactly how it is - you scratch until you're raw because it beats being so itchy you think you'll explode!

Thanks for the advice re moisturisers. I used to find witch hazel gel great for the itching but not I'm at a stage where it's cracking and raw so it stings like hell. Back to the E45 drawing board I think!

Thanks again

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