Late diagnosed adenomyosis

[Roberta1]

Hi All. On the back of my T2D diabetes last year (now in remission and 4 stone lighter!) I’ve been getting to grips with other health stuff.
I have made use of my company BUPA to have one last push at sorting my lifelong gynae issues. As a result I have been diagnosed with adenomyosis at the grand old age of 57. I’ve been told that I have likely had this since puberty.
I just feel so let down. I have lost count of the times I have seen doctors who have dismissed my horrendous period pain, and latterly right sided abdominal pain as “just one of those things, maybe a cyst”. It seems that the adeno may also be the cause of my lifelong need to wee every hour (!!) and also of my decades-long sciatica.

It looks like I am heading towards a (very welcome) hysterectomy.

Just posting as this kind of thing is very much in the news at the moment. Has anyone else experienced this kind of late diagnosis?

Yes I had exactly the same thing in my 50s

i moved house and changed GP surgery. I told the GP about my painful periods and he was like ‘well let’s do a scan’ and there it was. I was ignored for decades!

I then paid to see a pelvic pain specialist who prescribed voltarol suppositories and for the first time in my life, I could cope with the pain. It only took till I was 52!!

now I’m 53 and my periods are starting to become irregular - I feel cheated in a way as it would have been great if someone had helped between age 11 and 52!