Diagnosis: Cholinergic Pruritus

[Archangelb26]

I have been diagnosed with Cholinergic Pruritus.

I experience intense itching or prickly sensation triggered by a rise in my body temperature from excercise, humidity, hot showers, stress or frightened emotion. Mine doesn’t come with a rash which I hear some people experience. It’s a very uncomfortable itchy sensation underneath my skin (like itchy pins and needles). I am only able to relieve this if I go into a very cool environment or I stand infront of a fan. The doc has recommend for me to take antihistamines like Fexofendaine. You can imagine summer time is my worst season.

Has anyone experienced this and how do you manage it?

I have severe cholinergic urticaria I’m on Xolair injections for it but that came after main years of trial and error with antihistamines

Few things that help vaguely
keeping skin moisturised
cooling sprays like this https://www.boots.com/boots-pharmaceuticals-insect-cooling-spray-50ml-10113583?srsltid=AfmBOopOBD8PeO9HV2oYHBTeq5M6LelKJ-mVeGjmo6AoMrzVXB3v-IY2
cooling towels and neck fan (Amazon)

mine is worst going from cold to hot. Sometimes deliberately bringing on the itching slightly every day can give you some relief

@dreamlove thank you for your response and I am sorry to hear yours is severe. Just to ask do you take the injections daily? monthly? And how has it worked for you so far?

Have you tried viscopaste bandages. I know someone who managed to get rid of a bad case of prurigo using these bandages at night which helped to keep the skin cool at the same time as preventing access for itching.

Every 5 weeks, the standard is 4 but I’m ok on 5 weeks
its changed my life. No hives, no itch and I’ve had the urticaria for 30 years