Mitral Valve prolapse and regurgitation, anyone else?

[Xenomoth]

I’ve just been diagnosed with this and mild to moderate regurgitation through a private echo. I’m a very anxious person anyway and quite frankly feel terrified.

I get a lot of PVCs/ectopic beats at night which I was told again and again were anxiety related, but I knew they weren’t. Even refused an NHS echo and told to ‘run up and down the stairs’ when they happen.

Anyone else got this and can share anything encouraging (or not!) about it? Apparently it’s likely I had it since a child.

Hello i have mitral valve regurgitation diagnosed via nhs but have symptoms that i feel are worsening, i returned to the Gp and got totally fobbed off and said there was no need to take it any further. They also noticed a Hepatic Hemangioma when i had the scans and echo carried out.

I'm not a doctor but I didn't think MVP was a cause of PVC's.
Did they say anything about beta-blockers for the PVC's?
Do you take a magnesium - potassium supplement?

it's common and quite often isn't a massive problem (depends mainly on the degree of regurg). The cardiologist should be able to explain the echo results properly.

What are your symptoms if you don’t mind me asking? I get frequent ectopics at night and chest…I don’t want to call it pain…it’s more discomfort.

Apparently it can, I can’t remember why now but from googling it’s quite common with it I think. Yes I take beta blockers sometimes and magnesium but weirdly my PVCs only happen at night when my heart rate is already low (I have a low HR already) so tend to make it worse unfortunately!

OK.
Have you tried a beta-blocker plus a magnesium-potassium supplement in the evening?

I had mitral prolapse and regurgitation but mine was severe. As a result I was constantly breathless

I went in for a mitral valve replacement however the surgeon did not perform the surgery as I would not have survived it. So I had a mitraclip fitted instead, and this reduced my regurgitation to mild. And it did significantly reduce my symptoms.

However, I also had hypertrophic cardiomyopathy and atrial fibrillation as well so it wasn’t a simple valve issue.

I would ask your cardiologist, they won’t generally intervene until the regurg is severe but there are now a lot of interventions they can perform if need be.

In my case things were more complicated due to the HCM etc and I had a heart transplant last year, but it’s likely that you will be able to live with the regurg, and if not, then your cardiologist should discuss the way forward.

No, I’ve not tried potassium with that, I’ll give it a google. Thanks. I think maybe I need a different beta blocker as propranolol doesn’t really do much apart from make me feel like I’m going to pass out.

Oh wow, how awful for you. I hope you are doing well now? I’m just hoping mine stays on the milder end but we will see.

What dose of propranolol did they give you?

I’ve tried two doses:
40mg as needed, up to three times a day
10-20mg as needed
If I wake up with my heart racing it’s very useful. But for PVCs when my heart is already slow…makes them more noticeable

Everybody's different, obviously, but I would say that 40 mg 3x/day is a lot.

I would try 10 mg of propranolol am and pm + a potassium/magnesium supplement, maybe 100/40, on a regular basis, not just as needed, and see how you get on with the PVC's.

As I said, I am not a doctor, but this is what would make sense to me.