We've found the same with insurance.
It's like, is there a brain tumour - yes
Is it/some of it still there - yes
No travel for you!
It at least it's expensive because the algorithms don't take the type of tumour into account enough.
We found one which was actually sane, so we did manage to get abroad a couple of summers ago. But long waits for results, small amounts of growth etc means it's then been too difficult (or at least I don't have the bandwidth to do battle and sort it).
Then it's that they won't cover you if you are waiting for results - like when are we not? It's either waiting for scan results, or other tests whilst they try to sort out the other stuff that goes alongside.
We are hoping to get abroad this summer, but I need to check when her next scan is first as it'll have to be before that - if it's after, and it grows, they might cancel insurance. But that's assuming these bloods don't throw up the need for more tests in the meantime 😂. I'm bored of the UK now.
I know it's a small thing in the grand scheme of things, but it feels claustrophobic. With a shunt though I wouldn't risk it for a while.