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To travel to Peru with IIH?

26 replies

mumoronegirl · 25/01/2026 00:08

My daughter (14) has idiopathic intracranial hypertension (IIH) which is currently under control. Her ophthalmology checkups show limited swelling of the optic nerves and she has not been on acetazolamide for over a year. She has the opportunity to go to Peru with school which would be an amazing experience. However, she will be staying at high altitude (8,900 feet). I know that hight altitude can cause IIH symptoms to worse and those with IIH are at higher risk of altitude sickness and cerebral oedema. She is under a paediatrician rather than a neurologist so we don't really have a medical expert to ask about this. Should she go to Peru?

OP posts:
FairyBatman · 26/01/2026 08:33

They can, you are correct. However my lived experience, and that of many others is that they don’t happen suddenly and overnight. Especially when symptoms are well controlled and you are taking medication.

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