anyone had or children had an operation on esophagus for relux?

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been told dd 12m needs it as she as an under developed esophagus and dont work propely not sure i want her to have it been told she could end up being sick all the time or do some damage! i dont know weather to ask for a second pead to look at her?

My daughter has had an operation for the opposite problem - unable to swallow, which developed when she was 5yo. In fact two ops.

sue was she ok after it? did it make her sick?

Her condition is called achalasia.

It is sort of the opposite of reflux. With reflux the lower oesophageal sphincter is too floppy/not tight enough; with achalasia the sphincter is too tight, doesn't open to allow the food into the stomach and the food then sits in the oesophagus until such time as the body decides to chuck it back up. DD was losing energy and weight because she couldn't get much in the way of food or water into her.

DD also has a lack of peristalsis (the contractions in the oesophagus - and gut - that move food along) in the lower part of her oesophagus.

The problem is 'fixed' by an operation which cuts through the sphincter. Some surgeons choose to add a fundoplication or wrap - is it the fundop or wrap they are talking about for your daughter?

DD's surgeons chose not to do a wrap for her first operation. It was successful for a while but problems developed again and it was decided to re-do the op and to add a wrap. Unfortunately there were complications during the surgery and her oesophagus was perforated, leading to five days nil by mouth, naso-gastric tube, etc and risks of leakage of stomach acids into the peritoneal cavity whereas the previous time she had been eating and drinking a couple of hours post-op. As a result of this complication and the repair that had to be made, it was decided during surgery not to do the wrap as the repair surgery was similar.

DD's underlying condition will never go away. Her oesophagus is now effectively a 'drainpipe' which uses gravity to get food into her stomach. But she is better with surgery than she would have been without it.

Her condition is called achalasia.

It is sort of the opposite of reflux. With reflux the lower oesophageal sphincter is too floppy/not tight enough; with achalasia the sphincter is too tight, doesn't open to allow the food into the stomach and the food then sits in the oesophagus until such time as the body decides to chuck it back up. DD was losing energy and weight because she couldn't get much in the way of food or water into her.

DD also has a lack of peristalsis (the contractions in the oesophagus - and gut - that move food along) in the lower part of her oesophagus.

The problem is 'fixed' by an operation which cuts through the sphincter. Some surgeons choose to add a fundoplication or wrap - is it the fundop or wrap they are talking about for your daughter?

DD's surgeons chose not to do a wrap for her first operation. It was successful for a while but problems developed again and it was decided to re-do the op and to add a wrap. Unfortunately there were complications during the surgery and her oesophagus was perforated, leading to five days nil by mouth, naso-gastric tube, etc and risks of leakage of stomach acids into the peritoneal cavity whereas the previous time she had been eating and drinking a couple of hours post-op. As a result of this complication and the repair that had to be made, it was decided during surgery not to do the wrap as the repair surgery was similar.

DD's underlying condition will never go away. Her oesophagus is now effectively a 'drainpipe' which uses gravity to get food into her stomach. But she is better with surgery than she would have been without it.

I had achalasia and had op when I was 21 - after 2 years of severe regurgitation and down to 8 stone. The contractions in my oesophagus were poor too - by the time I got my op my sphincter valve was practically shut. They trimmed it into a C shape and I've never looked back - well to be honest, I've regurged on really bad food (as in disgusting) about 3 times in the last 10 years or so and I do get heartburn from time to time, but I've never looked back.

DS2 had an op to close part of the 'sloppy' opening at the top

it helped him

he is still easily sick but the reflux is 'cured'

ask lots of questions and go for it. Good luck

thank you for your replys, tbh am confused about what the doing, dd is never sick but as silent reflux, and its damaging her nervous system they say she as a very weak esophagus and said some thing aboutsome things closed, it wasall to much to take in, we have an other app with the surgen whos doing it i willask more question with him

shes very underweight and can not eat lumps maybe this is the reason?

I think you need a lot more information than you currently have to make a decision about how to proceed.

Do you have someone who could go with you to appointments? Or can you write down some questions to ask or ask for information to be provided in writing (our consultant's secretary always sat in on appointments, along with 203 students so someone would have been able to write something down had I needed it)? It can be very difficult to take in what people are saying when you are worried about your child (or yourself).

leogirl interesting to see someone else on here with achalsia. I'm glad to hear your op went well. Do you have virtually no problems now? DD drinks about a pint of water at least with every meal and still has problem foods (she's not keen on eating meat and some types of bread/cakes tend to get stuck).