Looking for honest opinions and advice and really appreciate input especially from people who know or knew someone living with this awful condition.
Family member with primary-progressive MS, diagnosed 13 years ago. Went from having some trouble with one leg, a slight limp, to being diagnosed with MS. She was open with the fact that this condition would only get progressively worse until she’d be unable to use her limbs. It was hard to imagine at the time.
Fast Forward to her life until the other day- in wheelchair, unable to use her legs (dead weight), really struggling to use her fingers and one arm more or less also dead weight.
No pain involved for her luckily and we had got oddly used to her new way of living - very tragic obviously but we were trying to keep it light for her.
Family member took a serious turn Thursday afternoon, began vomiting, one side of body became paralysed and couldn’t string coherent sentences together.
A&E called, was advised waiting time for ambulance was 4+ hours so family members scrambled together and managed to get her there.
Cat scan and MRI done but awaiting results and staff not confident they got the images they needed.
Initially thought to be MS flare up, but now that’s been discounted.
I believe stroke has also been ruled out.
Family member clearly very unwell but able to recite quotes from favourite tv shows.
In terms of the condition, does anyone have any knowledge or personal experience (sorry if you do) to make me understand?
As awful as it is, we already know this isn’t going to be good news, so we kind of just want to know … what to expect for life afterwards if there is chance of that.
Thank you