Intermittent catheterization - for a man

[YogaLite]

My disabled adult DS will likely need intermittent catheterization. Any nurses who can tell me how this can be done on a man as he won't be able to do it himself and in all honesty I am not keen to do it for him.
What if I don't agree to do it?

Are you meaning self catheterisation?
I would say this is something to discuss with the continence team, or the team who are currently suggesting this. It’s not for everyone and that’s ok. There will be other options.
Sorry I can’t be more specific based on the info you have given.

If he can't do it himself then he needs someone else to do it and it is a huge ask of a relative.

This does sound like a recommendation that has considered your son's bladder but not your son as a whole person.

At the next appointment make it clear neither he or you can do it.

Thank you for your comments.
It feels like we are being cornered into it at the moment but that might the last straw on top of all sorts of other things we are already doing.

My son had a suprapubic catheter. This is when the catheter goes through the abdominal wall directly to the bladder. It can either be attached to a bag or can intermittently emptied. He had it for seven years until he sadly died.Hope you get something sorted out! Good luck!

@mumof2many1943 thank you, hope it's not too if painful 💜 was your DS living at home at the time, were there many infections with his type of catheter?

Yogalite It was life changing! No more pain from overfull bladder. It was easy to manage,

I felt a bag attached permanently was a better option as it be concealed down trouser leg. The catheter was changed weekly by me. I am here if you have any other questions. Take care !

Just had another thought, look up mitrophanoff which my friend’s daughter had and it worked well for her.

Oops spelt it wrong nitrogen off! No the catheter did not hurt and he did not get any infections surprisingly!

Sorry have just re read it is a mitroffonoff and yes he was at home!

OMG, you are a saint @mumof2many1943 thank you for this.
I have looked it up, never heard of it before, I feel faint at the thought. I never wanted to be a nurse and it's a downhill slope here. Did u have much help at home with DS generally? Everything here is such a battle

I have worked with young men with all of these.
Intermittent catheterisation is a very simple procedure with self lubricating disposable catheters. Can be done seated.
Supra pubic are usually indwelling catheters
Mitrofanoff is a continent stoma (won’t leak but needs intermittent catheters). Fairly major surgery (or it used to be)

my son has intermitent catheterisarion. He is 12
It is really v simple and low down the list of things that he needs in terms of work.and stress involved.
And it has made a massive improvement to his quality of life so well worth.it
@mumof2many1943
nice to.see your posts. I miss our direct messages. x

Yogalite I had better come clean, my son was adopted ( along with 5 others. I am an ex paediatric nurse and midwife and we did get the more complex children)
Personally I preferred the suprapubic catheter it was easier and safer for school to manage. In the eight years he did not get an infection, however when he was in respite they managed to “yank” on it and it did bleed quite a lot!!
Sadly he did die but nothing to do with his bladder, I would not have done anything differently.
I hope you find some support and please take care of yourself as well!

Hi flapjackfairy yes I am still around and still working hard, no need to tell you though!Please feel free to catch up love to the family!

@mumof2many1943 & @flapjackfairy big thanks 💖💖 I feel a bit reassured and full of admiration.

My DS also has other needs that keep piling up, he is 34 so it's all been going for a long time, we are just starting to ask for support, eg he has never been to respite, so it's another minefield altogether.

I am sure I will be back asking more questions, it's not a club I would like to be in but here we are.

Thank you again 💖

@thinktoomuchtoooften thank you for explaining and reassurance

@YogaLite
Any time you need support feel free. We are 20 yrs in with 2 boys with v complex needs so there is not much we haven't had experience of. Good luck with respite...You.have done amazingly well to do it for so long without it so hats off to you. x