Anyone else with CKD?

[Torchout]

I've been diagnosed with ckd stage 5, although acute injury.
I'm starting my dialysis journey having had 3 sessions as an inpatient and due another tonight as I've had a line put in my chest so I can go to outpatients for further sessions.

I thought it might be useful if we could use this to chat about it.

My first is that without dialysis I'd be dying so its a positive.

I thought it sounded scary and online resource tend to be either this is a kidney type things or articles aimed at professionals.
It doesn't hurt but does feel a bit weird.

Anyone else have any questions or experiences?

Just saw your thread - I don't have this so can't share any experience - but wanted to wish you the very best with your treatment.

I have CKD but nowhere near as bad - my results fluctuate between stage 3A and 3B. I just wanted to wish you all the best. I remember when I was first diagnosed, they were checking my bloods monthly - the rate it was dropping I would have been needing a kidney transplant in about a year. Luckily they worked out the cause (medication) so stopped it and it settled. I was really scared though, so I can imagine how you must feel. I hope it all goes well x

My Dh has been on dialysis and off it for since 2011. His was due to hypertensive crisis. He had haemo dialysis for a few months and then was trained to do home dialysis - peritoneal every nighr which he did for about 7 years before he got the call for a transplant. Unfortunately it stopped working because of a virus - he was very unlucky. He then had to go back on in centre haemo just as lockdown was starting.

He then got a call for another transplant late last October having been informed he was back on the list for about 3 hours!!

So far it’s going well for him 🤞. He says even in that time frame the medical knowledge they have has really improved.

I’m sorry to hear of your diagnosis and wish you all the best.

There was a running thread on hear called something like “crappy kidneys” I don’t know if it’s still active.

Me! Although I’m stage 4, teetering on stage 5. Last GFR was 17. I’ve been assessed for dialysis and mid transplant testing. I grew up with my Dad on dialysis, then successful transplant before eventually on dialysis again.
Happy to chat all things kidneys as it can be quite a lot to get your head around. There’s different support groups available as well, especially on Facebook. Do watch out for the Americans though, they do things very different over there!

One thing I discovered during yesterday's session is the headache. It was so bad I felt my head was going to explode. Industrial strength pain killers helped

Dialysis nurse today said that the headache was because they replaced the liquid but volume wise my kidneys are producing urine well so I did nt need that part. I was like the hangover from helll

I have CKD stage 3a. At the momenn no treatment offered. I get very fatigued though.